The general population just doesn’t understand celiac disease and what it can do to those inflicted.
Not that I blame them. It doesn’t get the media coverage that other diseases get and because the disease itself is food-related, many on the outside don’t take it too seriously.
But I want you to read the following email I received.
If you suffer from celiac disease, you will get it.
If you don’t, this is what the disease can do to even the best of us.
Dear Gluten Dude,
Just found your website for the first time. Thanks for telling it like it is.
I’m one of the ones that testing didn’t show Celiac, but it is clear as day that I have it.
Hit rock bottom on 1-6-2012 at 130 pounds not knowing what was happening to me. Gut sick, diarrhea, my bones and muscles hurt, and my mind was psychotic. Almost ruined my marriage.
You know, all the good stuff Celiac does.
I’m 6’1″ and a normal healthy weight for me was around 165. I turned 34 in July. I suffered for years before that date. Doctors told me I was just stressed out when I would go in for help.
Wasn’t until I saw a medical marijuana doctor that I was told about gluten. I also found out the hard way about soy, dairy, coconut, and oats. The day I ate a gluten-free oat bread sandwich was the day I learned the meaning of the word torture. I went through a 30 hour total body pain seizing episode. Literally, balled up in the fetal position twitching and convulsing with pain from head to toe.
I made it through it, but I feel like death is creeping on me.
I read an article that said for some Celiacs oats can do that and it is the same reaction as being bit by a poisonous snake. Don’t I know it.
I struggle with depression and suicidal thoughts. I believe in Christ, but there are days where I just want to die. Plain and simple.
I have been everything free for 10 months now. I still only weigh between 137 and 140. I know everybody says the first year is the worst, but now they say it could be 2 years.
I don’t know how much more of this crap I can take. I can see the bones around my eye sockets and I’m so skinny that my body has a little dip that pushes into my body right under the xiphoid process. My mind and emotions are better, but I still usually feel like kicking somebody’s ass most of the time. I call it the Celiac rampage.
Thank God for medical marijuana. It cools the gut, slows down the secretions during digestion, and stimulates appetite. Pretty cool there are CB receptors in the small intestine just waiting to receive the goodies from MMJ. Plus it chills me the frick out.
Anyway, that’s my story. If it wasn’t for my 2 kids and wife, I would have blown my head off during the 30 hour torture session.
Glad I didn’t.
I think I speak for the entire community when I say “I’m glad you didn’t too!”
Life with celiac, diagnosed or undiagnosed, gets easier with time. I promise you.
The length of the healing process varies greatly. For me, it was over two years before I began to feel remotely better, but try not to let this get you down.
Yes, there will be a number of bad days, but there will also be tons of great days and that’s where you will need to put your focus.
The world is a better place with you in it. Just ask your family.
Hang in there my friend…my thoughts are with you.
P.S. If I hear one more story about a doctor who tells their patient it’s just stress, I’m gonna lose it.