Did you know that today is National Gluten-Free Day? No really…it’s a thing. So what is on my FB and IG feeds, where I follow a lot of folks/groups with celiac disease? Same as every other day: food, food, food and more food. Except today there are many “promotions” on food to celebrate our special day.
Why do I bring this up, besides the fact that I’m an open book? I went to the dentist a few weeks ago with some discomfort in one of my molars (I swear this is relevant). Turns out I had a fractured tooth. It needed to be extracted (for $6,000 dollars but don’t let them talk you into things you don’t need; it eventually cost me $495) and my appointment was yesterday. As I was sitting in the chair post Novocain and pre-extraction, I decided to share on my FB page where I was and asked if anyone out there with celiac disease had dealt with fractured teeth.
Thinking I might here crickets back, I checked my phone after my yanking and definitely not crickets. As of right now, the post has gotten 152 comments, most of which are from people who have dealt with major teeth issues. So why aren’t people talking about this? Why do all of the GF influencers (puke) do bullsh*t posts about “what I ate today” or the “latest pizza joint that you just have to try” or worse yet pushing bullsh*t pills that will help you with your celiac disease?
Two reasons actually. One…they’re soulless creatures who get paid to post crap like this. And two…fractured teeth aren’t sexy. Food is. Try posting a pic of a gaping hole in your mouth and you might get a few views. But gluten-free brownies with only one ingredient??? Click, click, click.
And look…I get it. The gluten-free diet is indeed a huge part of our disease. And it is the ONLY treatment. But how many times on your social media feeds do you see posts about the disease itself? About how serious it is? About how debilitating it can be? About how low the diagnosis rate is? Of how the medical community has failed us?
I do think this is one of the reasons my blog resonated with people from the beginning. This is my 777th blog post (holy crap!!) and I have written maybe 20 articles on the diet. My focus has always been on the disease, from all perspectives (social, emotional, physical, etc.) It’s also why I don’t have ads on my site or my app. It’s also why I created the Faces of Celiac Disease, so you can see real people with a real disease.
So on this National Gluten-Free Day, instead of posting your favorite recipe, how about you share something about celiac disease so we can continue to spread awareness and let people know that we are more than the food we eat.
Dude Note: I saw on IG yesterday that someone translated my Symptoms of Celiac Disease infographic. Now THAT’S what I’m talking about.