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23 Comments

  1. 1

    ihavewhatnow

    Adjusting to something that overhauls your life happens in incremental and mostly unseen stages. You can’t envision it initially and therefore you convince yourself that it will never happen. I am 5 months in myself and can now join the cast of veteran witnesses in testifying that this process DOES happen.

    It starts with making small, good decisions everyday like staying gluten free, researching your condition, pushing to maintain your responsibilities of family and work and taking care of yourself when you can. These small decisions that seem tedious every day do lead to physical recovery and mental acceptance.

    It also helped me to imagine all the folks in the celiac community, getting up everyday and facing the same challenges I have to face. That sense of shared experience helped me form a new identity and comforted me greatly.

    The first brick in the wall, has to be Gluten Free…..without that your body and mind will not be strong enough to help you with the rest.

    Reply
    1. 1.1

      Gluten Dude

      Well said. Short term goals always lead to long term successes.

      Reply
  2. 2

    Dana

    Awesome post, Gluten Dude. So much of it is in the heart and in the head. This is spot-on.

    Reply
  3. 3

    Terry O.

    My heart just goes out to the teens who have to go gluten-free without family support. Not sure what else to say, but it gets better. GD has lots of good advice, so you’re in the right place.

    Reply
    1. 3.1

      PrincessPuppy815

      Yeah. I’m lucky enough to have a very supportive family. I have been gluten free for 6 years, since I was 8

      Reply
  4. 4

    Eve

    I started a business for people who are struggling with the gluten free lifestyle. I realized there was a strong need for somone in our community to work with people one on one and say this is how to live gluten free. I don’t want to advertise here, but I have helped people who struggled for over a year go 100% gf. I really just want to help my fellow Celiacs.

    Reply
    1. 4.1

      Donna V

      Eve,

      We need more people like you. :)

      Thank you for doing what you do.

      Reply
      1. 4.1.1
  5. 5

    Donna V

    GD,

    Excellent post & advice……but bottom line is YOU have to be ready to take responsibility for your health GF bite by bite.

    I would add contact the celiac association website or local chapter…..dietician. It does get easier, but is starts with YOU!

    Warm GF regrads,

    Reply
  6. 6

    Holly

    I’ve eliminated not just gluten but many other foods from my diet for an entirely new nutrition protocol and it’s like night and day with how I feel. I was trying to explain to my parents the WHY. I think they got it, but kept asking me if I missed “real” food. (“real” food is actually what I’m eating now… processed food does not equal real food just saying). The only thing that I really really really really crave and miss is “real” NY style oooey gooey cheesy pizza. Everything else is meh. Bread, cupcakes… nothing even phases me at this point even if it’s in front of me. My Dad made a very interesting comment. He said, “your body has learned to have your back.” Your #1 is it. It’s all it. My hope and prayer for this young man is that his body starts to have his back very soon.
    Hugs, Holly

    Reply
    1. 6.1

      Gluten Dude

      Yep. I’ve given up almost all dairy, soy and corn. Although the Dudette had real pizza last night and oh my, did it look delish.

      Reply
  7. 7

    Russell T. Pott

    It can be difficult for anyone having this disease, but I believe it’s much worse for young people. I was diagnosed a little over a year ago, and shortly after, we had our kids tested just to be safe. My teenage daughter tested positive for CD (sorry, babe). I do most of the cooking, so there’s never a concern about whether or not what she’s eating is safe. For now. When she moves out and goes to college, well, that’s another story. However one of the things I’ve managed to instill in her is the importance of learning how to cook. If you learn to cook, you have the power over what goes in your body. Start with relatively simple things, like scrambled eggs or omelets, then branch out. I realize this may be easier said than done for a 16 year old, but about once a week my 14 year makes dinner for our family. It’s fun and more importantly, it’s good experience. Plus it gives me an opportunity to spend time with my girl. They don’t stay young forever. Sniffle.

    For the movie trivia, Blazing Saddles. So wrong, yet so funny.

    “Daddy love Froggy. Froggy love Daddy? Ribbit.”

    Reply
    1. 7.1

      Emily

      Are you my mom with a different name?

      Reply
      1. 7.1.1

        Russel T. Pott

        Heh. Since I’m a guy, that would be highly unlikely.

        Reply
        1. 7.1.1.1

          PrincessPuppy815

          Yeah, but my mom is teaching me to cook and I’m 14.
          I changed the name I’m using

          Reply
  8. 8

    Michelle

    When my daughters were diagnosed I was advised to meet with a dietician. The best advice she gave me was to keep it simple at first… She said there was plenty of naturally gluten free things to feed my daughters while I got a handle on the GF diet. She said meat and eggs and fruit and vegetables were all gluten free so start there. So my advice is to start simple and expand the diet slowly.

    Reply
  9. 9

    Emily

    Go to a gluten free camp. It helped me a lot. Then again, I am 14, but I’ve been going there since I was 8.

    Reply
  10. 10

    Didi

    Dear Gluten Dude,
    Off the subject, but just to let you know what happened to us this past weekend. We are extremely careful where we eat when we go out since we were diagnosed with Celiac over a year ago. We have been living the gluten free life with terrific success and are feeling and looking great. We took a couple who are friends out to dinner at a local, well-known, rather pricey restaurant, which was our friends’ favorite place. We have eaten there before, but not since both of use have been diagnosed with Celiac disease. I called the restaurant to make reservations and said that two of the four people had to have gluten free food as we had Celiac and the answer was “absolutely no problem” that they could accommodate us. We were seated upon arrival and after informing our waiter that two of us were Celiacs, and we had to have everything gluten free, the owner came over and assured us that our food would be closely monitored by her personally in the kitchen to see that our food was completely gluten free and no cross-contamination would occur. So we relaxed and my husband ordered tenderloins without the mushroom gluten sauce and I ordered the grilled salmon without the sauce. We both had steam kale with just butter and nothing else. Our friends ordered their dinners and we all got salads. Our salads where fine and gluten free with no dressing and were delicious. When the entrees came, the tenderloins my husband ordered were full of mushroom gravy and fried breaded potatoes – this was NOT the gluten free dinner he ordered. He called the waiter over and re-explained to him about the gluten problem, gave him a gluten-free sheet to give to the chef and the dinner plate was taken away. When my salmon came, I noticed there was a sauce on it and I questioned the waiter and he said it was just butter. We all started eating, except my husband who was waiting for his gluten free dinner to come. My salmon was delicious but the “just butter” had a taste like there was seasoning in it and it was thicker than regular melted butter, but since I had been told that it was definitely gluten free, I ate it. My husband’s dinner came without the sauce and steamed kale and he finished his dinner. To make a long story short, we paid the bill which was over $300 and all left and went home. After about 45 minutes of arriving home, I had a horrible headache, severe stomach cramps and really bad diarrhea. I knew I been “glutened” and probably by the “just butter” sauce on the salmon. For the entire night and into the day yesterday and this morning I have had stomach cramps and diarrhea. I spent a horrible, sweaty, sleepless night full of pain. We will NEVER eat at this restaurant again. Beside the fact that it was super expensive, the owner lied to us about making sure our food was gluten free. You can never really trust what people tell you any more. This is why we tend to not eat out very much since we were diagnosed, because people do not take you serious and think that having to live gluten free is just a fad. We usually take our own food when we are invited to places, because we do not want to risk our health. Thanks for letting me vent. Have a great day. My day is getting better, but for the past two days it has been Hell!!!

    Reply
  11. 11

    Jersey Girl

    GD-

    This post as usual bleeping rocks. For this young guy to be able to find you and have this resource has changed his life. Changed all of ours really. I would just add that I think even though I have had some really awful I can’t do this why is god punishing me type episodes, I wouldn’t trade it. It’s made me stronger. Use your voice, it’s powerful. If something doesn’t seem right don’t eat it. Make kind bars your bestie (Tito’s for us much older types).

    Xo-
    Jersey Girl
    ——————————-
    “The first day I can remember looking in a motto and being able to stand what I saw was the day I had a guitar in my hand.”
    Springsteen

    Reply
    1. 11.1

      Jersey Girl

      Should be mirror not motto. Damn you auto correct….

      Reply

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