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69 Comments

  1. 1

    Donna D

    Holy cr*p, how can any “responsible” physician so misinform anyone, never mind on The Today Show and millions (potentially) of people?! I figured out about being a celiac by doing several weeks of Phase I of the South Beach Diet and the return of symptoms with reintroduction of wheat products I thought how awesome that this connection could be utilised for others with undiagnosed celiac disease.

    To go and give such horrendously incorrect information is unconscionable if not downright ludicrous. No wonder I choose not to waste my time watching that show! And I have lost a ton of respect for the diet doctor without enough sense to get informed before lining his pockets.

    Just sign me: disgusted to the core.

    Reply
    1. 1.1

      Gluten Dude

      When his main goal is to sell books and make money, facts can easily become blurred.

      Reply
  2. 2

    Celiac Mindwarp

    Just outrageous.

    There is no reason this diet could not be very good for some celiacs. If the author HAD A CLUE.

    I don’t understand why this level of misinformation is not gross professional misconduct.

    We have some problems with our media in the UK. My view is that anyone who prints or broadcast something incorrect should present a correction of the same space, duration and prominence. That would encourage accuracy.

    (A girl’s gotta dream…)

    Reply
    1. 2.1

      Gluten Dude

      A Dude has the exact same dream…

      Reply
  3. 3

    Amanda

    You know, I used to think you were a teeny bit militant about all this, until I started watching what you were watching, and reading what you were reading… then, I experienced my ‘illness being a craze’ this week, (that story I emailed you about the grocery store lady) first-hand. It’s insane. Imagine cancer being a craze. Or MS. Or Diabetes (all of which are diseases in my immediate family [and they’re all auto-immune diseases, yet I’m the ‘only’ celiac, hmm). It’s gross, and I am increasingly worried about the safety of the food I eat because everyone is jumping on the bandwagon, and companies are falling all over themselves to profit from it. I wrote an angry complaint letter to o French Canadian bakery because their ‘no gluten products’ claimed they were for celiacs… made in a fully gluten-filled bakery, no special kitchen, no separate utensils, etc. One angry complaint later, they fixed their website to remove the ‘safe for celiacs’ claim, but they should have been smart and responsible enough to figure it out themselves.

    OK well now I need to go run a whole big bunch, ’cause this celiac and angry and she isn’t going to take it anymore!!!! ;)

    Thanks GlutenDude, and thanks GF community. xo

    Reply
    1. 3.1

      Gluten Dude

      Hmmm…militant. I think I need to process that one a bit ;)

      Reply
  4. 4

    Lisa Mims

    “Yes, you want to shoot them” for saying we celiacs cannot have “almost any” gluten. Right on, Amen, and sing it sister!

    But, the University of Boston did a study the year before last, which said that up to 19% of the population is affected by gluten-intolerance. (I’m from a family of people with two celiacs and three people with gluten-intorance, so I’d believe it.) Is that a majority? Ummm…”No, he’s still really wrong.” He’s not THAT wrong, though. That’s one in five people.

    Also, I hate the trendy stuff. The minute someone says, “Gwyneth is doing it.” I know I’m going to get a waiter somewhere who will “forget” the soy sauce in something….

    So yeah, they suck. Just not entirely.

    Reply
    1. 4.1

      Gluten Dude

      Even if it were 19%, it’s not even close to the majority. Again, he’s just spinning in to create fear and sell books.

      Reply
  5. 5

    Laura

    My GOD, that was awful — and I don’t even have Celiac disease; I have an intolerance. I, too, really hate it when something becomes popular because ‘the celebrities do it,’ and I’m saying this as someone who is has a guilty pleasure for celebrity gossip. I’m glad I work for a (Canadian) news organization that doesn’t sensationalize every hot-at-the-moment ‘allergy.’

    Reply
    1. 5.1

      Gluten Dude

      Yeah…the U.S. media is just plain awful. They will sell their soul for ratings.

      Reply
  6. 6

    lori sica

    5 minutes of research, the Today show doesn’t have the means or aptitude for 5 minutes of research. Sad…you can’t watch TV anymore.

    Reply
    1. 6.1

      Gluten Dude

      Agreed. Where in NJ are you? I grew up in Freehold.

      Reply
  7. 7

    Sas

    Doctor Nancy Snyderman should have her license revoked for her unbelievable remarks and diagnosis in 99% of her interviews. She also can’t interview on her own.

    These three are total idiots. The show has lost all credibility!

    Reply
  8. 8

    Amber

    Ha! Ciliac… hahahaha…….people are stupid, that’s all I have to say.

    Reply
  9. 9

    Cookie's Mom

    I just want to make one wee little point. Not going to address the video at all, because you’ve done that well. Celiac experts may have come up with a number of 6-7% of the population as gluten intolerants/sufferers, but it’s becoming clear to me, and to others who suffer from autoimmune diseases other than celiac disease, that gluten is at least a factor in these diseases as well. It is possible that many or all autoimmune processes are at least affected by gluten, so that number has to be much higher, I think. P.S., Dr. Agatston is an irresponsible nitwit.

    Reply
    1. 9.1

      Gluten Dude

      I don’t disagree with you at all. I just think it’s amazingly irresponsible for a “doctor” to spew numbers as facts with nothing to back them up.

      Reply
  10. 10

    David

    #$%!@# $%@^&!@ and #$@!!$%$ idiotic mother@$%!@#$@ and ($$&&^! to hell.

    Reply
    1. 10.1

      IrishHeart

      David, dear David…you always manage to say so eloquently what so many of us are thinking :)

      I told the Dude via email yesterday…..and I will say it here:

      The Today Show is trash.
      The boozy tarts (really, Hoda Kotbe, you used to be a serious news journalist–what the heck are you thinking?? Please, go back to being a journalist and dump your “sidekick”. She’s obnoxious and I’m being kind here..) , the continual errors in reporting, the nauseating celeb-worshiping done by all the “reporters”….and they always, always get it wrong when it comes to Celiac Disease. They call us trendy, they call us picky, they call it an allergy…. and they never, ever report any corrections after they are bombarded with correct information.

      I haven’t watched this show for years. I did not even watch the clip (the Dude’s play- by -play is sufficient) and I suspect even our objections will fall on deaf ears once more.

      Breathe in, breathe out…..ah, that’s better.

      Reply
  11. 11

    Richard

    Yeah the Doctor seemed kind of awkward. You can tell he didn’t really know what he was talking about, he just wants to sell that book. What a waste of paper.

    Reply
  12. 12

    Steph C

    Gaahhh – that was painful. I feel like someone just used my heart as a punching bag. Wow. I didn’t think the media could go any lower than Dr. Drew…

    Reply
    1. 12.1

      Gluten Dude

      Dr Drew set a pretty low bar indeed…

      Reply
  13. 13

    vmorelli

    Gluten Dude said it right ‘sad gluten free mess’ :( I have no words really that’s just sad!

    Reply
  14. 14

    Laila

    What’s really sad is the letters thanking them for their air time.ugh! http://finecooks.com/2010/08/nbc-today-show-gluten-free-diet-fad-or.html#comment-2612

    Reply
    1. 14.1

      Gluten Dude

      I just left a comment on that site. Can’t believe a celiac would actually thank them.

      Reply
      1. 14.1.1

        Laila

        I did too…I’ll be curious to see if it makes it through “moderation”

        Reply
      2. 14.1.2

        Lima Bean

        There is something fishy at that site you replied to. I just looked and there are no comments from you two that I could see. At least 2 comments were dated 2010. Not sure how that could be if they didn’t post it until April 2013?

        Reply
        1. 14.1.2.1

          Lima Bean

          The link didn’t take me to NBC. Should have said that in my comment

          Reply
          1. 14.1.2.1.1

            Laila

            You’re right. My comment is pending moderation. GD, is your comment awaiting moderation, too? Funny how the story is posted 4/7/13, but the comments listed go back to 2010 like you say. That may be from an earlier episode of the Today show, but I’m confused on how it was posted 4/7. Need to do some sleuthing here, I think…

            Reply
            1. Gluten Dude

              Yeah…no idea about it now. My comment is not ever under moderation anymore…just gone.

              I hate websites that moderate comments by the way…especially small websites.

              Reply
              1. Laila

                ok, so my apologies on that. I guess that link was to an earlier post from that site from a previous episode… I just finally had time to sit and look into it (and realize that today is the 7th. lol) so, if it was posted yesterday…yeah, I think you get my point. It really was an older post from a previous Today show so I’m sorry for posting a link to an old story. Anyway, thank you GD for posting the video!

                Reply
  15. 15

    Jacklyn

    I emailed them, asking for a correction, reminding them that fact-checking is a good thing, and informing them that their mistruths can actually hurt people. I doubt it will do any good, but, perhaps if enough people contact them, we can see something change….and, even if that doesn’t happen, it certainly feels good to say something about their incompetence to their “faces!!!!”

    Reply
    1. 15.1

      Gluten Dude

      Change would be good. You never know. I’m keeping the faith.

      Reply
  16. 16

    SB

    Thank you for posting this! What a shame!!!!!

    Reply
  17. 17

    Darlena

    I know this sucks. I get that. But, my parents saw that clip while they were in the doctor’s waiting room and couldn’t wait to tell me about it. They seemed impressed that celiac disase was a real thing (and not just in my head) and was actually mentioned on national TV by a real doctor. So, while this does suck (in a really major way) the word “celiac” is getting out there. Don’t bash me with “yes but it’s wrong information” because I know. And that’s the absolute sucky part. But that word “celiac” is getting more playtime which means that some listener, somewhere, might be motivated to look it up.

    I try and talk about celiac disease to any food worker, friend, and acquaintence who seems even mildly interested. I hope someone, somewhere will pick up on the word, do a little research, and find an answer to their problems. I’ve already inspired four people to get tested.

    Reply
    1. 17.1

      Gluten Dude

      Yes but it’s wrong information. Sorry…just being a wise a**.

      It’s always a fine line between being happy about the awareness but pissed about how it’s portrayed.

      Reply
  18. 18

    Rachel

    can you say PATHETIC? These clowns just make the whole thing looks like a big joke. Sad. And people listen to this crap and think they know what they’re talking about. There are so many things wrong with this clip, I don’t even know where to start..

    Reply
  19. 19

    Mel

    I cannot believe how insane this video was. It made me feel like Madeline Kahn in CLUE https://www.youtube.com/watch?v=92IkddsjtAA

    Seriously though, it is interesting that in a week when I read an article about all the failings and machinations behind the scenes at THE TODAY SHOW, and how their ratings keep falling, I find it interesting that they basically took the authors talking points and presented them as facts when talking about the Gluten Free diet and Celiac Disease. 5 minutes of internet research would have gotten them more accurate and factual information.

    Sad, but further proof of how far NBC has fallen.

    Reply
    1. 19.1

      Gluten Dude

      Hysterical Mel. Love Madeline Kahn.

      And yes…NBC is a totally lame network. The days of Cheers and Seinfeld are long gone.

      Reply
    2. 19.2

      Gluten FreeK

      Oh, I’m breathing in and out, alright.

      “I hated it… so…much. It… the f—, it…flame… flames… flames on the side of my face, breathing, breath… heaving, breaths…”

      Brilliant Mel!

      Reply
      1. 19.2.1

        IrishHeart

        holy smokes…LOL
        I must have missed this link to the video clip on my first cruise through here. Thanks, Mel.
        (my face must have been in flames to have skipped over that! )

        This woman was a comedic genius. Blazing Saddles.
        “I’m so Tired”.

        ***oh crap!! I see the obnoxious spammers have made us all subject to the darn math questions again!! oh man, *&^%$ you, spammers!

        Reply
        1. 19.2.1.1

          Gluten Dude

          Yeah…forced to bring the math back in. &^%$ spammers!!

          Reply
        2. 19.2.1.2

          Gluten FreeK

          Aha, Madeline Kahn; the only thing to get my mind off this crazy Today Show piece.

          Madeline’s famous selection scene from “History of the World: Part 1” could be used to describe the media bites that go out about Celiac Disease:

          “No, no, no, no, no, no, YES.”

          Reply
          1. 19.2.1.2.1

            IrishHeart

            hahahahahahahahahaha
            oh Freeky Girl, we do share the same twisty sense of humor.
            xx

            ok, this will be us the day someone at the Today Show actually takes the time to report truthfully about Celiac/NCGI

            http://www.youtube.com/watch?v=4t4TC6h9bpo

            Reply
  20. 20

    E.J.

    I started to watch it, but had to stop the video. I’m in too bad a mood already. This came on the same day I received a *24-page* glossy ad in the mail, addressed personally to me, urging me to buy the new “Lose the Wheat, Lose the Weight! Cookbook.” “Discover how to lose up to 10 pounds in 14 days!” Learn how to cook without gluten, and the pounds will melt away. (If I find out who sold them my name and address, that’ll be one subscription dropped fast.)

    “Celiac” [ciliac!] is coming to mean “fad diet follower.” You know, someone who can only eat a little bit of gluten. (We have a bagel restaurant here that advertises “gluten-free” bagels for, as they put it, the “large majority of our customers (who) are only mildly allergic or not eating gluten for other health reasons.”) It’s just a “gluten-free lifestyle” (a term I loathe).

    Sorry… I’m ranting. This stuff makes me so angry, and I’m so sick of it. And it’s only getting worse. This South Beach/Wheat Belly Media monster blitz is the worst yet. It’s going to get a lot worse thanks to shysters like this and the brainless media that give them a platform.

    Reply
    1. 20.1

      Gluten Dude

      Never apologize for ranting on this site…

      Reply
  21. 21

    IrishHeart

    In my humble opinion this is not promoting “awareness” in a good way at all (except for maybe Darlena’s parents recognizing it as “real”) Then again, other AI diseases such as AIDS were once misunderstood and misinformation was constantly relayed to the public in the media until they “got it right”. (Some dopes still have misconceptions about it, but that’s their problem.)

    People are already equating celiac with” weight loss fad”.
    Yup, my 90 lbs. and malabsorption and slow death for 3 years was exactly how I wanted to lose that weight. whoohoo! (insert that emoticon guy who does the dramatic eye roll here)

    In conversation with someone recently, she asked how I was doing and finished with “you are trying that gluten free diet thing, right?”

    Trying it? (I wouldn’t mind, but she knows I have Celiac and she knows the hell I went through) I said “NO, I live it. I have to follow it or die”.

    THEN she told me almost everyone in her office is doing it, but it’s “so hard” and they “get pizza on Friday to reward themselves”
    Yup, they all read Wheat Belly and other books on the evils of wheat and gluten and that was what sold them on it..

    So, they follow their “practically gluten free” diet.
    sigh
    (I am sighing a lot this week…………)

    Reply
    1. 21.1

      Alysa (InspiredRD)

      Ugh, I hate it when people find out I have celiac disease and say “Oh I tried to go gluten-free for a while but JUST COULDN’T DO IT”. What am I supposed to say to that?

      Reply
      1. 21.1.1

        Lima Bean

        How about- “You could if your life depended on it” ?

        I tried to find this video on the Today Show website and couldn’t. Wanted to see the comments.

        Reply
      2. 21.1.2

        IrishHeart

        Alysa,
        I am sure others have their own retort to this type of comment, but I usually say something like”Well, hon , that’s because it’s optional for you. It’s a medical necessity for me. And I HAVE TO DO IT to stay alive.!” Then, I wink.and smile at them.

        If they say “But it’s awful, there’s nothing to eat!!!” (I do not get that part at all, truth be told, but I think what they really mean is…nothing FAST and convenient to eat ) so I say:

        ” It’s no big deal –because I am a helluva cook. I mean, really…do I look deprived?” :)

        I know you can’t see me, but I don’t… LOL

        For most people, “trying a diet” because they want to lose weight is easily discarded when they find it becomes difficult. But we celiacs take the time to learn to make GF desserts, breads, pastas, etc. to expand our existing recipes. I think “gluten free” has a bad connotation. When I make dinner and dessert for people, they realize GF doesn’t necessarily mean “sucky and tasteless”. It just means darn good food.

        Reply
  22. 22

    Keratee

    Its amazing how as a celiac you have to keep defending you disease!! It’s good that there’s awareness but not when the information is incorrect. It still bugs me that they make it seem like its so easy to go on this diet and everything will be fine.

    Why don’t they talk about all the hidden sources of gluten?! Or what about cross contamination!?! Or how sometimes the symptoms seem like they not going away?! Or when you have to fend off the flu every other week and you so exhausted and can’t get out of bed?!

    Any one can write a book but surely you have a responsibility to the public. I guess that’s where your own personal perspective has to step in. Glad you guys brought attention to this and I hope people don’t blindly believe everything they say about the “gluten-free fad” diet.

    Reply
    1. 22.1

      Gluten Dude

      “Why don’t they talk about all the hidden sources of gluten?! Or what about cross contamination!?! ”

      Simple…because 1) it’s a lot more sexy to talk about which celebs are gluten free; and 2) that won’t help sell his book.

      Reply
  23. 23

    Allison Riley

    Maybe your comments have made an impact….this doctor was just on my locat Fox affiliate this morning. He stated that the 1% of folks who have Celiac disease (like my son) can’t have ANY gluten in their diet. The news anchor seemed to be very informed and asked him to clarify that it wasn’t just bread or pasta but that you actually have to dissect the ingredients to determine if the food contain gluten. So yes…I agree…he’s trying to sell a book. But his comments this morning seemed to be accurate….at least with the guidance of the wonderful news anchor at Fox8 in Greensboro, NC! :)

    Reply
  24. 24

    Katie

    This is why the only “Doctor” I watch on TV is Doctor Who.

    Reply
    1. 24.1

      IrishHeart

      like button like button like button :)

      Reply
  25. 25

    Connie

    This is depressing. Obviously Dr. Agatson “wrote” a book before he chose to educate himself about what celiac disease is and what gluten intolerance is.

    And further…ew…Today Show? Really? Can they get any more stupid? Who watches that anymore? I think they’ve offended just about everybody. I’ve gotten my comments on air before and its obvious that they just don’t think about their actions – they just broadcast whatever’s in front of them.

    Reply
    1. 25.1

      Gluten Dude

      I thought the best part was when Savannah even pronounced it “ciliac”. It was a taped part of the segment and she couldn’t even get the pronunciation down? Classic.

      Reply
  26. 26

    Louise

    I’m so glad you called them out on this and I knew you would! I was watching this segment and it made me sick! Nothing but profiteers here! It’s a crime! How do they keep getting away with all this misinformation????

    Reply
    1. 26.1

      Gluten Dude

      If we continue to raise enough of a stink, perhaps one day it will cease. Hey…a Dude can dream, can’t he??

      Reply
  27. 27

    Lora @ Crazy Running Girl

    WOW what happened to responsible journalism… this is RIDICULOUS. But honestly, I hate the TODAY Show and this is just one example why. All they care is about sensationalizing and not reporting the real news. Dr. Oz is just as awful.

    Reply
  28. 28

    Kim Jorgensen Gane

    To be fair (and in hopes that the book is better than this particular *interview*), the doctor spoke very little. The two women were too busy trying to talk over him the whole time, and it was clearly rushed. It was an inappropriately short segment to address an issue that is far deeper than can be addressed in sound bites. This was the exact same situation with the CBS Jennifer Esposito situation. They ram ahead, not really hearing what the other person has to say, because they do what they do because they like to hear themselves talk. In addition, they have VERY little time to prepare a LOT of material–they gloss over, get Cliff Notes, whatever. They can’t possibly read all they need to read in detail to prepare properly for something so serious. It’s irresponsible that they continue to make attempts to address celiac disease and non-celiac gluten sensitivity in bits and pieces.

    Reply
    1. 28.1

      Gluten Dude

      “They ram ahead, not really hearing what the other person has to say, because they do what they do because they like to hear themselves talk.”

      You just summed up today’s media in one sentence :)

      Reply
      1. 28.1.1

        IrishHeart

        also, the members of congress, the senate, and the medical profession at large. :)

        Reply
  29. 29

    Alaine

    This is ridiculous! You think after awhile they could get it right. Like a nut allergy?? Are you kidding me? That’s terrible.

    Reply
  30. 30

    Gluten FreeK

    Just watched the video. Best part about the whole thing? The cut away of your horrified eyes at the end!

    Bwahahaha!

    Raising awareness one lifted eyebrow at at time!

    Reply
  31. 31

    Celeste

    Hadn’t seen or heard about this – how does ciliac get by so many proofreaders? I found myself getting angry while watching such a misinformed segment, so your advice from yoga class really came in handy! Loved the ending, too!

    Reply
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