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37 Comments

  1. 1

    Ann

    thank you Jennifer for being honest about this disease!

    Reply
  2. 2

    IrishHeart

    I like that she was “real” about it. She said almost the same things we say about going out to eat and having waitstaff not take her seriously because of the “GF fad”.

    She told the interviewer the ugly parts of celiac (admitting to panic attacks is not easy as there is a stigma attached to it) and that she still struggles with symptoms. Despite all that, she has returned to her acting work, opened a bakery, wrote a book and established a non-profit.

    People just do not understand the ramifications of this disease.

    I weep every time I read yet another person’s story of suffering for 20 years and being let down by the medical community.

    Having a celeb who GETS this thing–one who can reach a wider audience and speak about the horror of it–is a gift to the celiac community.

    While I would not wish this thing on anyone, I applaud Ms. Esposito
    for doing all she can to educate others and somehow, make sense of all that has happened to her by “paying it forward”. This is what I have tried to do, this is what the G Dude does, this is what so many of you wonderful , talented GF bloggers/writers do… and this is what we all should do.

    We all “have a lot of work to do”.

    So, hooray for Jennifer Esposito!!! –for shedding a bright light on the reality of Celiac Disease and using her “celebrity status” in a positive way.

    You go, girl!

    and P.S. If you should happen to read this, I love you on Blue Bloods. Maybe Jackie can be revealed as a celiac, on an episode someday??

    Thank you for all you do!

    Reply
    1. 2.1

      deet-de

      Did you know that she lost her job on ‘Blue Bloods’ because of her disease? She was apparently experiencing severe exhaustion among other debilitating symptoms, even passing out once at work. Her doctor ordered rest after that episode. The show’ s producers labeled this behavior as difficult and a ploy for special treatment and perhaps future salary demands. Her character was recast.
      She has stated that they viewed celiac as a made up illness.
      I’m glad that she spoke out about this outrageous prejudice, we’ve all faced it in one form or another but that said I haven’t seen much coverage of what really happened there.
      Unlike you gluten dude I do follow entertainment news! Giant unapologetic movie and TV addict!
      Love the blog. Thanks for keeping us so informed.

      Reply
  3. 3

    Becky

    Ok. I have to start by saying I LOOOOVE Jennifer! Both on Blue Bloods and as a Celiac advocate. It is because of HER that I did NOT have to wait years to get diagnosed. It’s because of HER that I investigated WHAT Ceilac was and then went to a doctor to get diagnosed. It’s because of HER that it took only 6-8 MONTHS from beginning suspicions to official diagnosis. And for that…..”thank you” JUST. DOESN’T. CUT. IT!!!!!!!

    I am so glad she has started her organization and hope that I can help in some way some day (a little camera shy…..gotta build up the courage to do the video thing…. LOL). I KNOW that she will do great things!

    Reply
  4. 4

    The Atomic Mom

    I don’t know who she is either, but bless her.

    Reply
    1. 4.1

      Kristin

      I loved her on Spin City and I love her on Blue Bloods (you should all check it out when the new season starts up!!) – but I love her even more now!! 10 years ago when I was first diagnosed…. I always said – we need a celebrity who has this disease to come out and be the spokesperson for it. But for the longest time, no one stepped up. Little did I know that many years later – we would get the “GF fad” crowd of celebrities to ruin it all for us. But, finally… FINALLY… as GD said – we have someone who truly GETS it!!!! Thanks, Jennifer!!! :)

      Reply
      1. 4.1.1

        IrishHeart

        Yes, she was great on Spin City!! and in Crash and other films.

        I wondered where she went after Spin City and I was thrilled to see her back on TV on Blue Bloods.

        She was on Letterman a few months ago and she brought him a GF cupcake she had made and even though he goofed on her for it, she was so poised and kept her sense of humor.

        Reply
  5. 5

    Jersey Girl

    I Just wanted to thank you, gluten dude for your kick ass blog. You inspire me every day, you were the first website I found that helped me self diagnose a gluten intolerance. I am in my sixth month of GF living & although it is annoying and expensive i know i can not go back to how i felt half a year ago. I believe that my gluten intolerance started after a three week course of antibiotics to treat h. pylori (do yourself a favor if you bing image it you might regret it). Or course this maybe coincidental but I doubt it. I am considering starting my own blog maybe named Gluten Free Jersey Girl, any tips Gluten Dude?

    Reply
    1. 5.1

      IrishHeart

      I know this is off topic, forgive me, GD :) I cannot help myself.

      but after any course of “big guns” antibiotics (especially that cocktail they prescribe for the treatment of h. pyrlori) you should take probiotics and replenish your gut.

      Just a suggestion.

      Reply
    2. 5.2

      The Gluten Dude

      The more gfree blogs the better. Some tips:

      – Don’t use blogger or any other free service. Download a premium WordPress template and make your blog look awesome.

      – Blog what YOU believe in…not what you think others believe in.

      – Blog with passion.

      – Blog with humor.

      – Blog frequent.

      – Communicate with others in the community.

      That should get you off to a decent start!

      Reply
      1. 5.2.1

        Sherri

        hhhhhmmmm I use a free blogger service but you are correct that it limits creativity with the blog …

        and thanks for the other tips as well … :)

        Reply
        1. 5.2.1.1

          The Gluten Dude

          If you use blogger, you don’t control anything. If blogger goes down, there goes your blog.

          I actually run a web consulting company and am aiming to launch a new blogging platform by the end of the year. Will keep you posted.

          Reply
          1. 5.2.1.1.1

            Sherri

            oh that made my stomach jump a bit at the “if blogger goes down you lose your blog” …

            yes please would appreciate being kept in the loop about the new “blogging platform” … thanks :)

            Reply
  6. 6

    Sherri

    I am thankful the Jennifer for her real and deep understanding of the effect she welds on the Celiac Community by her honest and relevant advocacy of Celiac Disease.

    I am on the Board of my local chapter of the Celiac Association and we are always in the process of reevaluating how awareness is provided, and what we can do to step it up and help people understand the importance of learning about Celiac Disease and Gluten Intolerance. I share Gluten Dude’s frustration when you see celebrities mis-informing the public ~ so Ms. Esposito is a true breath of fresh air. I now follow her blog, twitter and facebook … and she will become one of my regular reads like Gluten Dude. ;)

    Awesome … real information … that does my heart good … :)
    Thanks for the re-posting of the highlights of this article GD … appreciated. :)

    Reply
    1. 6.1

      The Gluten Dude

      That’s what I’m here for ;)

      Reply
  7. 7

    TxCami44

    Agree with with the person who said you need a LIKE button for your post and comments. The post is fantastic and as always so are all of the comments. My days are much better because of all of you. Thank you AGAIN.

    Reply
    1. 7.1

      IrishHeart

      (pretending I have a like button)

      IH LIKES TxCami44
      :)

      Reply
      1. 7.1.1

        TxCami44

        Well, I think you are amazing and I forward this blog all the time and say “read the comments too – Gluten dude and his blog followers are incredibly SMART!” You guys are making a difference every day! :)

        Reply
  8. 8

    Michelle P.

    While I too feel for her getting celiac disease, I rejoice with you that she actually GETS it! We need advocates like her and that Ms. America you interviewed before. Thanks for posting this!

    Reply
  9. 9

    Louise

    Jennifer actually did a show on Food Network or the cooking channel about her disease and how she was managing it. She’s even written a cookbook. I think it’s called Butter and sugar. Can’t remember. It was a great program though.

    Reply
  10. 10
    1. 10.1

      IrishHeart

      …aha, he is an “integrative MD”– which explains the supplements she says she takes for a leaky gut.

      Some of those nutritional supplements reportedly help with gut repair and reversing deficiencies (L-glutamine, amino acids, vitamin D, calcium, etc.), and some don’t do much of anything. There is no set protocol and everyone responds differently.

      It works for her, so that’s good!! I see she also takes probiotics, which I am guilty of pushing on everyone. :)

      Reply
  11. 11

    IrishHeart

    You know,guys, Mr. IH and I just read her whole story on her website–her list of symptoms– and all the doctors she saw, the tests she had, the drugs she was given, the way she was treated (and lack thereof?)– for YEARS? and I’m sobbing for her ….and the hubs said quietly….she sounds just like you.

    There are so many more stories like hers and mine.
    I read them every day on celiac.com. And there is something fundamentally wrong with our medical system when people are not being HEARD and are misdiagnosed/undiagnosed for 10, 20, 30 years or longer… and left feeling like death just might be easier.

    I applaud her for taking this nightmare she survived and turning it into something good. It’s all any of us can do.

    Reply
    1. 11.1

      Miss Dee Meanor

      I wish she could take her story to the medical community. It seems that the main ones who have the power to diagnose are still the least familiar with the varied symptoms.

      Reply
  12. 12

    Else

    I would loooove to know what Jennifer thinks about Kim, Gwyneth, Miley, etc. and their so-called gluten-freeness. But I suppose she could never criticize them openly, since she has to work in the same business, and I’m sure they could get her black-listed.

    Reply
  13. 13

    Doro

    Good for her. I could relate to most of her symptoms. As for Schar, they make great bread and chocolate-covered shortbread cookies. I have no gripe with them as long as they keep the cookies coming.

    Reply
  14. 14

    jennifer esposito

    I would like to say hello to all my celiac friends and say thank you to Gluten Dude and his followers. We really do have much work to be done to bring awareness about this disease that truly (sorry) sucks. I will do everything I can to get this disease the proper attention it needs. In the works is a taping on The Talk, Fox Files followed me for a day to see what life is REALLY like for a celiac and hopefully (cross fingers) a one to one with Elizabeth Hasselbeck on the view, oh boy. I deal with this disease as many of you do everyday. It has changed my life in many many ways BUT it has brought me to this passion to educate and help that i wouldn’t change for the world. So the comments that say thank you and that I possibly helped someone not suffer as long as I did means more to me than you can ever imagine. Better than any oscar or emmy, Mr Dude. :)

    My very best to you all
    Much love
    Jennifer

    Reply
    1. 14.1

      The Gluten Dude

      Thanks Jennifer. You NEVER have to apologize for saying celiac sucks on this site.

      Although saying celiac “blows” is a whole other story :)(http://glutendude.com/celiac/celiac-blows-deal-with-it/)

      Glad to have you on our team…

      Reply
    2. 14.2

      IrishHeart

      Keep up the great work, Jennifer!
      I truly admire you for all you are doing for the cause.
      It’s inspirational.
      Best wishes and continued healing.

      Reply
    3. 14.3

      Sherri

      Just want to add my thanks Jennifer ~ it is truly motivating and inspirational that you are such a down to earth, these are the facts – advocate for Celiacs and Celiac Disease.

      Thank you very much ~
      :)

      Reply
  15. 15

    Truthfully Gluten Free

    love it. Getting it vs GETTING it.

    Very big difference :)

    Reply
  16. 16

    Laci Rich

    This is the exact same headache that I’ve been dealing with on a forum where people who are supposedly serious about being gluten free are basing their diet on the fact that a couple Olympic athletes went gluten free for a performance boost.

    What those people neglected to notice was that most of those athletes are either celiacs or have severe gluten intolerance. But, if you mention that on this forum, you get blasted to hell and back for being “negative” about whether or not a GF diet can be healthy for absolutely everyone.

    No one notices for years, then suddenly celebs and athletes do it and people are falling all over themselves to do it.

    Herd mentality. UCK.

    Reply
    1. 16.1

      The Gluten Dude

      HATE the herd mentality…

      Reply
  17. 17

    amanda

    thank for sharing this, I also have suffered from it and still maybe am.

    I couldn’t focus,talk to people and do what was aspected of me.

    Teachers said I had a learning disorder and peers labeled me as retarted. cried everyday as a child.
    I began to believe what everyone said and I had become obessed with myself.

    Until at the age of 19, I took action. for some odd reason, I found myself looking for something connected to my thyroid problem.

    it was celiac, stopped eating gluton and felt completly different inside.
    memory improved,have more energy, can think more now and I feel like life isn’t really going by as fast.

    and my blood test came out positive, but God led me to diganose myself.

    Anyone who is told they have a learning disability, I think should get tested for celiac.

    Reply
    1. 17.1

      IrishHeart

      Hi Amanda,

      I am sorry you have suffered from the neurological symptoms as well.
      I could not believe what it did to my brain. Just devastating.

      It is a shame no doctor knew that thyroid diseases are often associated with gluten intolerance/celiac.

      But– good for you for figuring it out!!

      I agree with you completely and I think that some people labeled “ADD” and bipolar and hyperactive, anxious & depressed are probably having gluten-induced symptoms and would do well to be tested. Even if the tests are negative, a trial of GF and DF would be wise to see if those symptoms improve.

      My guess is….they would. I hear stories like this often.

      Hope you continue to feel better and better!

      Reply
  18. 18

    Claudia

    Hi Gluten Dude: I was recently diagnosed with Celiac disease and it has been a journey to say the least. I do feel better, in fact my anemia was gone after 2 months after going gluten free. But I digress, I still have issues with my guts. Even though I know I am healing, my colon is doing so many flip flops that sometimes its hard to cope with. I believe that 2 years of constant constipation took a big toll on the large and small intestine that my body is trying to “catch up” so to speak. I have missed work because of it and hope that I can keep working. I really love going gluten free because I FEEL so much better. I have more energy and that’s what was missing from my life. I was on the Atkins diet for about 3 years. I only went off the diet because my son thought Atkins is a quack and I looked too skinny to him. So I started adding whole wheat as well as other grains to my diet. Well, I felt awful. My guts would be in knots. I got progressively worse and that sent me to my doctor who sent me to a gastroenterologist, who in turn did a colonoscopy and endoscopy. My biopsy was positive for Celiac disease. What a shock! I remember watching a show on Dr. Oz about celiac disease and musing “I’m glad I don’t have that crap”. Well I do. I think the Atkins diet and Paleo diets are not far off from the mark.

    Reply
  19. 19

    dailybhaskar

    Nice post.Hi i have read your topic.so good so I want to share some news International News – Read latest International news . I deal with this disease as many of you do everyday. for more detail visit@http://www.daily.bhaskar.com

    Reply

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