I get a decent amount of emails from fellow celiacs asking for help/advice.
If it’s medical question, I usually try to persuade them to find a GI who understands celiac disease (good luck with that one) as I’m reticent to give out any medical advice since I am not really qualified (though I did stay at a Howard Johnson’s last night.)
But sometimes I get emails asking for emotional advice.
I received two emails this week that just tore me apart. Both dealt with a recently diagnosed celiac whose family does not take the disease seriously…at all.
I provided some advice, but I also told them I would post their stories on my blog as we have an awesome community who would love to offer support and guidance (that would be you folks).
The first letter is below. It is from Mary (not her real name.) I will post the second one another day this week.
Please leave a comment and help Mary. Thanks.
I have an ongoing issue and I’m not quite sure how to handle it.
Ever since being diagnosed with Celiac disease and DH, my family has treated me horribly about my disease. It has gone as far as being called a hypochondriac; that I use it as a crutch to not see family; that I’m afraid of dying.
I go to family get togethers and every stinkin time it’s comments like “oh well, just a little wont hurt” or “maybe I’ll grow out of it” or “you can have rice and beans, can’t you?”
I have explained so many times and they just don’t get it. And to even bring up cross contamination, oh man.
The last time I tried to bring a gluten free dish, that person over-rode me and assumed gf food was nasty and had someone else bring a gluten filled dish.
I’ve tried to just enjoy being with family without the food but it just keeps comin up and I end up being called the things I had mentioned above.
I know I’m not those things they say and I’m simply looking out for my health.
So my question is “How do you cope in this type of situation when all methods to detour it fail?”
My family thinks I’m being a B****, a hypochondriac, and that I’m not livin life and shelling up; that I’m using it as a crutch.
I show up and am so fed up with the stupid comments after explaining like a broken record and having them assume what they think I am.
Please give me some advice because I really need it.