I got an email from a fellow celiac recently. Here’s an excerpt of it.
But I feel unwell, in a way I never did before diagnosis.
I feel like Celiac has stolen a part of me away. The sheer amount of will and brain power managing this disease takes has me exhausted. Analyzing how I feel all the time wondering if the headache, or canker sore, or bad or sad mood is because of gluten. And I don’t think I can do much better; I really can’t be perfect as much as I might try. None of us can. So is this just me now?
I’m lost in the Celiac black hole and can’t find a way out.
To this person and to all others struggling with this disease, some friendly words of advice from someone whose been there:
Are you frustrated that your body has not completely healed yet?
You WILL heal.
Are you struggling with the fact that you can never eat gluten again?
You WILL come to terms with it.
Do you dread going out to eat because of fear?
You WILL enjoy nights out again.
Do you feel like your life is consumed by this disease?
You WILL learn to live with it.
Do you feel awkward at social situations that are built around food?
You WILL realize that food is not what’s important.
Are you jealous that others can eat whatever they want?
You WILL stop the defeatist attitude.
Do you just hate being a celiac?
You WILL learn to accept it.
Look…I get it. Our disease can consume us.
Don’t let it.
Do your best. Mistakes may happen. Don’t beat yourself up over them. Learn and move on.
We’ve got one life to live. Live it.
And if you are struggling, just realize that many of us have been where you are now. Rest assured…YOU WILL GET THERE.
Celiac is not a death sentence.
It’s a life sentence.