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26 Comments

  1. 1

    Erica D

    I loved her before and now I adore her!!! How lucky of you to get an interview with her. We are so lucky to have her advocate for us instead of other celebs that use this as a fad. That reminds me, I think Samantha Who is on Netflix and I should rewatch it! This interview made my day, and possibly my week. We can do it, GF community :) – Celiac and the Beast

    Reply
    1. 1.1

      The Gluten Dude

      Thanks Erica. We can do it indeed!

      Reply
  2. 2

    TxCami44

    Great interview. I will definitely spend more time checking out Jennifer’s way. I think it is fantastic that you are out there telling your story. I read it after I was diagnosed with CD. I remember how much better I felt after reading it and thinking “Ok, I can do this and she is better now. I will be too.”

    Reply
  3. 3

    Babs

    Wow. Great interview. She’s informed and articulate which is such a nice change after all those gluten-lite celebrities we always seem to hear about. Off to check out the website, like the facebook page and follow her on Twitter!

    Reply
    1. 3.1

      The Gluten Dude

      “Gluten-lite celebrities”…I love that.

      Reply
      1. 3.1.1

        Gina

        Jennifer’s experience is similar to mine. If she is not feeling well after a few years of following a gluten-free diet, she needs to be tested for microscopic colitis. She may have permanent damage because her diagnosis took so long. Good luck!

        Reply
  4. 4

    Gluten FreeK

    Team Jennifer! With you all the way!

    Great interview, Dude!

    Reply
    1. 4.1

      The Gluten Dude

      Thanks FreeK!!

      Reply
  5. 5

    IrishHeart

    As I have said before, I think she is lovely, articulate and an incredible advocate.

    When we read her celiac story on her site, I was moved to tears. Hubs said “She sounds exactly like you”.

    I agree, spontaneity is the main thing I find the most troubling about CD, and like her, I was delighted to figure out what I had and get a diagnosis, because it was an answer to all that had gone so horribly wrong inside me. (And we “only spent” $30K on tests, doctors and treatments that left me sicker and in pain.)

    Parallel lives–all too common with this disease– and she is so right: it’s overlooked and does not get the attention it deserves because of MONEY.

    And I absolutely, positively cackled when I read her answer about leaving before the appetizers. :) Good for her.

    Great interview, G Dude! Thank you for all you do, Jennifer!

    Reply
    1. 5.1

      The Gluten Dude

      What I found thru the interview is that we use a lot of the same language. Yes…even the spicy language :)

      Reply
      1. 5.1.1

        IrishHeart

        because she is “real” :) like us

        Reply
        1. 5.1.1.1

          Sherri

          I wish we had “like” buttons ha ha like there is on facebook … ;)

          Because YES this is exactly what I love about all of you … GD, IH, and JE because you are truly “real” … straightforward … and you talk like ME ha ha …

          Love it and love Miss Jennifer … she is heartfelt and real …

          Hooray! :)

          Reply
  6. 6

    Mistic

    Thank you for this interview. Hope you don’t mind if I share this on my fb page.

    Reply
  7. 7

    Else

    I completely agree about the spontaneity thing – that is what I miss most. The food doesn’t bother me – I can bake or cook anything I want. But I miss not having to think and plan so much about my food. (i’m already panicking about a business trip that is a month away!). Its exhausting.

    Reply
  8. 8

    Jersey Girl

    Niiice. Great job, GD. Thank you Jennifer, your honesty and passion speaks volumes about who you are as a person.

    XO,
    Jersey Girl

    Reply
  9. 9

    Traci

    Awesome interview! She is one smart, tough lady. I have always loved her as an actress but she is an even better advocate. Thank you GD for posts like these! I am now off to see what I can do to support Jennifer’s Way.

    Reply
  10. 11

    IrishHeart

    I am so angry about this and I do not know what can be done in support of our fellow celiac and advocate.

    Boycott the show, boycott all the sponsors and start a campaign?

    Reply
  11. 12

    Lou

    It sucks. But her contract might allow it.

    Reply
  12. 13

    Jaime Raby

    This is very inspiring, but also sad. I went through all this. I started a new job and was fine for a year and then the walls came down around me. I had chronic pancreatitis for 11 years and learned how to deal with that. But then I started having horrible panic attacks, migraines, and seizures. One doctor told me I was acting sick and there was no excuse for me, then showed me out of his office. I found a naturopath and a better doctor after that who took me out of work after I was diagnosed with CD. I was on disabilty for six months, but insurance kept fighting it. They eventually one and denied me while I was trying to recover and I was let go from my job. My fiance and I had to postpone our wedding and buying a house. Right before I lost my job, my boss told me she would die if she was in my shoes, it was very rude, very disheartening, considering my docs said I would die if I didn’t change my diet. It’s been a very long road. I’ve been of work for six months. I’m I’m school for nursing and I’d like to work I’m a holistic office so I can work with people like me. I currently have celiac disease, epilepsy, and 25 food allergies. I keep pushing forward, I have good and bad days, but things are definitely improving.

    Reply
    1. 13.1

      Jaime Raby

      Please forgive my grammar, auto fix….

      Reply
    2. 13.2

      TxCami44

      Here is to continual and permanent improvement to you! Thank you for writing your story and you are in incredible company on this blog…

      Reply
  13. 14

    Pat

    I diagnosed myself from a Readers Digest in an doctor’s office. Demanded a test, it was positive for Celiac. I have been sick since childhood – 2 baby teeth pulled and almost bled to death. Allergy to milk products and foods. I had 3 D&C’s, got married and husband got into a motorcycle wreck with massive head injuries and lost of most eye sight. I run down more and more, had a hysterectomy at 25 and almost bled to death again, busting my stitches from to operation. I continued trying to work and take care of my husband – who really didn’t think I was really sick. I then got out of the marriage 20 years later, and then started going into breast cancer, had both breasts removed, and got talked into silicone implants only in 2001 when they started leaking, had to have them removed and almost bled to death again. They made fun of me at work and even after I got the answer of my health problem. I lost my job because I was out of work so much with my disease. I have been in the ER this year 13 times for fluids for dehydration from chronic upset stomach, passed out and got a concussion. Now I have dry mouth and eye problems, and dental problems. Now I am looking for help because I have had only 1 Dr. who has helped me so far and thinks there is now something else is happening – I now have a growth in my mouth to be checked out. Can you help me with a doctor I can contact and get some help???

    Reply
    1. 14.1

      IrishHeart

      Call the local celiac support group or hospital in your area and ask who their consulting GI doctor is–the one who deals with celiac, specifically. Go to him or her.

      Reply
    2. 14.2

      Bubba

      Pat,

      In regards to your dry mouth/eye problems/dental problems have you ever been diagnosed with sjogren’s syndrome? Like celiac, it’s an autoimmune disease. I was diagnosed with sjogren’s quite a few years before I found out I had celiac.

      Reply
      1. 14.2.1

        Pat

        THANK YOU for your comments. I was tested for this Sjogren’s syndrome last month and it was negative. Only positive so far is Celiac
        disease.

        Reply

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