First off, I am about a month behind in my emails. So for all of you who have written to me asking for advice…I apologize. Celiac Awareness Month was a bit of a whirlwind and it took the wind out of my sails a bit.
But I’m back and ready to help all who need it.
Today’s Dear Gluten Dude comes from a doting Mom with celiac disease who is trying to do right by her children. They are showing some celiac signs but the blood work tested negative and she is debating whether she should order endoscopies for them. If any other parents out there have been in her shoes, please advise.
Here’s her email.
Hey Gluten Dude!
I have Celiac. I am the mother of a 3-yr old boy and an almost-one-year-old girl. We introduced my son to gluten after his first birthday. Never gave Celiac any thought until now, since most of his symptoms were different from mine. Only ‘googling’ them now do I suspect Celiac. His blood test came back negative, but I’m not convinced.
Both my kids are small for their age. At 18 months old, he developed a red, blotchy, hot-to-touch rash all over his body, which 3 doctors could not explain. It lasted 3-4 days and disappeared on its own. At 2 he developed asthma and allergies, after a stubborn 6-month bout of bronchitis and pneumonia. He was put on Singulair and his cough went away. Soon after, he started with terrible insomnia, was a nightmare to get to bed, and after hours of fighting would fall asleep but wake up frequently during the night. Now, having just turned 3, when potty training was fiiiinally starting to work out, he had diarrhea for a month. Back to diapers we go, as he has no control. Poor kid – kept telling me “don’t worry mom it was just a toot!” Then after realizing what happened, informed me it was in fact a “poop toot” instead. Lol.
About a month ago, my daughter (who has suffered with frequent constipation since we introduced solids at 6 months – and we didn’t wait to introduce gluten this time) started passing white stools. Brought her to the Dr who ruled out blocked bile duct since she was not jaundiced. He suggested Celiac may be the culprit.
So we decided to go gluten free, and wouldn’t you know it, no more poop toots, and no more white poop. My son goes to sleep on his own with no fighting, and my daughter is growing some chubby baby cheeks.
I just am curious if there are any other parents out there whose child’s blood test was negative, but were re-tested positively later on, or who had the endoscopy and tested positive. I just am trusting my ‘gut’ (haha) and would rather just keep them GF forever than put my babies through the horror of an endoscopy! Since I’m already GF it’s not a big deal; I’ve been diagnosed for 6 years, so I’m well educated with food prep, but when I had to watch my boy cry his eyes out at a birthday party last weekend when I told him he couldn’t have cake, I just wish I could find out for sure.
Sorry for the rant! I just want to do the best thing for my babes, and after spending my childhood constantly sick, I want to make sure they never experience that.