Everybody sing along….Here’s the mail, it never fails, it makes me want to wag my tail, when it comes I want to wail…MMMMAAAIIILLL!
Way too long between mailbags, so let’s just jump right into it.
Holes in my gluten free Udi’s bread so many times. Not getting my monies worth as it is so expensive. I’d say you owe me some bread. What do you think?
Gluten Dude, I’m recently divorced and looking to get back into the dating world. What are some safe places to take someone out to where we could both enjoy eating or adult liquors/beer I could have when we go out if my date isn’t gluten free? Like you, I have celiac disease and bad. She most likely doesn’t.
Pick a restaurant that is safe for you and don’t make a big deal out of it. Yeah…I’m sure it will come up in conversation after your ten-minute discussion with the waiter regarding your needs, but it is what it is. Hopefully, your date will be so riveted by your company, she won’t even notice you didn’t eat the bread. And here are some tips on dining out safely. Good luck to you.
Is JOHNNY WALKER RED GLUTEN FREE.
WHAT SCOTCHES ARE GLUTEN FREE?
Why are you screaming at me? Yes…scotches are gluten-free. The distillation process removes all gluten. See here.
I cannot tell you how many times my random google searches on the darker side of celiac disease have brought me to your site. I really appreciate that you cover all bases here and don’t just make the gluten free life all roses like so many of the other blogs out there. I’m throwing around the idea of writing a memoir on my own personal transition to a gluten free lifestyle, as I haven’t seen that much information out there for us silent celiacs. It’s a whole different mind-f*ck I tell you.
Go for it. We need some more books on the reality of celiac disease and not “go gluten-free and your life will be wonderful” books. Speaking of the dark side:
Hi, I have Celiac disease, Gluten Ataxia and other autoimmune diseases and problems related. I was wondering if u can send me pics of what celiac rash looks like.
Google is your friend. A doctor may be even a better friend. I know the rash sucks. Hope you feel better.
Only a year ago I was able to eat whatever I want and worked out all the time. Slowly, I started getting tired and sick and found out that I have celiac disease. I didn’t immediately cut gluten out and my symptoms started getting worse and worse. I started getting these electric shock feelings through my body, feeling out of it, having trouble breathing and swallowing, and having a rapid heart rate. I have now fully cut out gluten, but I am STILL getting these symptoms. Some days are worse than others. I have seen many different types of doctors and none of them know how to help me. I feel like I need to eat constantly or I will start to feel like I’m passing out and if I exercise it makes me feel weirder. Lately, my vision has been getting blurry too. I have never had a seizure before, but the feelings I get is what I imagine people feel before they have one… that could just be my fears, though. I’m gaining weight like crazy and am starting to get really depressed. I am afraid to drive and function, and I’m tired of it. I am only 17 and a half and I don’t want to live like this forever! Any advice? Ideas of what it could be? ANYTHING!!!
Breathe. And then keep breathing. It can take awhile for your symptoms to alleviate. It took me years to begin to heal. Giving up dairy helped me tremendously. I can’t offer any medical advice but don’t let your docs ignore you. And hopefully you have supportive parents. Being 17 is tough enough without the health issues. Hang in there.
I have a proven method to increase traffic and sales for http://www.glutendude.com.
Get a life you spammer. Contribute to society. Honestly…it’s a win-win.
I saw in a post that you mentioned you live in a household that is both gluten free and gluten. I was just diagnosed with celiac disease and have a 2.5 yr old and a 4 month old the gi doc told me my kids should stay on gluten so my question to you is how do you manage to be gluten free and not get cc when there are gluten eaters in your house?
Good question. Please read this.
I found you when I did a web search for Gluten Free Beers and I’ve been stuck on your site and blog since, laughing much of the time by your hilarious comments (because I can relate to all of them). Thank you!!! You are doing something different here and I SO appreciate it! I needed to find you. Reading your experience, your path, your feelings you went through during your lifestyle change helps dramatically and probably because you are someone my husband and I would be friends with.
Consider us friends. It’s an awesome community here. Cheers!
I recently found out that there are two cures for celiac, I was excited. One is helminthic therapy. You get hookworms, and they prevent the immune reaction against gluten. I’m confident in your ability to research this yourself, but check your facts, there’s a lot of misinformation out there, stay scholarly. The second cure is a shot that prevents the DLA-HQ2 gene celiacs from having a reaction. They call it a ‘vaccine’, but it seems more like ‘cure’ to me as it doesn’t have to be administered pre-celiac. I’d like your thoughts: if you could take one of these and not have to live GF anymore, would you?
Nope. Nope. Nope. My body is very clear in its instructions to me. DON’T EAT GLUTEN. I will listen to it until the day I die.
Just last week we got back from Ireland. When you go out to eat and tell them that you have Celiac disease, they are not only happy to serve you, they are educated on what Celiac disease is and the precautions that are necessary to take when preparing food. Then we came back home. Sigh. How can it be that in the “greatest country” we can’t have similar allergen laws where restaurant personnel are informed and educated on how to prepare food in ways that allow individuals with allergies and diseases to continue to live their lives as normally as possible?
I can give you a laundry list of reasons why we may not be the “greatest country” anymore. And our cynicism about celiac and eating gluten-free is certainly on the list. And the fact that Trump and Clinton are the best we can come up with? Don’t get me started.
Rapscallion Restaurant in Hamilton Ontario, they efing use the word “glutarded” on their menu, and apparently it’s not offensive because their owner, Erin, has Celiac Disease. Since when did having CD magically give me the ability to be an insensitive asshat to people with developmental disabilities, and to use the suffix “tard” like it’s some hilarious marketing?
I heard from a lot of people about this. I decided not to comment on it cause I didn’t want to give them any publicity. But I did contact them privately. They eventually removed the word from their website. But I will say this. That word is NEVER funny. Like EVER. I shouldn’t have to explain why.
Do I need to be careful about gluten being in my cleaning products? I seem to always get glutened after we have company over, what can I do?
Unless you have DH (skin reaction from gluten), no I’d say you don’t need to worry about cleaning products.
I need information about how to travel for work with Celiac disease. My question is that many jobs travel using a per diem amount to cover food, lodging, car per day. I can’t eat at the hotel free breakfast, so that’s $6 min. Then lunch isn’t fast food, so that’s an easy $15. Now add dinner and there’s no way the cost of safe meals fit into a corporate travel per diem structure. Any ideas where to get info on how other handle this scenario?
I’m beyond blessed to work for myself and work from home. Double score! Anybody out there offer some guidance??
My 2 year old daughter was diagnosed with celiac last week. I’m going through so many emotions at the moment. I’m so confused. This is so scary to me and my husband. What kind of a life will my child have? Will she always be different from her peers? How can I as her mom be her best advocate? Will a second opinion matter or should I believe in her first doctor?
Let me answer your questions one by one:
What kind of a life will my child have? A normal one, with a few adjustments. Since she is so young, her celiac will be her norm.
Will she always be different from her peers? That’s up to you. Do not let celiac define her. Or her celiac define you. It’s a disease, like any other disease and the treatment just happens to be food.
How can I as her mom be her best advocate? Being a great mom means you will be a great advocate. It goes hand in hand.
Will a second opinion matter or should I believe in her first doctor? If she was confirmed via a blood test AND an endoscopy, she’s got celiac. Now educate yourself on the disease and focus on the treatment. You will all be fine…promise.
About 4 months ago, I suddenly started having GI problems. My doctor recommended tranquilizers. I ignored her but stopped eating gluten as a test and my problems are gone. Visited a dietitian today who said I could probably have a little bit of gluten in my diet as long as it’s not causing GI symptoms. But if I am celiac, then all gluten (in however small amounts) is bad, right? Should I try to convince my doctor to let me get tested?
Tranquilizers?? Unreal. Get tested…please. But you must be eating gluten for the test to be accurate. Good luck.
I have Celiac disease. When I was first diagnosed in 2008 I was angry. Really, really angry. I didn’t think I’d ever eat again and life as I knew it was over. There were many tears and gnashing of teeth. I was sure I’d die of starvation. Drama ensued. Drama drama drama! Fast forward to today, 2016, eight years later. I never think about the fact that I have Celiac disease because it’s just an everyday part of life and it’s how I do life. There is a very definite learning curve and the difference between being bitterly disappointed on a daily basis and being successful at staying healthy in this life is knowledge and attitude. Life does not end at the gluten free aisle.
^^This. A thousand times this.
I’m outta here. Stay thirsty (and gluten-free) my friends.
(Because no mailbag is complete without a little Bruce Juice. This is Prove It All Night from 1978. Absolutely epic.)