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Viewing 9 posts - 1 through 9 (of 9 total)


  • Jenuine
    Participant
    Jenuine

    CJ, I am just seeing this now and hope you have some answers.

    My daughter was diagnosed at 5, so my answers might be a little different. Every person is different. My daughter noticed a difference the first day without gluten. Not 100% cured, but not sick all the time either.

    Why would you pull your kid out of school? Is he getting teased for being in the bathroom? If you send your kid in with safe food, they should be fine. I sat down with our food services team and now they make safe, healthy lunches for my daughter. Thankfully, the school nurse already knew about celiac and helps me when food is brought in the classroom. I would think it would be harder socially to pull your kid out of school.

    I hope things have settled down for you. Those first weeks of diagnosis can be very emotional for everyone. Can you give us an update? I am happy to help in any way. Hang in there.


  • Jenuine
    Participant
    Jenuine

    If I am not too late, we had a great time at Disney eating gluten free. We loved Raglan Road in Downtown Disney so much that we ate there twice. They have a dedicated deep fryer so they offer GF fish and chips that are out of this world. They really know their stuff. We felt very safe and the food was amazing.
    http://www.raglanroad.com/

    Right next door is Erin McKenna’s bakery, which was also excellent. Grab a dessert and sit outside, watching the water.

    If you are up for a dinner show, the Hoop Dee Doo was fun. Food was good and safe, as well as fun entertainment.

    We also love Sanaa at Animal Kingdom Lodge. The nan is out of this world.

    Overall, the Disney owned properties were very well educated about being celiac safe. Have fun!


  • Jenuine
    Participant
    Jenuine

    With his brother diagnosed, when was the two year old’s last blood work? They should be checking that regularly. I’d get it looked at, just to rule it out. Good luck!


  • Jenuine
    Participant
    Jenuine

    Some of our go-to elementary school lunch items:
    Fruit topped with yogurt topped with GF granola (she could live on this)
    Cottage cheese sandwiched between cucumbers
    GF pretzels or crackers dipped in sunbutter
    Veggies dipped in ranch dressing or hummus
    GF cereal (she buys milk at school to add to it)
    Hard boiled eggs
    GF bars (Luna, Pro and Kind are current favorites)
    Salad
    Raisins on sunbutter on celery
    Fruit cups (in water, not syrup)
    Apple sauce
    Waldorf salad lettuce wraps

    She loves fruit or veggie kabobs dipped in anything (yogurt, humus, sunbutter, dressing, etc) if I can find the time to make up a bunch for the week.

    Honestly, she doesn’t eat a full lunch (more like a bunch of hardy snacks), but she eats enough to say full until a big, hot dinner. I was reassured by our dietitian that she can eat almost the same lunch every day and still be ok. Find something she will eat and go with it.


  • Jenuine
    Participant
    Jenuine

    Excellent! Thanks Firebucket. Publix was on my short list.


  • Jenuine
    Participant
    Jenuine

    Completely agree! We have been to a few in the Boston area and couldn’t be happier with their cross contamination policies. I attended a lecture by their head chefs and the owner who has a gluten allergy (not sure if it was Celiac specifically). He said he was approached years ago about making GF options available and he said he wouldn’t do it if it wasn’t completely safe and delicious. He sets the bar high and makes it every meal!


  • Jenuine
    Participant
    Jenuine

    My 7 year old daughter was diagnosed about a year ago. Finally feel like I have a handle on it, although the emotional aspects still catch me off guard from time to time. So thankful for moms like SwimMom who helped me learn the ropes a year ago!!


  • Jenuine
    Participant
    Jenuine

    Yup, Dedham.


  • Jenuine
    Participant
    Jenuine

    Hi Kelly, My husband works in Waltham and we go to docs at Children’s Hospital in Waltham. We love to eat at The Chateau (awesome GF rolls, just ask as soon as you sit so they can get them baked for you right away). Not Your Average Joes in Watertown is awesome too. And if you venture to Burlington, Burtons is great. You are in a good area to eat out. My daughter was diagnosed last year and I remember crying that I can’t do this. But it becomes second nature very soon and you develop confidence. If you want any help or advice, email me at mcgrath1975 at hotmail dot com. Lots of luck!

Viewing 9 posts - 1 through 9 (of 9 total)

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