I love this rant for so many reasons. It’s got a little bit of everything. Great passion, subtle humor and a comeback for the ages. And it speaks to that one topic we face over and over again: ignorance. And in this case, how it relates to her two children who have celiac disease. We can spread the truth, but you simply can’t fix stupid.
Mom…take it away.
To us, it’s totally fine. Yeah it can suck sometimes, but it’s our normal and we own it, we handle it, and we are a happy, healthy family. If only my kids didn’t have to go to school, everything would be pretty simple and easy.
But alas, I’m shooting for “normal” childhood for them and so every day I send them off to the education factory and pray they aren’t poisoned by the copious amounts of goldfish and cheese crackers seemingly raining from the sky. Of course to protect them I’ve established 504 plans – only I’ve discovered that 504 plans are just words on paper and completely useless if people don’t read or implement them.
So to further protect them, I’m on campus for every food event or event with potential for food. Of course I come across as a overbearing paranoid mother who needs to relax, but at this point I don’t really give a shit. I’ll do anything to protect my kids. Sometimes though, sometimes…these incompetent, ignorant individuals who somehow have access to vulnerable children get the better of me and I lose my can-do momentum.
For instance, the parent who recently told me that a little bit of gluten would be okay for my daughter while I was reading and analyzing labels at record speed because I’d had NO warning there would even be food that day. How did I respond? I was speechless. I wanted to say, “Oh please, tell me more about about this incurable genetic auto-immune disease that my children have? They can have a little gluten? Whew! What a relief! I can’t believe I’ve been worrying over nothing all these years! What a God-send you are, you celiac disease expert, you!”
But my mouth instead just hung open. And my blood boiled. And my ears burned. And I hated her. I hated her so much that tears stung behind my eyes and I couldn’t breathe. I hated her for me as a mom to the best and bravest little girls in the world. I hated her for my girls who are going to face versions of her for the rest of their lives. I hated her for every single person who has this shitty disease and has had to advocate for themselves and for every parent desperate to protect their precious children from the ignorance that is the true poison of celiac disease.
I will never understand why people feel it necessary to speak as if they are an authority on a subject they actually have no clue about, especially when their ill advice can seriously harm someone. It’s truly mind-boggling. Sometimes I feel like the culprit in celiac disease isn’t gluten as much as it is ignorance. I can avoid gluten, but I can’t avoid stupid.
So what did I tell her? I took the high(ish) road – I said, “It’s like having a little bit of poop; is it okay to eat just a little bit of poop? Let’s not find out…”
Onward and upward.
Thanks Dude for letting me vent. I actually do feel better.
Need to Vent?
I hate celiac. You hate celiac. We all hate celiac. With all that pent up anger, people need a place to vent.
Well…I invite you to lie on the Dude’s couch (figuratively speaking) and spew away. There’s just one rule: Once you’re done venting, you need to move forward and put the negative vibes on the back burner.
Positive energy brings positive results.
Don’t you feel better already??