As 2012 comes to a close…I’m cleansing.
Cleansing my blog (details to come).
Cleansing my body.
Cleansing my mind.
Cleansing my soul.
And most importantly…I’m cleansing my inbox.
I have a whole lotta rants sitting in my email and haven’t had the time to get thru them all.
So why not do it in one fell swoop?
I present to you…
The Grandaddy of Celiac Rants
I made reservations for 15 people at a restaurant that lists gluten free pasta on their menu. When I questioned the owner about the pasta options, he told me that the gluten free pasta was made with durum wheat flour!
I promptly cancelled the reservation and told him that I didn’t think he understood what gluten free meant. He actually said that he most certainly did understand, and that his gluten free guests have no problem with durum wheat pasta since it is easier to digest.
To make matters worse, the other celiac in my family told me that I should have been nicer to the restaurant owner and that I should not have explained to our guests why we will not be eating there because they don’t care and explaining the situation makes me sound like a nut case! I am so tired of trying to make this work.
How do you all deal with situations like this? Should I just give up and not eat out? Should I just tell my family that I will not attend any more family dinners since they find it so inconvenient and think that I am making a big deal out of nothing? If they think that I am unreasonable anyways, why not take the lower-stress route and avoid the situation altogether?
My note to you today is about a “Trend of 2012” that I found in People Magazine…The Best and Worst of 2012. They list (on the bottom of page 22 – GLUTEN FREE – Miley Cyrus and Elizabeth Hasselbeck followed the food fad. It was listed as #5 in the 5 tastes of the town.
I have been sick for months! Not days, but months… I get a skin rash, and my skin peels off and I look like have a contagious skin disease from the Middle Ages. I get depressed. All I want to do is sleep. I just feel tired and lethargic. My stomach hurts all the time. These are things that happen to me. Yes, I have the immediate effects that last a couple days like everyone else.
So when someone wants to jump on the “FAD” of being GF to lose weight, or for whatever reason they chose, they are hurting the rest of us. I know that you addressed this with the Kim Kardashian issue, but when magazines and other publications publish this what are the rest of us to do? Those of us who want to eat out and have real problems? Those of us who see a new GF restaurant or bakery and want to try it but are so scared because it might be a scam.
My rant? Where do I start? People staying in my house that bring in yummy rolls that I can’t eat and proceed to chow down in front of me? Or finding gf pasta just too ‘difficult and tasteless’ and using my pots to cook it in? Drs treating me for pain from a Coeliac reaction with gluten medicine??? I just don’t have the heart for it ATM. I want everyone to go away and leave me alone but they are staying with me and they’re not MY family. My family all have digestive issues and like coming to stay as they eat gf and feel better for it.
My family would live by my rules in my house. Why is that so difficult? If I were Jewish would they come and eat bacon at my house?
I took my Mum to Munich last week. I lived there just after I got married, and Mum had never made it out there and we put it right last week. Staying in the same hotel were some Americans. I’m sure most of you are sane individuals; but these three women really wound me up.
They were all talking, very loudly, about the necessity of a gluten-free diet whilst tucking into Semmel and Brezen.
I now see how catering staff can attach no importance to gluten-free food. The noisiest customers in the restaurant were demanding gluten-free food whilst scoffing bread! How are chefs and waiting staff supposed to make any sense of behaviour like this? And in the meantime, how are those of us with CD/DH etc. supposed to eat out with confidence?
I’m the only member of my family and only one of my friends who is Celiac. I just hit my 10 months of being GF and I’ll be honest, I’ve hated it. I’ve had a very hard time emotionally with it all. It’s very isolating and lonely. I can adapt at home just fine but leaving my house sucks.
This past weekend was particularly sucky. I did a 5K Friday night and during the after party almost everyone was drinking a free beer. Except me. I miss beer. (Some of the GF stuff isn’t too bad but hardly any restaurants/bars carry it!) And there was 2 holiday parties where the only thing I could eat was salad and potato chips.
If it wasn’t for all you bloggers out there, I would be in even worse shape. Your site in particular has helped make me feel not so alone in how I have reacted to it all. I’m glad to know that I’m not the only one who has gotten angry about this disease.
So thank you VERY much Mr. Dude for your honesty and allowing a place for us to rant. It’s appreciated more than you know. Keep it up!!
I work in a smallish company that likes to celebrate things and nothings, generally with ‘treats’; you can see where this is going.
People will bring in muffins, croissants, cookies, breads, and cakes; none of them I can go anywhere near. They deposit their baked kindness in the communal kitchen, take their share and trail crumbs all over said communal kitchen. Not great.
I bring my lunch nearly every day (not a lot of GF options near the office) and sequester it from the gluten-doused counter, toaster, implements…
Today is the 6 year anniversary that many of us were hired, so ‘everyone’ is ordering pizza. So again, I get to spend the lunch hour watching everyone else eat, and look like I’m ‘stuck up’ or ‘finnicky’ or ‘anti-social’ or ‘cheap’ when I go back to my desk to eat my non-health destroying meal.
It’s well-known that I have celiac (I have to explain it each and every time I don’t want pizza, or muffins, etc after all), and others in my office have food preferences (preferences! not bona fide allergies!) that are accounted for.
Why are my colleagues’ heads so far up their butts?! I’m really tired of being left out. 🙁
I knew I had Celiac for a long time before I stopped eating wheat gluten on dates, at work, and among some acquaintances because I wanted to be liked and invited to events that could involve food. The abdominal paid would be so bad afterwards.
I couldn’t help but think this must be what it’s like to live as a closet gay person, afraid of rejection if I revealed that I was different.
After I began to tell people and openly avoid wheat, I became the oddball with the issue no one could remember. I would be invited to join friends for a hamburger. When I mentioned that I would have to eat mine without a bun, I would be told, “Oh that’s right, well what about pizza instead?”
That kind of thing has happened again and again.
Once people started to understand, I was told “I thought about inviting you, but there probably wouldn’t have been anything you could eat.” Or I would be told, “We were just getting together for birthday cake, and I know you can’t eat wheat.”
I went back to the doctor last week begging them to run the celiac test. I got the blood work done then and an abdominal sonogram today. I am praying that this is the answer. But even then, what does the diagnosis do? I noticed if I said to wait staff that I was on a gluten free diet, some would just roll their eyes. So I started to lie and tell people I was celiac just so that people will understand. This weekend, we went out to dinner at a steak restaurant and told the wait staff several times I was allergic to gluten and the rest of things I can’t have. My salad came out with croutons on it. I was nice and asked her for a new one and not just to take the croutons off. Then my steak came out with bread onion strips on it. I said the same thing. It is so frustrating!!! I just want to cry sometimes. I hate eating out because I can’t trust other people. Went to a Subway in a gas station one afternoon to splurge on a gluten free bread sandwich… the lady handled bread of the guy before me in line and then mine. I tried to talk to her about it and cross-contamination. She sat there and argued with me. I just walked out hungry.
I’m so tired of being hungry!!!
I’m currently in college, and my class sizes are very small (this particular class has 11 people). Everybody knows what’s going on in everybody else’s life, and Celiac has been a topic of great discussion since the professor announced a potluck to celebrate the end of semester.
I brought myself some K-Toots Cookies… the good vanilla oreo ones. Delicious but holy crap, how does a company justify charging that much for a tiny package of cookies?
Anyway, the group had cookies and cakes and nanaimo bars and 3 types of pizza, and all sorts of delicious, gluten-filled snacks. I had my cookies. I was fine with my cookies. I went to the bathroom and someone who knew full well that I can’t eat anything cross contaminated, put a huge double chocolate muffin on my plate. On top of my cookies. She tried to play it off as a mistake, but everyone knew she did it intentionally – she and I have never gotten along and she knew full well that I would be unable to eat that food.