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    That was excellent!!!! I’m going to share it with my non-gluten free living folks! Thanks for posting!!

  2. 2

    Rachel S.

    Great video!
    I actually did finally get a response from Dr. Keri Peterson, the doctor who said that Celiac Disease was “trendy” on the Today Show. I got her response about 2-3 days ago on her Facebook site:

    Dear Rachel,
    It’s been some time since I checked my facebook page or twitter. I have read your comments and wanted to address them directly with you. I can see that you are very frustrated about Celiac being misrepresented. I want you to know that my reference to Celiac being trendy was in reference to it being a popular topic in the media. My wording did not convey that message well. Using the media as a platform to educate others so that they recognize how to identify their own symptoms and be properly diagnosed is my primary goal. My dear family friend suffered for many years until I diagnosed her two years ago and her quality of life has greatly improved since then, so I do have some insight into how Celiac may have impacted your life. I hope you are managing it well and I appreciate your passion for raising awareness.
    Keri Peterson

    As you might remember, I wrote some pretty in-your-face and accusatory remarks on her FB page. Well, I apologized to her about the harshness of the first one. I then received this reply. So sometimes the squeaky wheel gets the grease, so to say…

    You can read the various comments here:

    1. 2.1

      Carey G

      Skeptically, I wonder how long her friend was her patient before Celiac was the diagnosis…if it was overlooked for yrs (ok, a little bitter here, I was told I had IBS for 15 years before my new doctors ran a Celiac panel) or if it was just run as part of routine bloodwork during an initial visit (boy, wouldn’t that be a dream!)

      Congrats on getting a reply. Yes, the squeaky wheel does sometimes get the grease :)

      1. 2.1.1

        Rachel S.

        Yes, I wonder that myself. Well, I think that this doctor may have just used bad wording when referring to our condition as a “trendy” and “hot new disease.” People sometimes don’t say things in the most tactful ways and then regret what they say later. I know I say things that I regret later. I give her the benefit of the doubt. However, I really wish that she would apologize to the Celiac community as a whole and admit that she had misspoken.

  3. 3

    Carey G

    Thanks for posting. Just shared our on FB page :)


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