Yeah…having celiac disease can be a total drag. I’m in the midst of two weeks of hell from who knows what.
So in no way am I minimizing how difficult our disease can be to live with. I detest this disease with every fiber of my being.
But I’ll be honest with you. I have very little tolerance for people who intentionally cheat (eat gluten) and then have the stones to complain about how bad they feel.
I see it on Twitter all the time. Crap like “Should have known better but that bagel looked so good. #celiacsucks”. Please.
That brings us to a new celiac rule (haven’t had one of these in awhile): If you intentionally eat gluten, there is absolutely no complaining about it. Period.
This leads me to a comment that was recently left on my blog post about lymphoma and celiac disease. At first, I was going to ask for the community’s support for this fellow celiac who is having a hard time staying gluten-free. You know…”rah, rah…you can do it…we’re all behind you.”
But when I read the comment again this morning, it just hit me differently. Yeah, I know food can be addictive. Yeah, I know having to give up gluten for LIFE is a bummer. But at the end of the day, IT’S ONLY FOOD. Not only that, but it’s only SOME food. There is still SO MUCH we can eat. I always tell people, the food is probably the easiest part about having celiac disease. It’s all the other crap that goes along with it that makes it such a pain in the ass to live with.
So you can’t have a NY bagel. So you can’t have a nice 90 minute IPA. So you can’t have a slice of pizza on the run.
A bummer? You bet.
A tragedy? Not even close.
Am I being too harsh on this woman? Here’s her comment. You tell me.
I googled, “celiac and cheating” to get a refresher in how this effects my body. I am scared. I am very aware and still I feel like I cannot stop especially during PMS.
I have two beautiful children with many food sensitivities. My whole life is food. I know I need to be a good example. Many of you are likely aware of how gluten and dairy effect the opiate receptors. I feel like I need an addictions specialist. I am sharing this because I hear the judgment and disbelief that someone would do this to themselves. It is horrible and I am ashamed.
I think for some of us it may be more complicated. It does not feel like simply making a choice. Some days I feel like every moment I am fighting a craving. If my attention and will are pulled in a different direction (which is often with a toddler and a husband who travels for work), I become weak. I know there are answers and I am committed to figuring it out. I am sharing just in case anyone else has felt like this….you are not alone.
I also express much admiration for those who just decide they are done – and that’s it. I cannot eat dairy, any grains, nuts, seeds, eggs, soy, or night shades. It is not an excuse. I must figure it out. It is difficult. My cheating has nothing to do with a lack of love for my family but some crazy out of control compulsion in my head.
I am not asking anyone to understand….just letting you know what it might be like for some of us. Very much like the alcoholic who drinks and knows if he doesn’t stop, he might lose everything.
I feel for this woman. She is obviously struggling. I’m glad she felt comfortable enough to share her message with us and I truly wish I had an answer.
But I’m just not in an “It’s ok…I understand how tough it is” mood.
Perhaps she needs to hear from people who have a gentler message.
This morning…that just ain’t me.