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14 Comments

  1. 1

    GFFlChick ~ Wendy

    Yep, when I go on an eating out binge – let’s say over Christmas…it will get me every time to some extent. The brain fog for over a week is soo not worth it. Off to an unfamiliar Greek restaurant tonight with friends and I may just pre-eat and sit and chat.

    Reply
    1. 1.1

      The Gluten Dude

      Sux…doesn’t it? Good luck tonite!

      Reply
  2. 2

    GFFlChick- Wendy

    The brain fog – why yes! The eating out – of course!

    Luck Tonight – thank you! I pray now at restaurants. Wonder if we do a group prayer before the meal if that would help? I think they dance on the tables there…. Maybe I’ll do a Food Dance! :)

    Reply
    1. 2.1

      The Gluten Dude

      I think you’re supposed to step on a wine glass for good luck in Greek tradition. Perhaps you should bring your own though.

      Reply
  3. 3

    Erin Smith

    I think the best thing my doctor ever told me and my family was that you can NEVER outgrow Celiac Disease if you truly have it. I’ve met too many adults that were diagnosed as children and then told that they would outgrow Celiac. These people are very ill adults. You cannot outgrow Celiac. I think your body can heal itself and then you start to feel better. As someone with Celiac for 30 + years, I know how it feels to feel great but never did I even think I outgrew Celiac.

    Reply
    1. 3.1

      The Gluten Dude

      Perhaps it’s wishful thinking on the parent’s part, over-protective parenting or ill-advised doctors. Either way, the sooner somebody knows celiac is a life-sentence (for lack of a better term), the better off they are.

      Reply
  4. 4

    Erin Smith

    Historically, it seems like doctors thought Celiac was a childhood disease that could be outgrown.

    Reply
  5. 5

    Sandra

    My mom and I both have Celiac. She was diagnosed in her forties, I in my early twenties.

    When my mom was first diagnosed, the Nurse at her work was in shock because she thought it was a childhood disease. (This is 10 years ago)

    She went to specialist (recently)for a check up and he actually told her that the GF diet had “cured” her and that she was Celiac free. This is a huge problem in my view as it will confuse and mislead people into eating gluten again.

    I really wish there was some sort of standard to bring Doctors up to speed on Celiac Disease and the Myths associated with it.

    Reply
    1. 5.1

      The Gluten Dude

      Really? A specialist told her that? I can’t believe it.

      The information is out there if the “specialist” is not too lazy to educate himself on celiac disease.

      That’s unbelievable.

      Reply
      1. 5.1.1

        Luna

        It doesn’t surprise me at all. The unbelievably wrong information that I have heard from specialists and GPs alike is mindblowing. Several doctors have told me that I was too fat to have Celiac disease, that CD doesn’t cause constipation, that spelt is safe, that small amounts aren’t damaging… My kids’ pediatrician told me that kids outgrow it all the time. My uncle was told by his GI doc (and still believes) that he can eat gluten as long as he has no symptoms. When the symptoms reappear he should cut it out again for a while. *headdesk*

        Reply
        1. 5.1.1.1

          The Gluten Dude

          Your uncle’s GI should have his license revoked!

          C’mon industry “specialists”…educate yourselves. We’re the patients. Your the doctors. We’re supposed to depend on you. At least, that’s how it’s supposed to work.

          Reply
  6. 6

    Sandra

    Yeah, my mom could hardly believe it as well. Thank goodness she knows better!

    There is so much misinformation out there and not enough public awareness. These days it seems like everyone is talking about Gluten Free like its a marketing tool. Problem is, they are doing so without correct information. A national TV program here in Canada had a fitness “expert” tell viewers that Spelt and Kamut are gluten free. Outrageous!

    Reply
  7. 7

    Erin Smith

    I like to say I am my own best advocate.

    Reply
  8. 8

    Heidi Larson

    let’s say I was diagnosed with what was called ‘Children’s Celiac’ waaayyy back in the 70’s. At that time, everyone thought there were two different types: the kind you outgrow and the kind you don’t. According to my mother, my brother and I both outgrew it by the age of 5.
    My allergies have been progressively worse the last few years, but no wheat allergy comes up from the prick tests. HOWEVER, now I’m seeing that you can’t grow out of Celiac’s and I should eliminate gluten.
    Thoughts? input? suggestions? I don’t want to get obsessed, but thought I would eliminate for say, a couple of weeks.

    Reply

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