So much anger in the world. Much of it justified. Let’s face it…the world is a mess out there.
But sometimes…well, the anger is just misguided and misdirected.
I blog so I am fair game for push back.
You don’t like my Twinkies post (as many of you didn’t)? I get it.
You think I called out Bob’s Red Mill unfairly? I’m all for a good conversation about it.
You thought I was too harsh on Kim Kardashian? Ummm…ok.
But spew at me when it’s totally misguided? That’s bullsh*t…plain and simple.
I received an email from a “fan” that read as follows:
Dear Gluten Dude,
At first I really liked your website. I first found your website during the Bob’s Red Mill flour recall (so quite recent). I loved your rant section. I was able to sympathize with many of the mothers. I have 2 boys 12 and 10 that had to go gluten free.
However, the more I have read your website the more troubling I am finding the distinction you make between gluten sensitivity and Celiac disease.
I should start by admitting that my children do not have an official diagnosis. Their original pediatrician had them go gluten free before testing. Plus due to other horror stories that I will skip we had to change pediatricians. Their second pediatrician referred us to a GI doctor that we had to wait 4 months to see.
The GI doctor and the pediatrician are supporting my decision not to go through with testing. However, I was told that the chances of them ever getting an official celiac diagnosis will be very unlikely. The deciding factor in a celiac diagnosis is intestinal damage. Never mind that they carry the genes and get sick every time they eat gluten. Unless they have intestinal damage they cannot have a celiac diagnosis. If I do a good job keeping them off gluten then their intestines will heal and there will be no damage, so no diagnosis.
My youngest son has been extremely ill his whole life with repeated sinus and strep throat infections. It accumulated in having his tonsils and adenoids removed. This seemed to help for about 6 months and then all his symptoms started coming back. Headaches, sore throat, fatigue, emotional mood swings, fevers, body aches, etc. He had MRI’s which led to talk of brain surgery to correct a brain defect. This defect normally doesn’t cause problems but because they couldn’t find anything else wrong it was getting the most attention. Yet when he is gluten and soy free all symptoms magically disappear. But he can’t possibly have a medical condition that causes this unless he has intestinal damage?
So their official diagnosis is gluten intolerance. Which according to you is nothing like celiac disease and you can look down your big celiac diagnosis at them and say “gluten intolerance is not the same as celiac disease” (your quote from “Woot! A Cure for Celiac Disease!”). Not to mention your “But I HAVE the disease” comment in “Why is Celiac Disease Funny?” and “if you aren’t gluten-free for medical reason…much more difficult for us to be taken seriously.”
My point is (in case your head really is as thick as it seems) is that until the medical community can get their head out of their ass you need to stop making a distinction between celiac disease and gluten intolerance or people that go gluten free without an official diagnosis.
Just a Mom of two NON-Celiac children.
My first reaction was I felt bad that she misread me. I have ALWAYS put NCGS on the same level as celiac disease and if I said something to make her think otherwise, I wanted to set things straight. So I wrote back the following:
Hey [angry person whose name I will not reveal here].
I appreciate your directness. But you have me all wrong. I have stated over and over and over again throughout my blog that I put those with NCGS in the exact same boat as those with celiac. I am the farthest thing from a celiac snob as you will ever find.
It sounds to me if your kids don’t have celiac…they certainly have NCGS. And I totally support your decision NOT to put them back on gluten for an official diagnosis. Many people have chosen the same path.
I’m not clear where your anger at me is coming from. I stand behind anybody who gives up gluten 100% for health-related reasons. Period.
I apologize if I lead you to think otherwise by a few of my comments. I assure you my feelings are consistent. Perhaps I need to reword some of my verbiage.
My best to you and your family.
I figured she would either not respond or at least thank me for my response.
I figured wrong.
Instead, I got this.
There it is again…”It sounds to me if your kids don’t have celiac…”
It doesn’t mater what their medical condition is.
They get sick when they eat gluten. I don’t feed them gluten.
I’m done with you now.
It’s like she’s arguing with herself. I’m supporting her. I’m saying it doesn’t matter if they get the official diagnosis. She needs to do what’s best for her and her kids.
And instead of having an adult conversation, she chooses to berate me.
So to this person…I say eff you.
You got problems? Let me tell you something. We ALL have problems. Don’t take it out on me.
I do my absolute best to help the community. All of my blog posts aren’t home runs, I’ll admit it. But my heart is always in the right place.
Now…if you don’t mind, I’m going to watch the video below, which will put me back in my happy place. I suggest you do the same.