Dude note: Five emails per day for four days. Here’s part 4.
I sit crying from cross contamination again. Hershey syrup made me sick. Most my co-workers don’t get it. My husband is dairy intolerant, he doesn’t fully get it. I have celiac, hashimotos and mthfr 677/1298. I love my coffee and sugar. I tried paleo but so limited. Paleo autoimmune protocol is crazy to follow. I limit gluten free breads and processed food. I get reactions from gluten, dairy, soy, oats, peanuts and eggs. I tried leaky diets and supplements. I get depressed a lot from exhaustion and cross contam. I can’t eat out safely. Alcohol makes me sick. My job is stressful working in labor and delivery as RN. I am SOS (sick of shit). What’s a burned out girl to do. Ready just to quit my job and go live in the woods.
There are times I feel like I’d like to join you.(I’d of course have to check with Mrs. Dude first.) Our life can be draining at times. Always playing the food police and sometimes just not healing. Beyond frustrating. My only advice to you is to keep looking for the culprit. It’s out there. And perhaps consider going on the AIP Diet for a month and see how it treats you. Yeah…I know…another program…total drag. But this one really seems to heal a lot of people and it’s helped me in the past.
Hang tough. You got this.
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NOOO! And I have subscription boxes??
Ok…I’m not including the above three come-ons as part of my 5 emails. Moving on.
My Daughter, who was diagnosed at 1.5 with Celiac Disease, started kindergarten this year. So far it has been okay. I didn’t want to step on any toes about a 504. I spoke with her teacher and the school nurse about a health care plan for her to try to limit or cut out cross contamination risk in the classroom. We have run into a couple of bumps along the way like substitutes teachers not following guidelines and just general laziness. I made a list of all the steps that needed to be followed to keep her as safe as possible. I told her teacher at the beginning of the year that I was happy to provide any kind of substitution she needed whether it be food or activity wise if she just gave me ample notice.
We have had a few issues with the teacher only making the kids use germ-x or not cleaning after in class parties. I have now had to call the nurse or teacher 3 times over not following the guidelines. I have now learned that the teacher is still not making the kids wash hands after eating and today my daughter was left out of a birthday party because I was not told about it. So now I am trying to take the steps of creating a 504 with the school and not just the health care plan we have now because it doesn’t seem to be doing us any good. So my question to you is, I have been reading drafts of other peoples 504’s but I have not seen any that specify hand washing for other kids after gluten activities or eating. Is it a thing you can ask for? I don’t think it will be needed as much when she gets older but for now it seems that some kids can’t keep their hands to themselves or out of their mouths so for health and wellness reasons it seems to be a reasonable thing to ask for at such a young age.
Thanks for taking the time to read my ramblings.
Can anybody out there tackle this please?? Not my area of knowledge (among many, many other things.)
When’s your beer coming to Hawaii?
I have a beer? (Yes…these are actual emails I get.)
I was told I had CD about 3 years ago, (1st blood tests, then endoscopy 2 more times and I still was not convinced). I was and still am in denial. I have been in the bakery business my entire life and I am an addict. I mean I really can’t go one day without some sort of bread or pastry. I am also a bakery snob and only like the real thing….every single GF product (breads especially) have been really bad and not satisfying. I don’t have the energy or the will to reformulate my favorites using GF flour etc. Now I am just wondering….if I just keep eating gluten, will I for sure get cancer? I have had so many family members die from that horrible disease that it really does scare me. Do you think they will ever find a cure for CD other than just not eating the good stuff? BTW…this is the 1st time I have ever contacted anyone about this. I have a doctor appointment for an annual physical tomorrow. My list of symptoms continues to grow, but like a drug addict…I can’t stop eating it. Do you know lots of cases that have died from the disease progressing to cancer? Can you share any statistics?
Sigh. We can eat plenty of good stuff. Meat, fish, veggies, fruit, etc. And there are some companies out there making great, healthy gluten-free food. Just wait until Jennifer Esposito launches her new brand and products this Spring. To. Die. For. AND will allow us to heal.
My point? If you are seeking permission to cheat, you’re not gonna find it here. And you don’t need me to provide statistics for you.
If “good stuff” is more important than your life, there is nothing I can offer to change you thinking.
Hello…I’ve been reading your blog since being diagnosed 3 months ago, been on a strict gluten free since and just accidentally glutened myself..I feel rubbish…and scared I’m just going to be ill forever. Before having my little girl two years ago I was an aerobics instructor with lots of energy. I’m struggling with feeling like a sick person…plus nobody seems to know how it feels…they think it’s just a case of not eating bread!? I’m happy to avoid gluten but want my health back…plus what do I do when glutened? I have a two year old and no help…I need it to pass ASAP! Love the blog btw.
To me, my health is almost always directly related to how I treat myself. Am I eating the right things? Am I getting enough sleep. Am I trying to meditate on a regular basis? Am I truly thankful for what I have and who I am? These things all add up. Be good to yourself. And play with different diets to see what works. I’ve given up dairy completely. I’ve done the Whole30 twice. I’ve done the AIP diet. All have made me feel tons better and taught me how I should be treating myself if I want to feel good. And by all means…stop eating gluten-free food. Click the link…you’ll see what I mean.
As for healing from being glutened, some amazing advice here.
And let’s end this mail bag on a happy note.
Hi Gluten Dude. My daughter Lillian was diagnosed with Celiac Disease at the age of 4. She just turned 10 and has been in remission for 2 years. We contacted you at the beginning of her diagnosis and you helped us tremendously. We just wanted to take the time to write and give you an update. Let you know that you are truly making a difference in the world. Lillian was just elected to be a Child Ambassador for Children’s Hospital Colorado!!! All the funds that she raise will go to the Celiac Center here in Denver, Co. I am attaching a link to her Ambassador Page hereto. I hope that you will enjoy reading her story and possibly share it among your followers. Thanks for being there for us when we needed it most.
Here is the link to her story folks. She is truly trying to help and is 60% of the way to her goal of raising $5,000. Anything you can donate would be awesome!!
Ok, that’s a wrap. 20 emails…in 4 days…in the bag.