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17 Comments

  1. 1

    Ivan

    It seems that the CDF is not fit for purpose, if what you say is true; can i suggest that you contact each of the Medical Advisory Board at https://celiac.org/about-cdf/medical-advisory-board/ and ask them for their thoughts on this very item, and post ’em here?

    Reply
  2. 2

    John

    Here in Canada I see the CCA’s blue seal of approval logo from their Gluten Free Certification Program on all kinds of products. Naturally one might wonder about the integrity of such a program but this shows the CCA has some standards.

    Reply
  3. 4

    Lisa

    I wonder if the US will follow suit. I loved Cheerios prior to my 1999 Celiac Disease diagnosis, but after following all you’ve shared since GM was first thinking of making them “safe,” have never touched them. I get way too sick and it isn’t worth the risk. I won’t get into whether or not this is a healthy cereal (everybody has to choose what’s right for himself or herself) – but it would be nice if our community didn’t have to worry about whether something labeled as being gluten free is actually gluten free or not. Those words on a product should mean something. Thanks for sharing this and all the tireless advocacy you do on my behalf, I’m incredibly grateful.

    Reply
  4. 5

    Susan

    When I posted the article about the scopes they use in colonoscopy and endoscopy being difficult to clean, the CDF put my account on warning and probation. I don’t believe anything they say. There is clearly something going on behind the scenes and they have lost the point of protecting consumers.

    Reply
  5. 6

    Anne

    Strange they sponsor the celiac disease foundation, I don’t go near any of those brands with a ten foot pole. I must also confess, I haven’t spent much time on the CDF website or found it particularly useful, helpful, or informative.

    Reply
  6. 7

    Greg

    Yeah I’ve seen the ads lately and just shook my head. Money rules everything in corporate America. I scratch your back you scratch mine. They don’t care if they make people sick. I got sick last week I’m guessing from buildup of trace gluten in the probiotic or other supplement I’ve been taking. I’m now taking nothing but my regular multivitamin. If they won’t regulate themselves then no more money from me.

    Reply
  7. 8

    GF and more

    Glad to see some measure of common sense from an agency. The Cheerios testing methods and processing is a travesty. It would be interesting to know what kinds of discussions went on behind the scenes to convince the CCA to come out with that stance, what kinds of arguments were convincing to them, etc.

    I am (sad to say) very doubtful that the US will follow, given all the promotion and financial incentivizing going on of the unsafe food – and the fact that the standards here are so squishy. I don’t trust anything from the US CDF. They have their own interest, and their interest is not protecting *my* interest. I’m the only one who does that. So that’s what I’ll have to do to protect my own health. And that means a constant vigilance and investigation.

    Reply
    1. 8.1

      Sue Newell

      GF and more, if you read the CCA’s statement you will see that it was a failure to convince us of the safety of General Mills procedures that lead to our recommendation. It was never an issue of convincing us the Cheerios were unsafe. Given that gluten free oats may well be the highest risk ingredient used in gluten free products, we need to be convinced that they are safe.

      The CCA took the same stance when purity protocol oats were introduced. Prove that the process works before we can recommend them to people with celiac disease (with the caveat that your gut should be healed before you start eating even pure oats). There are benefits to being an organization guided by science.

      Sue Newell, Canadian Celiac Association

      Reply
      1. 8.1.1

        Cheryl

        GOOD FOR YOU! Sadly, while I love the U.S.A. and being a citizen here, I do have to say that lately it seems that big corporations rule to much. The US FDA regulations are a joke because corporations are self-policing. That single issue convinced me that the 20ppm idea is a danger to my health. But that is just me!
        I think Canada is a beautiful country filled with wonderful people. But I like the warm south.

        Reply
      2. 8.1.2

        GF and more

        Thank you Sue! I just read the full statement and appreciate the reasoning behind the CCA’s sensible stance. As you say, we must be convinced with scientific proof that something is affirmatively safe. And that must be kept as a high bar to cross. When in doubt, err on the side of unproven and unsafe. When there might be harm to some populations within the celiac community, err on the side of unsafe.

        I only wish the US agencies could see the value of caution and measured science.

        Reply
  8. 9

    Lindy

    Thank you for this!! I’m recently diagnosed and have been getting informed. It’s a struggle to explain to family and friends why I’m not willing to eat the “gluten free” Cheerios. My husband and I shook our heads at the Celiac Foundation logo…..like, seriously? Also, this site is amazing! This has been a journey of ups and downs so far. One day feeling good and cheerful, other days having a total emotional breakdown over all the food memories I’ll never experience again. Loving your honesty and sense of humor!

    Reply
    1. 9.1

      Gluten Dude

      Welcome to the journey Lindy.

      Reply
  9. 10

    LJ

    I was told by a reputable celiac group here in the USA that I’m just sensitive to oats then assuring me Cheerios are gluten free. I’ve argued it. I have eaten gluten free oats with no issue in the past. I had my worst celiac flare in months when I tried the GF Cheerios. When gluten free labels mean “up to 10 ppm of gluten” it’s of no value to those of us with celiac disease.

    Reply
  10. 11

    Matt D.

    Hi folks,

    I’m in the States and just received my NIMA sensor.. The first thing i did was test my yellow box GF Cheerios and you guessed it…. it failed.. Gluten found. Well that sucks.

    If you haven’t ordered a NIMA sensor, it’s worth it. It’s been great testing somethings I eat regularly and to have confidence that they are indeed GF.

    Cheers

    Reply
  11. 12

    Caitlin

    Just ate these with whole milk and am experiencing the hallmark intestinal burning, back pain and leg pain almost immediately. Sigh. I’m still new to all this, but unless it’s certified GF I’ll just have to stay away regardless of “claims”.

    Reply
  12. 13

    Ashton

    This makes me so sad. I was diagnosed with Celiac 4 months ago. And I trusted that Cheerios really were gluten free. Having cut out so much food already, I was glad to have something familiar that was inexpensive. But I hadn’t really felt better having gone gluten free. And then I ran out of Cheerios almost 2 weeks ago and haven’t been to the grocery store yet.
    And my stomach issues cleared up. I would consider it a fluke had I not experienced both intentional gluten consumption and non-intentional cross contamination recently, with isolated stomach issues.
    So yeah, 2017 and they still don’t have their gluten free schtick together.

    Reply

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