“Sooooooo I’m dying again. I went gluten free about 6 months after a celiac diagnosis and it helped for a little while but things are taking a turn for the worse. I’m 18, I don’t smoke or drink or have sex with random strangers and I’m in shape so I’m really confused about whats going on with my body. Every now and then (but a lot recently) I poop black bloody stool and I’ve been having problems holding urine and I’m always tired again. I’m kind of getting scared and I’m confused because I thought going gluten free was supposed to help me feel better and I’m started to wonder if I got a mis-diagnosis and something even worse is going on…please help.”
The above was a comment left on one of my blog posts yesterday.
“Hi! I am worried about my calcium in the brain, having much at some parts and having less on the others. I was reading about it a while ago, and I would like to know, that with what CT can it be shown that where is the problem.”
That one was a direct message on Facebook.
“I have what appears to be celiac disease as my doctor noted damage to my small intestine from tests conducted. My real question is my head is always cloudy and I’m honestly brutally suicidal. I’ve seen this is common. My question is what to do?”
“My six year old son has been complaining about his stomach pain for two months and i have taken him to four different doctors and none of them has seemed to see anything wrong with him but the pain seems to be getting worse he wakes up crying in pain i just don’t know what else to do. Please, please help!”
Those last two were via email.
My point is not to make light of these people’s situations. My heart aches for them and I’m honored they have enough faith in me to ask these types of questions.
My point is I get a barrage of these types of communications all the time. And sadly, my answer to all of them is pretty much the same: “As much as I’d like to help you, I can’t. I am simply not qualified.”
You want to know about living with celiac disease? I’m your guy.
You want to talk about specific symptoms and if they could be related to celiac? I’ll try to help.
You want to share your celiac story? Bring it on.
You want to know about testing for celiac? I got you covered.
You want to know if one of the many celiac myths floating around out there is true or complete BS? I’ll set you straight.
You want to celebrate a gluten-free victory you had? I’m all ears.
You want to call out the media and discuss how they’re hurting the celiac community? Right up my alley.
You want to share your gluten-free love story? I’m such a softy for these.
You want to know how to try to eat right to give yourself the best chance at feeling good? I’ll serve up my best gluten-free advice.
You want a shoulder to cry on? I’m here for you.
You want to scream to the world about your celiac? My blog is your blog.
But if you are looking for medical or psychological advice or asking me to diagnose you…I’m truly sorry but that just ain’t me. I’m not that smart and I won’t even try to pretend that I am.
The last thing you need is medical advice from a guy named “Gluten Dude”.
What saddens me is how little faith so many must have in our medical community that they are asking a blogger for this kind of help.
I detest any kind of suffering. Especially needless suffering.
Please folks…try to get the help you need and you deserve.
Thanks…and I’m sorry.