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Celiac.com: A Tragic Tale of Good Intention$ Gone Awry


  • Stefapoo
    Participant
    Stefapoo

    Hi Kayli,

    Congrats on your one year anniversary of finally figuring out what’s going on with your own body! I wish I had known sooner. I appreciate the reply. :)

    Stef


    Stefapoo
    Participant
    Stefapoo

    Hello!

    I’m from Utah as well. Davis County. I don’t have kids, but I do have a fiance and a dog so that’s pretty much the same thing, right? I’m 29 years old and have been dealing with my issues since I was 12. However, I didn’t go GF until 5 weeks ago when I figured out after extensive research that this had to be more than IBS and Lactose Intolerance since I am a miserable soul. I got tired of relatives waiting on me to use a bathroom right after we eat so we can leave a restaurant. I also got tired of having my fiance waiting on me so we could leave the house, or the park, or the store or wherever else we were when it kicked in. I had to take 8 imodium just to make it to our camping spot a few months ago because there were no toilets in between the house and where we were going. I refuse to go on my fiance’s brother’s new boat he got and nobody understands why, but it’s because I won’t be near a toilet and my nervous stomach kicks in because of that.

    I’m having a hard time finding a job because of my CD. I was denied working for TSA at the airport, and have been denied a million other jobs that required a physical because I have a history of “stomach issues” on my medical history. I can’t and won’t lie about it if they ask because it’s a part of who I am and may or may not cause trouble when I’m working. When I was interviewing with TSA, I didn’t know what I had. I’ve been 5 weeks GF and I’m still not trusting my stomach enough to leave my home very often. I was trying to find work-at-home jobs while I focused on my health, but I’m not having much luck there either.

    I’m wondering if anybody has any suggestions for employment for my situation? I’m so tired of looking for a job that would possibly accommodate my stomach issues and the need for a toilet immediately while I sort out my issues. I am still figuring out what makes me sick and what doesn’t — besides the gluten. I also have lactose intolerance and IBS. So, Olive Oil, bacon and all that other good stuff just kills me. No more cheese, no more butter, no more, no more, no more. I have to hand it to people with CD who aren’t depressed and have employment. I am doing all I can.

    I have not cheated once on gluten in the past 5 weeks and found it surprisingly easy to go GF, but I’m so used to having to run to the toilet that now I get a nervous stomach as soon as I leave my home. I’m so nervous that I’ll have to use the toilet and be stuck in traffic and I refuse to go anywhere that doesn’t have a toilet. Even though I’m working on it, I still have that nervous stomach that kicks in whenever it feels like it. I’ve tried meditation, eating the most bland food ever, taking apple pectin, imodium, other vitamins and things, pepto, getting enough rest, exercise, eating at the same time every day, etc. All of this and the anxiety and nerves of being in a job interview and having that kick in just send me into a nervous stomach hell. I’ve resorted to not eating at all if I know I need to leave the house within a few hours. My entire life revolves around food and a toilet. So much fun! Please tell me somebody else started out like this and it got better? I need to work, I am so bored with life in general.

    I’m glad there are a few Utah people in here. :)


    Stefapoo
    Participant
    Stefapoo

    Hello!

    Just thought I’d find a good spot on one of these forums to plant myself and let everyone know I’m new here. I’ve been coming to this website for a while now and finally took the plunge to sign up. I’m glad I did! I’m 29, I’ve been gluten-free for 3 weeks today. I’m also lactose intolerant and I have IBS — so much fun! I don’t trust my stomach still, so I don’t leave the house much. I’m so glad I figured out what was wrong with me because it really affected me as I got to the point where I couldn’t leave the house unless I hadn’t eaten or it’d been about 4 hours after I’d eaten anything. I’m still struggling with that, but I’m trying to learn to trust my gut — literally. No Olive Oil, Soy, Dairy, Grease, Gluten — no bacon! No eggs! I’ve been dealing with this for 17 years.

    I read that Celiac Disease is genetic. Please, anyone, correct me if I’m wrong. I’m still learning about everything. My Mom was diagnosed with Colon Cancer in 2010. She’s always had bathroom-related issues (the opposite of my liquid issues) and said she never could go to the bathroom normal. Her entire life she was stopped up. She got rid of the Cancer through surgery, but it came back in 2014. This “bout” of Cancer she has now is inoperable. She did radiation and is considered to be in remission. Now we’re thinking she was Celiac this entire time, and we weren’t shocked when we read that a symptom of Celiac (if left untreated) is Cancer. So, needless to say, I got my Mom to go Gluten-Free as well. I wish all the Doctors both she and I had seen over the years (her longer than myself, obviously) would have been able to tell a whole lot sooner. It’s also highly possible that this is completely unrelated, but my Mom doesn’t think it is. Of course, I’m not trying to scare anyone so please don’t take it that way. Just merely sharing my story.

    I’m so glad to know I’m not alone and I’ve really enjoyed reading all of your stories. I feel for all of you so much in every aspect of this hell.

    Stef

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