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Struggling with Celiac? 41 Ways to Live a Better Life.


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    Did they say the heart failure was related to celiac, or was the celiac identified while they were running other tests?


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    I appreciate the responses, but I was specifically asking about certified gluten free K Cups or coffee. Yes coffee is supposed to be gluten free, but there is ample room for cross contamination and whenever I’ve contacted a place like Keurig or a similar company, it is clear cross contamination is likely occurring. My celiac has reached a state where I am having very extreme health issues, so I am in a position where I will either need to eliminate coffee from my diet or find a company that is reliably (and this is the key word: reliably) gluten free.

    Just want to point out, our complacency on how loosely companies use the label gluten free, especially those making products like coffee, is part of why so many of us continue to get sick. Very tired of asking specifically for information on certified gluten free and getting “coffee is gluten free” as a response. Cross contamination is a huge issue with coffee. If you don’t worry about cross contamination, that is your right. but for many of us, it is a big problem .


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    I checked and the metronidazole tablets from this manufacturer do not contain wheat binders. The issue isn’t gluten ingredients being used in the product. It is more one of cross contamination and a lack of procedure to prevent it.


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    I used to go to Burtons, but noticed I experience symptoms occasionally after eating there. I understand they do better than most places, but when I contacted the restaurant about some of my concerns, I found them very dismissive. I pointed out some obvious areas where cross contamination might still be occurring and made suggestions on what they could do to reduce the risk for celiacs. For example they don’t segregate silverware, and often there are bits of dried food on my forks and knives. It has been washed but if that dried food is from pasta or bread, it could produce a reaction. They completely dismissed the idea and insisted they’ve been doing it for 25 years or more and know what they are doing (this was from the owner to me in an email I believe). I wasn’t trying to be hostile or complain in my email, I was saying how much I enjoyed it and just had a few suggestions, but the owner got incredibly defensive. I think if you are a celiac patient I wouldn’t recommend eating here. I didn’t have a problem every time, but I did have a problem some of the time (which is too much).

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