Between Cheerios, the media, Udi’s, and some ridiculous infighting within the celiac community, there has been an aura of negativity surrounding my advocacy lately. I’m not a negative guy. I just can’t stand BS and I can’t stand injustice. So if I see it, I say it.
Other advocates simply focus on the positive. And that is needed in this community as well and I am appreciative of all of the advocates out there.
But we need people to call out the BS. Otherwise…well…nothing will change. And change is good.
My point? Seriously…I do have a point. My point is that it can be a drag after awhile. I have a good friend who is a fellow celiac advocate and our conversations are almost always about what we do. Lately, we’ve been saying that we seriously need a night where we simply hang out and talk about anything BUT celiac. Now wouldn’t that be nice.
Anyway…long story short…I received the following email recently and if nothing else, it simply validated what I try to do here and made me believe that it is indeed all worth it. It was a real shot in the arm and so friggin’ appreciated.
Just wanted to drop by with a (not so) little thank you note. If it hadn’t been for your infographic of coeliac symtoms I’d never gone gluten free. If I hadn’t gone gone gluten free I probably wouldn’t be here now. Being okay, for the first time in my life, for a longer period at a time than I ever dreamt was possible.
I’ll probably never get the official diagnosis (yay for lab AND doctor screw ups, long story), but that really doesn’t matter in the long run.
Thanks for being an advocate, for ranting, bringing information, discussing and letting people vent!
Thanks for not bashing those of us who sometimes feel like we’re not coeliac/NCGS enough, but will never ever (NEVER!!!) willingly or knowingly eat the tiniest amount of gluten containing anything.
Thanks for making us belong too.
Thanks for having a gluten free safe haven on the interwebs. Where people are welcome as they are.
Thanks for yelling at the media.
As one of those who was bullied as a child, by the populair kids of course, it really sucks when your favourite television character gives a “gluten free punch line”. It’s not so much the lines themselves, but rather the wast amounts of them. Everywhere. Like all those innocent comments, that teachers didn’t thought mattered. But each time you feel like you matter a little bit less. Are a little less human than they are.
In other words, I have this not-so-strange fear that society is teaching children that it’s okay to bully children who are gf. As well as teaching gf children that they’ll have to quietly accept it. We all deserve better than that.
Sorry for the mini-rant.
Thanks for yelli,g at the media – can write it twice, right?
Thanks for having a space where ranting AND caring are encouraged.
Thanks for being around.
Thanks for saving my life.
Thanks for giving me some of the tools for me to save my life.
18 months ago I never thought I would’ve made it till the following Christmas. I am still here, 25 years old and still getting used to the notion of having a life.
You’re thanking me?? Thank YOU. I needed that. So glad you are on road to recovery. Welcome to your life.