Somebody posted this video on Twitter yesterday and I must have watched it 10 times already. It speaks volumes not only to the difficulty of having celiac disease, but to the stigmatism sometimes attached to it.
(If you can’t see the above video, here it is.)
Here are some of the highlights:
First off, I love the instrumental “How to Save a Life” by the Fray as the background music. It just seems to…fit.
:09 – “I hate when people call me a picky eater.“
(I will never understand the cruelty and outright bitchiness of so many people in this world.)
:23 – “Being a picky eater implies choice.“
:40 – “My only criteria my food must meet is that it not be poisonous.“
(We’re not asking for much.)
:50 – “The breadth of foods that fall into the category of poisonous is extensive.“
(I love the terminology. Celiac is NOT an allergy.)
1:16 – “Pre-diagnosis, I was stigmatized for being ill.“
1:20 – “Now that I have finally achieved health by adhering to my gluten-free diet, I find myself again being stigmatized; this time as a picky eater.“
(And this is where my heart begins to break for her. Why must we insist on “labeling” people??)
1:40 – “It completely trivializes my condition. To equate someone with celiac…to a binge dieting LA type is insensitive and counter-productive.“
(I think you know how I feel about this.)
1:55 – “Can you even imagine berating a diabetic for not eating sugar?“
2:03 – “Why can’t celiacs have the same level of understanding and respect?“
(Why indeed? Mostly because it’s associated with “diet” so many people view it as that.)
2:27 – “No one likes the girl at the birthday party who doesn’t eat the cake.”
2:34 – “I’m always THAT GIRL and I really wish I wasn’t.”
I think I speak on behalf of the entire celiac community when I say I wish you weren’t too. But thank you for this video and for helping to get our message out there. Hang in there!