So what to make of this thing called celiac? I honestly don’t know anymore. My stomach hurts at this very moment as much as it ever has before. Why now? What did I do? How can I make it stop?
I can retrace my steps today. Nothing out of the ordinary. Kind Bar, coffee, eggs, Udi’s bagel, blah, blah, blah. The only thing “different” I ate today was a homemade fruit smoothie. What…I gotta give up fruit now too?
There is something called “refractory celiac disease”. Rather than me bore you to tears with a definition, I’ll let the Celiac Disease Center do it.
“When all other causes for failure to improve on a gluten-free diet have been excluded, refractory celiac disease (sometimes called refractory sprue) should be considered. Refractory celiac disease is defined as symptoms and small intestinal inflammation that persist after one year on a strict gluten-free diet. Some patients never respond to a gluten-free diet, others initially responded but have a recurrence of symptoms and intestinal inflammation. Refractory sprue appears to be typical of adults, especially middle-aged or elderly people, and is never encountered in the pediatric population.”
So what does this mean if I have it? In a nutshell…I’m screwed. Time to head back to the GI and have him look down my pipes. Fun times indeed.
If anybody has any advice or similar stories to share, I am all ears.