$100,000 Lawsuit for Getting Glutened? C’mon!

sued for serving gluten

There is a Twitter account called Endless Screaming. Every time he or she tweets, it’s simply:


That’s exactly my reaction to a fellow celiac suing a Las Vegas restaurant $100,000 for causing “permanent injury” after getting glutened. I’ll say it again:


Here’s the article. And here’s the Gluten Dude breakdown.

A Los Angeles artist visiting Grand Canyon suffered a “permanent” injury after consuming French onion soup at the El Tovar Hotel restaurant that a chef said was gluten-free, a new lawsuit claims.

C’mon…we’ve all been glutened. Here’s my story when it happened to me. But a permanent injury??

[Name redacted] is suing Grand Canyon’s concessionaire, Xanterra, for more than $100,000 following the 2016 incident, according to the suit filed last month.

[Looking up Xanterra]. Ah…now the picture is a bit clearer. It’s a huge company with I’m sure very deep pockets.

[Name redacted] has celiac disease, and is “extremely careful” not to eat anything with gluten. The autoimmune condition causes problems in the small intestine when gluten, a molecule in wheat products, is consumed.

Can the press ever get things right? It’s not just wheat. Argh.

[Name redacted] questioned the waitress several times to confirm that the French soup on the menu could be prepared gluten-free, the suit says. “The waitress reassured Todd that the soup could be prepared gluten-free by removing the crouton.” She added that part of the kitchen was reserved for preparing foods for people with food allergies like celiac disease.

Personally, I never order items that are naturally prepared with gluten and then ask the chef to “remove” it. Too risky. And celiac disease is not a food allergy. Double argh.

“[Name redacted] asked the waitress to confirm with the chef that there was no gluten in the base of the soup,” and the chef did confirm it, the suit says. [Name redacted] then ordered a duck entree with rice and vegetables.

Now I’m confused. Did he make sure the duck was gluten-free?

An hour or two later, [Name redacted] felt ill: “His symptoms intensified into waves of nausea, radiating abdominal pain, a migraine headache, vomiting, and then diarrhea. It was later determined that the restaurant served Todd food that contained gluten.”

Like I said…we’ve all been there. It truly suuuuuuuucks. At this point, I feel for the guy and get his frustration. But here is where he loses me:

The suit goes on to say that “[Name redacted] suffered severe and permanent personal injuries” from the experience, and “will continue to suffer, for an indefinite time, great pain, suffering, significant discomfort, and a loss of quality of life.” He’ll need to pay for medical expenses for the rest of life because of that meal, according to the lawsuit.

This. Is. Utter. Horseshit. How does he know he suffered permanent injuries? Medical expenses for the rest of his life? From getting glutened once??

Look…can having celiac disease cause life-long issues? Absolutely. But blaming it on ONE meal and suing for a hundred grand is total nonsense and it gives the community a bad name. It reminds me of the woman who sued P.F. Changs because they charge more for a gluten-free meal. Seriously. Charging an extra dollar to put practices in place that will keep a celiac safe? Sign me up.

Yes…if a restaurant claims something is gluten-free, it should indeed be gluten-free. But I’ve said it before and I’ll say it again: We take a risk every time we eat out unless the establishment is 100% gluten-free. You ever work in a busy kitchen? It’s mayhem back there and mistakes can happen. Filing a lawsuit is NOT the answer.

Call the restaurant. Explain what happened. Ask to have the meal comped. Reiterate how serious celiac disease is. Open up a conversation. But unless there was malice involved (a chef intentionally lying about a gluten-free meal, which has happened), let’s not get the lawyers involved. Nobody wins.

Your two cents?

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50 thoughts on “$100,000 Lawsuit for Getting Glutened? C’mon!”

  1. I had a similar situation at work. I used to have a client who had Dementia and I needed to encourage her to eat her meals (often in a busy dining room that had a restaurant like atmosphere). I ate with her, so my food came from the same Kitchen. Did Servers make mistakes and bring me
    the wrong food? Yes. Did I risk cross contamination? You know it. Did I sue the Server for his mistake?! NO. I didn’t have to pay for the food, so I didn’t make a big fuss about the mistake. I just ate the peas that came with the food and put the plate at the edge of the table to let the Server know that I was finished with the food. Besides, I listened to other residents bitch and complain about the food and I wanted to cut the Server some slack. He wasn’t familiar with my dietary needs and he works in more sections than just the one my client frequented. And I now work for the Retirement home where this client used to live and I interact more frequently with the Server who mucked up my order. He’s becoming an older brother figure (when I first started working there, I took a lot of my cues from this person on what I need to do when working in the Dining Room). We have an inside joke about how he’ll need to come back and help me clean up a “code brown”/hazardous spill (diarrhea) if I eat something from the steam table that contains gluten.

  2. I agree and If he wins (which I think and hope is highly unlikely) this type of action could make restaurants who do try hard to accommodate those of us with celiac back away from us in fear of retaliation in the event of a mistake. Mistakes do happen but it’s on us just as much as the restaurant when we take the risk of eating out in a place where cross-contamination is possible.

    1. I fully disagree with your ‘take’ on how this will impact people. By holding businesses accountable by lawsuits being brought against these companies advertising ‘gluten free’ just to make more money, will make more companies pay fuller attention.
      I personally had a favorite restaurant where they ended up making EVERYTHING gluten-free. They did not advertise they used no gluten in the foods and everyone loved the food.
      As a fellow person suffering from severe gluten issues I too would sue any company taking my money for their ‘gluten-free’ products which then proceeded to make me ill.
      Guessing that no permanent damage has occurred and declining a lawsuit is ridiculous. It night take years for the damage caused to show up which at that point you could no longer sue the responsible party.
      Some people with gluten ‘allergies’ experience Gluten ataxia whereby the cerebellum (the brain) is attacked. Recent studies show that people which experience Gluten ataxia will at some point have the impairment caused by this become permanent.
      I certainly do not wish to risk my long-term health on the desire to have more places to eat at!

  3. I agree, this is Horseshit. It gives us a bad rap and puts us in the Gwyneth Paltrow category of frivolity. I hope the restaurant countersues for defamation.

  4. Yeah, no. He has CD, he’s destined to always have medical bills for related issues. The only thing we don’t know is whether or not he had a pre-existing OTHER condition (maybe a problem with his intestines or esophagus) that was exacerbated by the glutening. Did he literally bust a gut? It’s gonna be really hard to prove permanent damage from one meal. I’m surprised he found a lawyer.

  5. when eating out, you are only as safe as the least educated person that works there…. its great if your waiter gets your issue, even the chef, but it only takes ONE person to use a bread knife to cut the chicken for your salad, or use the same cutting board, or accidentally put croutons on your salad, then remember, and remove them which still leaves your salad tainted. I don’t eat out much anymore because most of the time its not worth it – i’d rather eat ahead of time, and go enjoy the company and a nice drink (and hide snacks in my purse). Even at a restaurant I know and trust, if a new person ends up handling my food in any stage from prep to presentation… and most people don’t understand anything other then “wheat” when they hear gluten. I carry the restaurant cards with me, have the waiter go and ask the chef to read the card and tell me what the safest thing to order is… i don’t have them try to fix something that has gluten in it. sheesh…

    1. It’s why I would never eat at a fast food joint. You got kids back there who don’t really care. Believe me…I used to be one of them. Not about food issues, but the work in general.

      1. Out here in the west, fast food outfit In-n-Out Burger seems to do gluten free correctly. They have a protocol they follow. You can see the preparation from the counter if you go inside.

        They also have fries that are GF, because the oil is used only for french fries.

  6. I totally agree. It won’t cause permanent damage, and in what universe would a doc treat him for this forever??? And it happened in 2016? Really?? It WILL cause permanent damage to our celiac world. Thanks, Jerk. Hope you lose big time!

  7. I think it is ridiculous! I have been a Celiac for 22 years, before it became a fad diet and expensive GF food, I was given a Bun at a chain in the twin cities they assured me was GF. It was not and yes I was pretty upset but it taught me not to trust restaurants with my disease, it’s my issue, I was very upset the restaurant avoided my phone call and emails and never tried to even apologize! 1 Bun took about 4 months to exit my system but I moved on! The people going on a fad diet who don’t have Celiac have made places hate us going into restaurants. Anyway, I hope he does not win.

      1. I wish we would stop blaming other people’s dietary choices. What someone else chooses to eat or not eat is no one else’s business. We of all people should be respectful of other people’s dietary restrictions. As long as they’re not instructing the chef to wear gloves and take all kinds of extreme precautions and then ordering cake, it’s people who work in food service who have the responsibility to be educated on safe food handling, and the responsibility of the customer to explain what’s needed or choose restaurants where there’s understanding. Should someone not be allowed to ask for a vegetarian meal if they’re not deathly allergic to beef? No one should have to defend their food choices. Tell your server that you have Celiac and explain what you need and stop blaming other people who are just trying to eat much like you are.

  8. Ok so no I don’t think law suits are the answer! But after my daughter was in a major hospital under a specialist in celiac, on a GI floor, gets wheat roll on her gluten free tray! She missed two years of school and left the hospital in a wheelchair. Something has to be done to tell the public that this is a serious disease. The hospital admitted there mistake and I had to pay the hospital bill along with two years of watching my daughter suffer. So what is the answer?

    1. Wow….that is awful…real sorry Dale. The answer is we stop putting 99% of the focus on the damn food and put it on the disease.

  9. Hey Dude — Looks like you & yours are enjoying NYC !!!
    I can’t ever listen to The Boss without wondering how you, Mrs Dude & the girls are doing in Life. Glad to read you’re still laboring in the gluten-filled trenches.

    35 yrs of lawyering for me in May & it’s getting crazier & crazier every month. The referenced lawsuit is bogus. The “severe and permanent personal injuries” from which “will continue to suffer, for an indefinite time, great pain, suffering, significant discomfort, and a loss of quality of life” is just required “lawyer language” to not get his lawsuit dismissed before he gets started. I doubt the lawyer expects to win & is probably angling for a quick nuisance settlement, which only adds to the bogusness of the whole mess. I agree wholeheartedly it hurts our CD cause.

    I hardly ever “eat out” anymore because almost always get CC glutened from busy kitchens even with my best chefs who really care. I enjoy feeling much better, getting stronger & my heath finally returning after this past 9 year nightmare so that the former enjoyment from “eating out” is cancelled out & just not worth the risk of getting sick.

    I’ve got such a good food & exercise routine going and staying well from absolutely no gluten that Life is getting good again.

    Hope all continues to go well for you & your Clan !
    Hold Fort & continue fighting the good fight as you deem appropriate. Please give my regards to Jen too.



  10. That is nuts. Looking for a way to cash in on the “deep pockets”, but making a terrible mark for the rest of us who take more responsibility for ourselves. I agree with you… life threatening form a glutening?! Permanent?! This is like blaming the restaurant for him contracting Celiac. It’s hard enough for us to eat out and this kind of thing will make it worse not better.

  11. Eating out is totally on us. We are always taking a risk. I don’t usually take it anymore and you can tell within seconds if they know or have no education about your needs. I do wish restaurants would just be honest and say we cannot safely feed you if you do ask. I have been told that and I am totally cool with it 😉 I actually asked for a bowl with rice and chicken today and was told the chef won’t serve it because it’s not flavorful bahahah that’s a new one!!! I guess I won’t eat because of your high standards of flavor. 😉

  12. Sounds to me like he was looking for a free meal and a huge payout; also, what if he’s GRAIN intolerant? The last time I ate rice I had the exact same reaction as if I had eaten a whole wheat sandwich! As a matter of fact it was so bad that I ended up in the chronic pain ward of the hospital where I had to undergo a CT Scan, turned out my colon was inflamed and I was not digesting the rice at all! Haven’t touched it since and have not had any abdominal pain either and that was almost 3 years ago.

  13. My daughter got glutened at a restaurant that gave her a regular bun instead of the gluten free bun she requested. She has eaten there a lot with no problems, but someone messed up the order. She was in a conversation with a friend and wasn’t paying attention ND didn’t confirm that it was gluten free. She ate about half the burger and didn’t realize what had happened until she started throwing up. All night and the next day. And she was 8 months pregnant at the time. She called the restaurant and they apologized, didn’t offer to comp the meal, and that was that. But she won’t be suing them. She felt terrible for several days, and that was a LOT of gluten, but it was a mistake, and you take a chance anytime you eat out. She is fine and the baby is fine, thank goodness.

  14. Well, that is certainly one sharp lawyer and one malignant customer. Everybody loses: celiac, restaurant and the guy is attracting some very bad karma. Sad to be like that, hey?!!

  15. Dave W. Duhring

    Sheesh! I’d NEVER order a French Onion Soup in any dining establishment unless the place was 100% GF. FOS is 99% of the time made with a roux of wheat flour & butter. Sounds like a newby who hasn’t learnt the hard lessons yet. The only possible reason for “severe and permanent personal injuries” is if he was subsequently diagnosed as refractory via biopsy proceeding the event… but even that is a long shot.

    The article you’ve linked to @ The Phoenix New Times says the incident took place on Dec. 27 2016. Here is the archived menu from The El Tovar from Jan 10 2017 (14 days later)
    https://web.archive.org/web/20170110181150/http://www.grandcanyonlodges.com/assets/16-ET-Dinner.spring.final_.upt_.pdf There is nothing indicated as “Gluten Free” – assuming the online menu was the same as that presented to diners in the restaurant (which is often not the case) which lists the French Onion soup & the “duck entree with rice and vegetables”

    Their current menu
    https://www.grandcanyonlodges.com/content/uploads/2013/07/ET-Dinner-Spring-2019-1.pdf indicates 10 GF dishes out of 23 total with none of the GF marked dishes containing any of the usual mistakes that would make me not even consider dining there..like couscous, spelt, freekeh, semolina, malt vinegar etc in GF marked dishes.
    My only question would be whether the tortillas are fried in a shared fryer. In fact all they need is a “proper” GF beer in the Beverages list and I’d probably make the decision to “consider” dining there 🙂

    From 2016 to 2019 it looks like progress to me at The El Tovar

    1. Gluten Free in a restaurant is an impossibility. They only say “gluten free” to encourage you to eat their food. Oh, and pay for it. If you suffer from celiac’s don’t eat out! Sorry. It took 7 years of DH rash to wake me up to that unfortunate truth. That, and it is expensive to cook GF at home as well. It helps to have a spouse who’s a really great cook. Left alone I would surely starve before long.

  16. I totally agree with you! Even eating at home has an element of risk – forgetting to check a label and the ingredients changed. Whenever I’m contaminated, I know far sooner than 2 hours!

  17. Sitting here shaking my head at the vagaries and various opinions . Thought I had seen it all but this one takes the (gf) cake… it does strike me as a nuisance claim and rightfully so. How much better it would have been had this been handled differently – training of the staff (plus ongoing training), explanation of the extent to which some people with CD can and do suffer from even accidental incidents that happen at home , let alone in restaurants. We need to accept the fact that there is no 100% gf anywhere- even in our homes, 1/70000th of a speck of gluten (20ppm) should not hurt anyone. A wheat roll placed on a gf meal- YES, croutons on a salad? YES- using the same knife that sliced a fried chicken sandwich? YES! I truly believe it is up to the customer to carefully (and quietly) explain their needs, then double check when the meal comes out . I love places that use a different shaped plate, a flag on the meal, a manager who brings it out. Would all restaurants adopt this policy, I believe fewer people would get sick . Education and training is the key and the answer. By the way, I’ve been preparing Julia Child’s recipe for FOS for 50 years or more and have never used a roux of any kind to prepare it. Not needed, not necessary.

  18. I hope you don’t expect everyone to agree with you on everything because this time I disagree with you. I think they asked for too little. And it’s lawsuits like this that finally make a change in society. I think it’s more important than whether or not your coffee is too hot when you are served it. It also is permanent damage, without dispute. Every time you or I are glutened, it affect more than our villi. I’m surprised to hear you deny it. After all, you’re the one who wrote about the blood clots and talked about liver damage when you told us about “Chew On This” (sorry it didn’t workout, would’ve been nice). What’s the price on losing a week of your life? Because if I’m glutened, I stay in bed and housebound for a week. How do you put a price on that? Why isn’t it punished by fines when a restaurant makes that mistake? And have you looked at wholesalers for restaurant supplies? How do you verify that those things are gluten free, even if they say they are? This is classic dilution of responsibility as practiced by every corporation that wants to run a number on customers. The wholesalers give the restaurant cover to lie to you. A lawsuit just might have an effect. Even if only to remove those fake gluten free claims on menus. I would rather know that I can’t eat safely somewhere. I’d rather be told, “No, we don’t accommodate gluten free at this restaurant, sorry about that.”

    1. Hey Angelica. I never have an expectation of people agreeing with me. I’ll all for hearing all sides (even though I’m always right…yes…Kidding).

      I’m not disagreeing with anything you said, with two points. 1) My understanding is the villi do heal. If you constantly get glutened, then yeah…real damage for sure. 2) I also think the restaurants MUST know what their doing if they offer gluten free. I just don’t think a lawsuit is the answer..but I’m open to suggestions.

      1. Let me just theorize, since they didn’t identify the nature of the permanent damage. If the gluten exposure finally killed off the plaintiff’s islet cells in the pancreas and they’re now Type 1 Diabetic as a result, yeah, permanent. If, like me, blood clots can be triggered by a gluten exposure, it could lead to obvious cardiovascular problems or a stroke, which might be chalked up to “age related” if the Celiac is an elder. If the person has gluten ataxia and as a result of the exposure, some permanent injury occurred. If someone has gluten related mental health issues and they hurt themselves or someone else before they realize what’s happening and mitigate the risk, that’s permanent. If the exposure destroyed the function of the thyroid so that the person now has to take thyroid meds indefinitely, that’s permanent. I’m not even including the possibility that someone might be continually exposed (as they might in a developing country), but there are plenty of permanent effects from that. We usually only see thyroid or liver damage, beyond the villi, in the US.

        If if if… Celiac disease is much more than villi damage. Reductive definitions of it are as useful as assuming that blurry vision or poor leg circulation are not related to Diabetes. You’ve made this point yourself, so I’m not arguing with you so much as reminding you. It’s one of the reasons I like your blog, you’ve shown a lot of introspection that’s helpful when a person’s body is freaking out and there’s no obvious reason why, and you’ve helped show that there are some weird effects from gluten (ataxia, clots articles).

        I’d rather this lawsuit did some good. I don’t want someone to get hurt as badly as I’ve described before action is taken. At the moment we’re not doing any good by just avoiding restaurants or dealing with the stress of praying we’ll be ok after the stress of quizzing the server and chef and anybody else we can get a hold of.

        I know that hopes are like unicorns, they rarely materialize, but I do hope that we will see a moratorium on not really gluten free menus after this. That would be a positive outcome.

  19. they-told-me-I-was-fine

    I wince at the backlash of bullying this inspires. Both to the guy suing and everybody else with celiac. I figure in the bullies as a constant though. If we bully to try to avoid being bullied then the bully network is in full swing. I would not sue. I don’t eat out and if I do meet someone somewhere, I bring my own food and order some bottled soda water so I’m at least paying for something while I’m there and I leave a tip.

    I think eating out as a celiac puts an inappropriate pressure on servers and establishments. Food sharing and buying etc. should be a fun time. For me getting glutened takes me about 4 weeks until things feel good and I’m back on my game. That’s too high a consequence for me and the server is bound to feel my angst so I just avoid it. So I open my backpack in smug delight. I haven’t had an issue with a place telling me I couldn’t eat my own food at their establishment. There’s also options of a non-celiac friend ordering out and then taking the chow to a park etc. I have a friend with other food problems and we can’t even share hardly anything prepared!

    That’s my two cents.

  20. We don’t go out much anymore because it’s not worth the risk.

    Tried Pei Wei 3 times because it’s owned by the P.F. Chang’s folks – got glutened once, they messed up my order once, and once was fine. Two different Pei Wei’s, by the way.

    One out of three isn’t good enough odds. Won’t even go back to the one who didn’t gluten me because they are the ones who messed up the order the next time we ate there.

    Eating out is always risky and the risk is on us.

    No one is forcing us to go out to eat. Going out isn’t a “right.” It’s a shared kitchen, no matter how you slice it. It’s no different from products that say made in the same facility. Most of the time, that gluten free meal is made in the same facility as other diners’ meals. That’s just the way it is.

  21. Olive garden was one of the first restaurants with GF options. The salad is great and the pasta is prepared separately. It they are not perfect. I got glutened and spent a few hours in a McDonald’s bathroom. Sorry, Ronald!

    OG apologized, and comped a meal plus a discount card. But it was still a couple of years before I returned. That time I made our waiter sit down and listen. I explained my condition and made him understand I was depending on him. No screw ups this time. I had a great meal he got a nice tip.

    You have to make sure your server understands.

  22. I was just at the Grand Canyon… and there was no way I would have eaten any of their cooked “gluten free” foods! I know this was three years ago when the “incident” happened, but when I was there last week, they had a little paper menu of all the gluten free choices, and a few pre-packaged foods. I ended up just getting chips that were certified gluten free and a canned seltzer. I saw how busy they were, there was no way I would have trusted them to prepare food safely even though they . This lawsuit is ridiculous, if they knew they were that sensitive they should have taken the proper precautions, which here means not just asking the right questions but also evaluating the situation and making a judgment call. They made the choice to take the risk, plain and simple. I do agree that change needs to happen, if something is said to be gluten free it SHOULD be safe, but suing the restaurant seems extreme.

  23. they-told-me-I-was-fine

    I really appreciate being able to let off some steam. This blog is the first I’ve written about celiac related issues. It’s definitely a powder keg of feelings. I still have a couple more cents about this issue.

    Perhaps the guy’s lawyer will sniff around and come across all these comments and see that they may not have a strong case. The guy wouldn’t want me on his jury and yet I empathize with him very much, but I wish he would reconsider. There’s so much hurt having a recognized ailment that goes undiagnosed and unsuspected by the healthcare community and our culture at large. When someone is suffering they are often suspected of just being lazy or trying ‘get away’ with doing nothing with their life and they are an easy target of bullying. I’m currently healing from both celiac and bullying from everything from p.e. class to trying to do an exclusion diet in college and a housemate trying to prevent me from doing so and laying into over my appearance and diet and encouraging teasing at my expense (my first adult nervous breakdown).

    I believe the real fault lies with our dysfunctional health care community with regards to diet issues (I’ll leave my other reservations out for hope of a clearer message). They can practically sew on a new eye ball anymore and yet they can’t seem to tackle celiac. With the billions and billions of dollars of profit made and also spent on advertising of pharmaceuticals it seems to me that it would be a fairly simple affair for the health care industry to make public service announcements concerning celiac. The ball of public awareness of celiac is clearly in the court of the health care community from my point of view. Although I would want them to put out public awareness ads, I think it would be best for them to connect with the celiac community first. My point is that they are not an organization that reaches out. I certainly do not feel that I was reached since I was in and out of doctors offices since I was a small child and into my adult life before it was finally discovered when I was 45. An elderly person I know was diagnosed a couple years ago in her 70’s.

    The claim of their service in their title. Health Care Provider. In my view they are sorely lacking in this claim. And just one more note. People healing from celiac aren’t recovering health. They’re establishing health and not just gut health but social health and overall health. Hopefully the celiac community can lead the way.

  24. ay yo i just got glutened and its kinda fucked ay. waited a day to see if i have any gluten reactions and my joints are hurting like hell trying to go to sleep, this is the only way i know i have eaten gluten and i can say that its an actual large amount of pain and that i think this guy isnt in the wrong im not a severe ceiac but i ate a whole pizza with wheat base and thats not cool by any means i feel like i could sue and i should sue but you being a bitch ass is making me think maybe you shouldnt claim celiac so hardcore and just deal with it because you dont have actual longterm symptoms doesnt mean other people dont. (my grandma has had 173 joint replaced from celiacs disease-rumitoid arthritus) yes i am pissed and yes i should sue. if a company thinks they can just give me wheat who knows how many people have eaten it unknowingly.

    1. Google DHNFCD, get in touch with me, I am all about a class action lawsuit.
      There is NOTHING right or acceptable about the ignorance in healthcare forced on a Celiac in these United States.
      1. Federally, the religious supreme court will continue the abuse based on Catholic Doctrine. Not an option.
      2. I live in Washington, if any State Supreme court would provide relief for this ignorance and psychological torture passed off as care, it will be these folks.
      3. The more inclusive and broad the health conditions involved, it will be the volume of lives threatened by this ignorance that will guarantee success.
      4. One person fights ignorance? All dead. Two people? That would be my son and I, WE ARE NOT DEAD YET. Still fighting.
      5. Have you found a single Celiac charity that has any value or do they just hound you for cash? That’s all they ever give us. Neurofibromatosis folks are the same. All they want is our cash, as if it’s not expensive enough living, then non-celiacs keep scamming us, claiming they are helping. The gas-lighting just does not stop.

  25. Google DHNFCD.
    Hey Gluten Dude, it’s me again, I’m not dead yet, never stopped, still fighting for healthcare for my son and I.
    Thank you for being you, doing what you do and not getting overwhelmed by it all. Celiacs aren’t idiots, there are just ignorant, fed bad data. Keep steering the ship, These fools need you.

    In Science, the identification of the limits of a reaction is defined as a baseline.
    With research, it becomes the foundation of our knowledge.
    What is the Celiac Baseline? What is the baseline for a person born with Celiac, DH and Neurofibromatosis Type 1?
    I lived through a life threatening reaction to gluten.
    Your response? That would be the sound of ignorance.
    Shayne, my adult son and I have no baseline for care because there are ZERO published case studies of DHNFCD.
    So, mere Celiacs or wanna be Celiacs: What’s your excuse? You have thousands of published cases going back to the 1880’s. Yet, you still haven’t a clue and constantly argue among yourselves.
    It’s embarrassing to identify as a Celiac in this country.
    Are you still taking prescription with gluten? Still not “getting” the diet right? Always sick?
    It is unfortunate that this one Celiac had an epiphany of what life is going to be as a Celiac and blames this one meal.
    OR? Maybe they have rare complexities or additional genetic issues that further complicate the health picture?
    Actual healthcare would be able to answer that question. He’s suing the wrong people. Insurance? Government mandated glutenous prescriptions? Oh yeah, they have all the money and power. You can’t sue them.
    Surviving is the opportunity to learn and NEVER allow it to happen again. Trust the ignorant can and will kill you.
    Now, I need to get back to locating those doctors I keep talking about, the educated ones, with experienced regarding the complications of both de novo DHNFCD and hereditary DHNFCD for my son.
    The delusion of actual healthcare is what keeps me going.

  26. My daughter is a celiac and attending a college program in deep East Texas. She has 3 classes to complete in one month. Continuing in the fall hinges on her doing well. We were staying in the area and took her to dinner the night before classes. Our choices on the 4th of July and our location were EXTREMELY limited. We ended up at Olive Garden. She ordered gluten free rotini. Upon arrival at the restaurant, we asked for gluten free menu, the manager came to the table and showed us where to locate the information. When the food came out it was rigatoni. I asked the service, is this the gluten free pasta. “Yes, the rigatoni is gluten free”. She has been gluten free for 12 years. We get blood work every year which has always been great. The last time we ate at Olive Garden was in 2013, they screwed up then but we caught it based on the look of the pasta, they actually served her whole wheat pasta that t8me. She hadn’t eaten anything when we asked them to verify. The manager apologized, our meal was free, which we didn’t eat and left. This time she looked at it…..it was breaking like GF pasta….she was really hungry…..had only had a few snacks in the dorm during the day. So she ate 1/2 the plate. I AM SOOOOOO PISSED. I am an RN. Everyone with Celiac has to know that with exposure to gluten you increase your chances for many other complications…. From intestinal cancers to additional autoimmune diseases. How the F do you know when that one exposure pushes you over that cliff to a life threatening complication!!!!! I found this article while searching for a lawyer. If she’s unable to continue her college career as a result of an ignorant employee someone is going to compensate her!

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Who I am. And who I'm not.

Who I am. And who I'm not.

I AM someone who's been gluten-free since 2007 due to a diagnosis of severe celiac disease. I'm someone who can steer you in the right direction when it comes to going gluten-free. And I'm someone who will always give you the naked truth about going gluten free.

I AM NOT someone who embraces this gluten-free craziness. I didn’t find freedom, a better life or any of that other crap when I got diagnosed. With all due respect to Hunter S. Thompson, I found fear and loathing of an unknown world. But if I can share my wisdom, tell my stories and make the transition easier on you, I’ve done my job.

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