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31 Comments

  1. 1

    Kari

    I feel his pain! While I am a civilian, I am a military contractor stationed in Japan. I also got my diagnosis here. Unfortunately, though, my doctors haven’t been nearly as knowledgeable. It’s been a huge struggle, physically and emotionally, with the military not really having the motive and ability to help people like us!

    Reply
    1. 1.1

      Celiac Soldier

      Hi Kari,

      I’m so glad you got your diagnosis after all. As you probably now know, we are basically on our own. We can go to all the doctors and nutritionists we want, but celiac disease is a challenge we can become more educated on than most any other health care professional seems to be, short of maybe some of the true celiac specialists around the country.

      Either way, you’ve got us, the rest of the Dude Crew. There’s enough quality material here to help us stay away from gluten, and as I mentioned before and maybe even more importantly, stay laughing.

      Stay dedicated. Don’t cheat, ever! It’s never ever ever ever ever worth it!

      Celiac Soldier

      Reply
      1. 1.1.1

        Kari

        It’s nice to know there are others out there! The new doc I was assigned to tried to reneg my diagnosis for celiac as well as my allergy to corn, and it took months of working with Patient Advocacy to get a new doctor assigned to me!

        I’m three years into being gf now and it’s gotten more manageable, but it’s so hard being in a remote Japanese town with a disease nobody knows anything about! We are trying for a transfer so we will see how it goes! We will definitely miss Japan but it’ll be nice to be able to shop in a real market again and see specialists who know what they are doing!

        Reply
        1. 1.1.1.1

          Celiac Soldier

          Kari,

          Boy, do I ever understand your struggle. Rice should be gluten free, meat should be gluten free, vegetables should be gluten free, etc., etc., etc…. That’s our life right? Lots of “shoulds.” But are they really?

          Best of luck on the transfer. I am somewhat familiar with the transfer process based on family hardship as a uniformed Soldier, but I’m not sure what it’s like for you contractors. I did learn over the course of my military career, that I never had to accept the first answer. The printed regulations can be your best friend. All too often, it is possible to call your commander’s bluff, if you are familiar with the actual regulations.

          I really hope it works out, but if it doesn’t, I am confident you will make it through!

          Don’t give up and don’t give in!

          Celiac Soldier

          Reply
  2. 2

    Tina

    I’ve never gotten very emotional reading about celiac or other people’s experiences with it, but this seriously wrenched my heart! Thank you, Celiac Soldier, for serving and protecting our country, all while living in your own version of celiac hell. And thank you, Gluten Dude, for sharing this letter. I’m a stay at home mom and student, and I always feel like such a loser when I’m locked in the bathroom or struggling to stay awake after I’ve been glutened. Knowing a decorated soldier shares the same struggles makes me feel more normal and not so “less than.” Thank you both!

    Reply
    1. 2.1

      Celiac Soldier

      Good morning Tina,

      I’m so happy this touched you. I did not expect this type of reaction. Writing that piece was extremely emotional for me. I felt like I had to live through the whole thing again.

      I think we celiacs too often allow ourselves to feel lonely when we have each other just a few clicks away on forums like The Dude’s. There is something about this disease that shames us, and we can’t continue to allow that. We deserve better.

      Don’t give up, and don’t give in!

      Celiac Soldier

      Reply
  3. 3

    Hap

    Celiac Soldier

    Thank you for your professional dedicated service! Also thanks for sharing your celiac story in such detail because it’s vital for others to appreciate the insidious long term progressive nature of celiac disease. It also helps each of us tremendously to know we are not in this battle alone. Much thanks always to GDude for providing this forum.

    Sorry for your suffering because it took so long for you to receive your Dx. I understand your plight with the military red tape. (I take my Dad to VA, which provides very caring & professional treatment for him but with plenty of red tape.)

    One of our Celiac NP advocates tweeted an article this morning which concluded, “patients must become their own advocates to receive the level of care that is necessary for their health”. If I had not been a civilian 50+ yr old attorney w/ a NP who knew me & cared and who sent me to a young knowledgeable GI Dr who listened, I’d have died before receiving my CD Dx. I stopped eating gluten 31 days before my endoscopy & still had enough villi damage (and 3 types of cancer) to receive my Dx after being undiagnosed for 22 yrs. My prior doctors and NP cared and tried their best but simply did not know that gluten was progressively causing all of my ailments, which is why your CD advocacy is so very important.

    Welcome back in the land of the free & home of the brave, much thanks to the men & women of our military like you, and especially welcome back into the land of the living & healthy thanks to caring physicians like Major Bahk!

    Reply
    1. 3.1

      Celiac Soldier

      Hap,

      Thanks for the encouragement. Insidious is the perfect word. And “patients must become their own advocates to receive the level of care that is necessary for their health” is perfectly stated. I hope Kari read that, and that it sinks in. It’s the ultimate reality I have learned to accept. It is soooooooo easy to let yourself sink into a sort of hole, and be depressed and feel sorry for yourself, but I’m not giving in anymore.

      I’m so sorry for your cancer diagnosis. I lost my mother to cancer a month ago. I now know first hand what it feels like to watch that disease swallow somebody’s whole existence. I do know that in my mother’s case, she was already fairly weak overall, and she just didn’t have much fight in her. I sense that you are strong and that you will not give up easily!

      Keep fighting!

      Celiac Soldier

      Reply
  4. 4

    CD

    Great Celiac story! Reading this story shows just how far-reaching the lack of knowledge and compassion is surrounding Celiac disease. I am not in the military, but as a Celiac who suffered severely for 20 years before getting a diagnosis, I can personally relate to this story. Years of doctors, years of misunderstanding, lack of compassion, frustration with not being taken seriously and just told to go suck it up, it’s all in your head, it’s enough to make anyone crazy and depressed. Everyday I am so thankful and feel so lucky to finally know what was making me sick for so many years. If I had not found out when I did I could have died. Celiac disease continues to be grossly misdiagnosed and misunderstood, but for those of us who finally know what is wrong, the gluten free diet is truly a life changing experience and for me personally, I finally know what it is to feel healthy for the first time.

    Celiac Soldier, thank you for sharing your story. I’m so glad you finally got the answer you were seeking no matter how difficult that answer was. Wishing you health for the rest of your years.

    Reply
    1. 4.1

      Celiac Soldier

      CD,

      Thanks for reading, and for supporting GDude’s site. It is quite an experience having a condition that is so tough to deal with physically and mentally, but one that just makes people roll their eyes or have a confused look. But that’s okay, we’ve got each other, and hopefully as the number of diagnoses grows, public education and understanding will grow, and make us feel more normal and accepted.

      I was at a big name restaurant the other day, and when I asked the waiter about the gluten content in a particular salad, he literally said, “I know there’s no gluten in it, because I made it myself and I didn’t put any gluten in it.” I was unaware til that point that “gluten” was a single ingredient sitting in a bottle on the kitchen shelves that could just be sprinkled onto a salad. Sheesh!

      Keep fighting!

      Celiac Soldier

      Reply
  5. 5

    Christa

    Celiac Soldier… I’m Canadian, but I still thank you for your service. I can’t even begin to understand how awful it must have been to have suffered that long in a system that just couldn’t care less. Though we’ve all had to fight in our own way, no story is without pain. I’m sure you didn’t feel it at the time, but it takes a very strong person to endure what you did.

    All of these stories we read (thanks to people like Gluten Dude who are in a position to share with all of us) serves a reminder for me that we can never take our health for granted, nor can we take the opportunities and help that we have received at some point in our journeys for granted. I thank God every day that I received my diagnosis when I did. Oh I certainly suffered before the diagnosis, I struggled for almost ten years, but my new doctor at the time knew to send me over to a gastroenterologist because my ‘ulcer’ medication wasn’t even touching the pain I was in, constantly. Who has peptic ulcers when they are 15???

    When I was finally sent to get a colonoscopy and endoscopy (yes, very scary for me as well!) it was only after I woke up from the tests that I was told they didn’t even have to do the colonoscopy, the endoscopy showed more than enough for the specialist to be convinced. My bowels and intestines were screaming celiac. Yeah, after all the ‘cleansing’ the day before, I was a little miffed. Heh.

    It has been 13 years since my diagnosis and I’m still learning. Back then I was so lost, I had just gotten married and had to find my own way to figure out what the heck celiac disease was, I know I missed a few things along the way. I didn’t even have my own computer, let alone the resources we have today. It’s a life long struggle, that not many understand so this also serves as reminder for me that I need to continue to fight harder for my own health and stop feeling guilty at times for my disease.

    I pray that your health will continue to flourish, and that complete healing comes soon. It’s a long road, but this community is a tight one, and we are here to support you!

    And Gluten Dude, I’m not on FB any longer, I had no idea. Praying for your health as well, I’m glad to hear you are ok! I think your family has had enough trials for a while, yes?! Hope Dudette is doing well.

    Reply
    1. 5.1

      Celiac Soldier

      Christa,

      You are sweet! And your disclaimer “I’m Canadian, but…” made me chuckle! I used to drive through Canada a few times a year and loved the people. Not to mention I’m a huge hockey fan, and you guys sort of own the world on that subject!

      Luckily for me (?), I had bigger fish to fry than celiac disease during my service, so I sort of stayed distracted. It wasn’t til the very end when I had an easier job assignment that I started to suffer, and by then I was able to receive more attentive health care.

      Ulcers at 15. What in the world were your doctors thinking? It’s amazing. You can go to college for 50 years studying high level science and medicine, but it sure doesn’t improve a doctor’s level of common sense does it?

      You said it perfectly. “It’s a life long struggle, that not many understand so this also serves as reminder for me that I need to continue to fight harder for my own health and stop feeling guilty at times for my disease.” It just makes me want to cry when I hear another celiac talk about feeling guilty. Not wanting to go to dinner with our family, because we don’t want to make a fuss. Not wanting to go to a Thanksgiving dinner, because we don’t want special accommodations. We don’t want to be someone else’s problems. Sad.

      Complete healing is something I honestly still fear may never come. I hate to say that, and I don’t really sit around feeling sorry for myself much anymore, but i’m still struggling. I am actually on day seven of an elimination diet. Yeah, the one I should have been on over a year ago. The first few days were tough, but I’m hanging in there, because I have to. In Afghanistan, we patrolled the mountains on the border of Pakistan. And there were many times I swear I prayed for death because I was so cold and so hungry. Little did I know I’d look back and think that was actually easier than dealing with the early stages of celiac disease after diagnosis. Amazing.

      Best wishes, Christa. I’m so glad you are well on your way to being healthy!

      Celiac Soldier

      Reply
  6. 6

    Claire Fisher

    What a story! Thank you for your service. I am surprised you didn’t get a medical discharge! If Celiac is known before entering the military or one of the academies, there is no admission! Dr Fasano, MD, author of “Gluten Freedom”, mentions a patient wanting admission to the Naval Academy. Met all the requirements but was denied because of Celiac!

    I have traveled with Celiac Disease, but I am not sure I would attempt a trip to Asia unless it was on a cruise ship. The cruise ships can handle the diet!
    It takes awhle to heal and replenish all the nutrients your body could not absorb. Stick with it. It does get better. Sad, but the best tasting, safest food comes from your own kitchen.

    Reply
    1. 6.1

      Celiac Soldier

      Claire,

      Serving was an honor. About the medical discharge, it is sort of surprising. I was actually working on my clearance papers to transition out at the time, but either way and like I mentioned, Major Bahk was amazing, but the Army simply had no protocol. You would think that when I was diagnosed, it would have automatically triggered a series of events to help me deal with the disease, and also provide my chain of command some heads up on what they needed to be aware of. But none of that happened. Looking back it was the strangest thing. I got my diagnosis, I walked out of Major Bahk’s office, and went on my merry way. I literally went back to my little Army barracks room and sat on the bed staring at the wall, no idea what to do. Going through that experience made me wonder, what if I had been diagnosed with cancer. Part of me thinks the exact same thing would have happened. I have some aspirations of advocating for some change with the military health care system – we’ll see…

      Thanks for the encouragement! And you are darn right about the best food coming from your kitchen. It took awhile to learn, but I changed my whole way of thinking: it’s not “what CAN’T I eat?” it’s what CAN I eat?”

      Strength and honor!

      Celiac Soldier

      Reply
  7. 7

    Deb

    My son is in the Army. He refuses to acknowledge he needs to get diagnosed because he feels he would be forced to resign if it was found that he did have Celiac. He has migraines a lot, gains weight easily (that is what happened to me, too), lost most of his hair by the time he was 28, has had high blood pressure since about age 34, and of course suffers from the wonderful emergency trips to the bathroom most all of us experience. He was diagnosed with melanoma last year. Stage 1. They said they got it all. He has 6 years until retirement. I hope he can get diagnosed then. Hang in there, soldier. It gets easier. Not easy. Just easier. You made it through the Army, bless you. Now you can begin to get your life together. We have a lot more fighting to do for Celiac Disease patients. Glad to have a person like you in the ranks. I mean …not glad you got the disease!! Just glad we have another fighter who realizes while we have won many battles for Celiacs in the past 10 years, we still haven’t won the war.

    Reply
    1. 7.1

      Celiac Soldier

      Hi Deb,

      That darn bull-headed Soldier of yours! I feel his pain. He’s given so many years of his life to the Army, and just wants to finish it out on his own terms. I don’t blame him one bit, and I don’t blame you for wanting him to get the diagnosis. Here’s a little heads up: tell him the VA will rate him for it. If he has questions on that, have him email me directly at celiacsoldiers@gmail.com. If you mention the VA rating, I bet he will listen. I would understand if he didn’t want to expose it to the military doctors before he is ready for retirement, but tell him he has to plan on getting the diagnosis right before retirement so the D.O.D. has it on record.

      Thanks for the encouragement, and best wishes to you and your little Soldier.

      Celiac Soldier

      Reply
      1. 7.1.1

        Deb

        Hey CS. Thanks for the addy. I will pass it on to my “little Soldier” lol I have to laugh because he’s a grown man with a wife and 3 kids, and not a very “little” soldier at all. But because I am still Mom, I can’t help wanting to do anything I can for his health. I understand his reasons, totally, for wanting to hang on until retirement. Thank you for the info, and thank you for your service.

        Reply
  8. 8

    Chris

    Celiac Soldier,

    Thank you for your service, and I hope things get better soon. My daughter has struggled with regular medications that may or may not have had gluten in them, and I understand that frustration.

    One thing I’d tell you, and any other member of the Armed Services in your situation, if you’re having a problem with the military medical process, the VA or with any kind of benefit process, you should put together as many details as you can, and contact your Representative or Senator’s local office. They have people who deal with constituent work who might be able to help you before you have to spend more hours with the VA. You may not have any luck with them, or they might not be able to help in a particular situation, but it’s another avenue to go to try to get help. And often they do have good people who understand what it takes to make the wheels move in the right direction. Just something to try. Good luck.

    Reply
    1. 8.1

      Celiac Soldier

      Chris,

      Serving was my pleasure. Well, most of the time! Maybe “honor” is a better word – it was truly that!

      I’m sorry about your daughter. “May or may not have” – that’s our life, huh? What a royal pain.

      I am growing more and more discontent with this whole medicine thing. It’s so completely unacceptable. I feel a fire burning inside me to take our fight to the next level, and I bet the Dude Crew would be willing to help. In my case, I believe it is especially frustrating because I don’t have a civilian doctor to work with that has access to different brands of the same medicines. Sure, I could go try to pay out of pocket for whatever I want, but is that fair? Is it fair that your daughter’s medications “may or may not” have gluten in them? Me thinks not.

      Well, thanks for the encouragement, and best wishes to you and your family. I can testify that a family’s support is so important in a celiac’s battle. I don’t know your daughter’s age or overall level of education with celiac disease in general, or finding the right medications, but if she needs help, you know she can find it here. I’m rapidly building a solid education on the subject myself, so I’d be happy to help her too.

      Keep fighting for your daughter!

      Celiac Soldier

      p.s. Michael Weber has a lawsuit against the FDA regarding gluten in medicines right now. Most probably know that, but for those that don’t, google it. I’m not sure if The Dude has covered that lawsuit yet or not. I don’t want to hijack The Dude’s website with spam so I’m not including any links here, but you can find it on your own.

      Reply
  9. 9

    camille ortiz

    Wow, thank you for sharing your story!

    Reply
    1. 9.1

      Celiac Soldier

      Camille,

      You’re more than welcome Ma’am. I’m so happy you read it. When I sat down to write it, I never imagined The Dude would publish it, or that anyone would care.

      Keep fighting!

      Celiac Soldier

      Reply
  10. 10

    Jenn

    Thank you for sending in your story! My 12 year old son was just diagnosed. He’s passionate about military history and someday hopes to be a civilian engineer working for the military. I’ll be sharing your story with him.

    Reply
    1. 10.1

      Celiac Soldier

      Good morning Jenn,

      You’re more than welcome. I’m so glad GDude keeps up this platform for us to connect. It was only a few days after my diagnosis in Korea, when one of my family members asked me if I had heard of the GlutenDude. I was still in my super angry reaction stage, so I said no and that I couldn’t care less – (sorry Dude, yeah I didn’t care about you). I was buried in my own misery. So my family kept sending me links to this blog, and articles from it, and I never read them. I don’t recall what it was that finally caught my attention, and it was probably mostly a product of accepting my fate, and not hiding from it anymore, but I finally realized I had no choice but to reach out and become part of the larger cause.

      But I digress…

      It’s strange having lived the Army life, and the front line combat side of it. I tell anyone I love to stay away from it, and that it’s not for them. But I am proud of your boy and I’m sure you are too. I just hate the thought of any other young man or woman facing the things we faced overseas. It’s a hard life, and it’s hard on the family. But it’s an American tradition, and one that I know we need the next generation to take on.

      If you’re reading this website at all, that means you’re a fighter, and that means your son is probably a fighter too. It’s reassuring that wonderful folks like you are raising little fighters like your son.

      I worked with combat engineers and also other types of engineers overseas, and my “little” brother is an engineer for a major defense contractor, so if your son has any questions or needs a little encouragement, let me know!

      Have a wonderful day!

      Celiac Soldier

      Reply
  11. 11

    gen

    Thanks so much for posting this letter gluten dude! And thank you celiac soldier for writing it!

    I’m not sure why it’s so empowering but it really meant more to me than either of you might expect to read this story.

    The incredible accomplishments you managed in such tough circumstances are truly inspiring. I’m currently struggling to have confidence in myself as a person, friend, wife, and employee. I’ve dealt with a lot of cognitive impairment, the last few years especially, possibly from a mix of celiac, thyroid, and hypoglycemia. I find it hard to trust myself while brain chooses to act as my enemy. I know i got through most of my life as a sick person by staying distracted and just having a mind over matter mentality, but it seems more difficult since I realized how far I could fall if I’m not careful. I really need to take a page out of your book and learn to soldier on.

    Regarding the low blood sugar, you didn’t mention whether or not that had resolved, and I had a similar experience, so I thought I’d share. I was misdiagnosed with reactive hypoglycemia nearly 2 years before my celiac diagnosis and told to eat only complex carbs, which kinda helped for a minute, then made things much worse (maybe because I wasn’t absorbing complex carbs due to celiac). I did improve significantly after cutting gluten, but was still having a lot of trouble until recently starting a whole food plant based diet (forks over knives) recommended by my doctor. I can practically feel myself healing.

    Also, 0 blood sugar episodes for the last month, even if I go without eating. That’s pretty significant for me! I tried many different things the last year since my diagnosis, nothing worked like this has. If it’s still a struggle for you, it may be something to consider for a while.

    I hope not to stay off meat forever, because it’s delicious, but can’t ignore the incredible changes it’s made for my health. I promised 3 months to heal which are now up but I think my body still needs some more time. I’m going for 3 more, and may never be more than an occasional carnivore again(we’ll see).

    Thanks do much again for your letter and of course your service!

    Reply
  12. 12

    Jane

    Deb,
    I’m a celiac living on post here at West Point- was diagnosed by an army doc two years ago, our new active duty radiologist is also a celiac and is still on active duty. I believe one can get a waiver to stay on active duty as long as one can perform his duty. Celiac will prevent entry into military however.

    Reply
    1. 12.1

      Deb

      Thank you, Jane, for your insight. My son mentioned that it has to do with his job. He is a Chinook pilot, has been for 9 years, and so his job would not allow for him to be totally GF. That is why he does not want a diagnosis at this time. He also just got to CW3 5 months ago, and he wants no reasons for them to let him loose with only 6 years left to retire. I suppose he just doesn’t wish for anything to ruin his retirement plans, understandably so. He sees me still alive, so probably figures he can hang tough for a little longer lol

      Reply
  13. 13

    Beth R.

    First, thank you for your service to our country.

    Next, I think I must be a little extra emotional lately, or maybe it’s lack of sleep with a new puppy, but your post had me in tears. It could also be the frustration I have over the disregard for my well-being I feel that I am getting from my GI doctor over this past year. He took over for my doctor, who left, and scheduled my diagnosive endoscopy after I had been back on gluten for only 9 days (was g.f. for 3 years.. both myself and my previous GI doc suspected Celiac). So he has dismissed it, due to a not surprising negative result, and won’t consider the symptoms, and the health history.. as the diagnosis is the “golden standard”. Forget that I am still having health concerns, that could be related. Forget that I have pain and symptoms of pancreas issues.. I’m too young, a woman, and I don’t drink heavily, so we aren’t even going to consider that as an option. In the meantime we “could” do a stool sample, but why don’t we just wait and see. Well.. for what? It’s been a year now.. what are we waiting for? I still can’t absorb fat, my stomach still hurts, I still get pain in my shoulder blades.. back.. (my gall bladder was tested.. it’s functioning at the low end of normal, no stones, no sludge), and most days I just want to quit on food, because I am tired of feeling like garbage.

    But he’s the “best GI doctor” we have, and who else would I possibly want to go see? (sigh)

    Anyways… I loved your Dude Crew comment. Like, majorly loved it. I’m going to think of us as The Dude Crew from now on. I love that.

    Keep on keeping on. B

    Reply
  14. 14

    Donna

    Celiac Soldier,
    Welcome to The Dude Crew where everyone searching for answers to pain & humiliation with diagnosis and peaceful healthy food, is family. There is no discrimination or borders with CD, but full disclosure: I am Canadian, eh? Although I am a civilian with universal healthcare, it was 16 years for my diagnosis, from my pack of specialists so I also have a personal relationship with a few friends of CD.
    My blue chip fortune 500 employer was also unaccommodating & unforgiving of my sudden doctor appointments & tests (ultrasound, MRI, endoscopy & colonoscopy) during working hours on short notice in prime vacation season at month end. And no they absolutely do not want you at work sick, but they do not expect you to ever call in sick either. I was cross-examined (ironically by a diagnosed Celiac) who told me to take vacation time for my medical tests after being made to feel like a hypochondriac by explaining in detail all the tests and exactly why I would not reschedule due to my symptoms as I needed a diagnosis….It was frowned on when I called in sick the day after the colonoscopy….some vacation! The point being military or private sector, employers do not get it!
    Having reservist family who have completed 3 tours in the Middle East, I had to share with you, his strategy regarding food as a vegetarian who turned carnivore for the tours to survive…….He would take the bus and tour the camp by “country” and trade rations till he found the ones with that suited him best! (I think he mentioned the Brits having some of the best.) I thought this was odd but genius when I found out his civilian wife did the elimination diet for 2 years to heal her body and identify her major environmental allergies and the one to food—ALL MEATS. Little did I know 10 years later I too would be doing the elimination diet to heal and identify safe foods, and yes I come back to basic bone broth after a glutening so I can heal and be nourished.
    Now, I am not sure what it would take or if it is possible but…..I thought I would share given your mention of meds, a pharmaceutical manufacturer who was the first to certify GF with the Canadian GFCP as pharmaceutical manufacturer in Canada, Mint Pharmaceuticals Inc.
    So, Celiac Soldier, I hear you and feel your pain in a very personal way. Do not give up; get healthy & go kick celiac ass! You will do it just like surviving Iraq, one step, one hour, one day at a time. Oh, and I got your six in the Great White North!
    Thank you soldier your service. You are important…..and not forgotten.
    Need helps support or just want to talk…..the Gluten Crew is on duty.
    Till next time,
    Donna

    Reply
  15. 15

    Ames

    Thank you for writing this. I am a former Marine and I went through hell and humiliation. I wasnt diagnosed until after I got out. There are still so many days I have a hard time not beating myself down for “being weak” lately it’s been really hard and I just want to give up but then I realize I need to know how to combat this to be an example for my baby boy in case that he has it too. I just appreciate hearing that I’m not alone and to keep fighting. Although I’m young this Devil Dog is worn out.

    Reply
    1. 15.1

      Gluten Dude

      Hang tough Ames. You’re anything but weak.

      Reply
    2. 15.2

      Shawn

      I search high and low for encouragement when I’ve been “glutenend” my search always brings me back to this website. There’s not another community like it.

      Thanks to Celiac Soldier for writing his initial letter and then replying to so many comments. He (I believe he’s a he,lol) articulated well and incited many emotions and struggles: “shame”, ‘self advocate’, and now you Ames saying “being weak”. A good friend told me “It’s okay, to not be okay.” I still lie about being sick sometimes, but that truth is mentally liberating when I choose to accept it.

      What also resonates with me is that Superman has kryptonite and I have gluten. Neither has the ability to make him or me inherently weak.

      Reply

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