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22 Comments

  1. 1

    Anneliese

    Great post……how do those of us who strictly adhere to being gluten free deal with persistent symptoms of brain fog and fatigue?

    Reply
    1. 1.1

      The Gluten Dude

      Patience. Lots and lots of patience. And a few naps thrown in there for good measure.

      Reply
    2. 1.2

      Joseph

      My celiac disease was diagnosed about 5 years ago and from time to time I developed brain fog without attributing it to celiac disease. I’m also hypothyroid and I have taken Synthroid routinely for many years. Recently I have had to take increasing doses of Synthroid because my FSH was getting higher. Looking back, the brain fog seems to have started when I increased the thyroid. Does anybody else relate the brain fog to high doses of Synthroid (thyroid hormone)?

      Reply
  2. 2

    Happy LaLa

    I’ve been white flour free for 2 weeks now and mostly gluten free. I cannot BELIEVE how much less arthritis pain I have. My allergies have cleared up, brain fog is gone and the (easy) recipes I find online for a gluten free diet are endless, and on my ipod touch apps. Trust me, if I can go gluten free anyone can. I was a huge bread/pasta addict and something finally clicked. Now, I don’t crave it at all. I’m going to test out some recipes for gluten free breads, but for now I really enjoy Udi’s breads and bagels (gluten free). Make sure to defrost them in the micro. for 30 seconds, then toast them. Best of health to you all.

    Reply
    1. 2.1

      The Gluten Dude

      Thanks Happy….glad to hear it’s helping you.

      Reply
  3. 3

    Tammy Bowman

    Thanks a lot. Find your blog very helpful

    Reply
  4. 4

    Katha

    If you have celiac and because of it brain fog,
    does the brain fog always disappear when you are gluthen-free?
    or does it last forever in some cases?

    best,
    katha

    Reply
    1. 4.1

      Gluten Dude

      It goes away for me. Unless of course I’m just so used to it.

      Reply
  5. 5

    Tabitha

    I had never heard about brain fog related to gluten. The term really hits it on the head for how I feel. I don’t have celiac, but am intolerant. I was tested 4 years ago and had the anti-bodies in my blood.

    I felt much better taking gluten out of my diet even though it was really painful to do. Now it seems like I am feeling worse again and I am not sure why. I try to be gluten free in all things.

    My allergies are flaring up again, the pain in my feet is back, intestines never seem right, swelling everywhere, very emotional, little bumps on my skin popping up all the time. It seems like I must be getting gluten in my system somehow, but can’t figure it out. Not sleeping well, really tired…Also, my weight has increased and I can’t seem to lose weight! The brain fog is awful. I feel so stupid.

    Feeling very let down right now. I have survived many horrible things in my life (ovarian cancer, Adenomyosis , endometriosis, hyperemesis gravidarum) but am now not sure how/what to do to feel better. Everything is suffering- my family, work, me…I’m at a loss.

    Any advice? Sound familiar to anyone? Thanks!

    Reply
    1. 5.1

      ALINA

      HAVE YOU BEEN TESTED FOR ADRENAL FATIGUE? YOU ARE STATING ALL THE USUAL SYMPTOMS FOR ADRENAL FATIGUE.

      Reply
  6. 6

    Tabitha

    Also- Has anyone ever noticed that you have a different reaction to different kinds of gluten?

    I know I have accidentally eaten gluten a few times. A couple times at restaurants, I had asked specifically about everything, but before the meal was over, I was clammy, felt like I had the flu- dizzy, nauseated, gassy, etc… this is why I am afraid to eat out! Besides the common “rolling of the eyes” and “you are so annoying “looks I get.

    Other times, the reactions have been much more minor.

    Just wondering if different types of gluten cause different reactions.

    Reply
  7. 7

    keith mccann

    As a well controlled coeliac i have developed cough related asthma and understand that these diseases are linked but i also suffer from time to time with terrible itchyness of my feet. This is so bad that it drives me to distraction. As yet i have not had anyone identify with me re these symptoms. Does anyone else suffer ? I also get a rash but i can get the itching alone. It is definatlyely NOT fungal and my GP does not sympathise with me at all. Am i alone ??

    Reply
  8. 8

    Anna

    Gluten free for two years. Ate a slice of pizza and its been terrible! It didn’t hit me right away but rather couple days later. Lightheaded foggy have the runs feel unsteady and feel like I’ve been hit by a bus. Vertigo! I can’t wait till the end of the day to go straight into my bed. This is horrible. Learned my lesson for sure. Not worth it! Any advice????

    Reply
  9. 9

    Anna

    Thank you!!!!!

    Reply
  10. 10

    Megan Clampitt

    Ugh!

    I can relate to this so much! I used to get in trouble for “not paying attention” or “being lazy” when I was really exhausted & couldn’t focus… to the point where I couldn’t see very clearly!

    I’ve always been teased about bumping into walls & corners and being really clumsy & forgetful like leaving stuff in the wrong places, not being able to find something right in front of me or remember what somebody just said, etc.

    but after I was diagnosed this summer & went 100% gfree I swear all of that has gotten unbelieveably better, and the people close to me who used to make fun of me have noticed too. Some people have mentioned that I have more energy, more focus, and that my “eyes look clearer & brighter.”

    I definitely can tell a difference myself! My grades went up by 2 letter grades this summer! It was SO much easier to focus in class (that might have had to do with the fact that my stomach was killing me everyday!)

    Anyway – awesome post

    <3 Megan

    Reply
  11. 11

    Ralpha Wharton

    I was diagnosed with celiac disease almost 40 years ago. Method was a small intestine biopsy, and I have been on a gf diet all this time. Thankfully, there are many more food choices today.

    I experience brain fog many days. I have RIPN, Radiation Induced Peripheral Neuropathy and lymphedema in my right arm and hand s/p breast cancer and lymph node removal in 1997.

    The brain fog is very troublesome. And it is exhausting. I take levothyroid, anti-depressants and anti-anxiety meds daily. My psychiatrist started me on 60 mg cymbalta a month ago, and my energy level is improving greatly. But today is a brain fog day. Pooh!

    Reply
  12. 12

    Jessica

    Those of you taking meds might want to check out the website: http://www.glutenfreemeds.com, to make sure there is no gluten in what your taking.

    Reply
  13. 13

    kirai

    How long does usually take for the brain fog to dissapear when going TOTALLY gluten free? I’ve been 8 weeks now strictly gluten free but I’m still suffering 24 brain fog. Sometimes it gets better, sometimes worse but this weird feeling in my whole head/mind stays with me all the time (short term memory loss, lack of concentration, lack of energy…) .
    Thanks!

    Reply
  14. 14

    Margaret

    I am a medical doctor who qualified 30 years ago. Back then we were taught that coeliac disease presented as diarrhoea and weight loss, failure to thrive in children but never the bloating, flatulence, joint pains, headaches,brain fog,psychiatric problems, poor energy etc I have suffered.Well 30 years later I had an endoscopy in the workup for a gastric sleeve operation because I never do any of the exercise I recommend to patients because I never feel well and the duodenum was atrophic.That was all the persuasion I needed to go on a gluten free diet. A few weeks later feeling a lot better, but stuck in a hotel room at a conference where the minibar was not glutenfree I decided it was time for a gluten challenge. After 40 years of constipation I had 5 days of diarrhoea, and now my bowels move more than regularly. No one ever understood when I said I had brain fog, a term I think I picked up from a patient, certainly not through my medical training.

    Reply
  15. 15

    Bren

    The brain fog is the worst. Followed by the heartburn. I think what is so frustrating about the fog is if you have accidentally ingested gluten and you have celiac disease, then that means you have at least several days of fog ahead. I am a writer and the fog is a total inspiration killer.

    Reply
  16. 16

    CaliSparrow

    Thank you for writing this. Additionally, I get brain fog when I eat any of the myriad of food intolerances I developed during my long road through illness. It is very frustrating. I’ve thought about making a list of do’s and dont’s for during brain fog, (like, don’t have blind faith in anyone) but how would I remember there’s even a list?! It’s like being the scarecrow – if I only had a brain. Then I’m panicky because I have no control of the ship. Afterwards, I’m left with trying to undo some of those decisions made while walking headless into situations. I’m very grateful to now have clear days in between!! For much of my long life, that was not there.

    The article you cite here leaves me with no unanswered questions. That’s a plus :-) Thank you again!

    Reply

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