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  • Ami Frank
    Participant
    Ami Frank

    Ugh, that is a tough one – one that I am not looking forward to. My daughter is only 8, been diagnosed since 2yrs old.

    I hope the situation improves for you – and I am sure you are right – that it is just a teenager thing. But I am not looking forward to this, as I already see my daughter getting sad at times, has a little pitty party, etc. And not to be a meanie, but I don’t let her have a pitty party. I just ask if she wants to eat it and then throw up for the next 5 hours… and then she turns it around quickly. But as a teenager – wow- REALLY not looking forward to that.

    Good luck – and know that you can always vent here!


  • Ami Frank
    Participant
    Ami Frank

    I have an 8yr old daughter that was diagnosed just before the age of 2 (right after my 2nd kid was born… talk about being hormonal and then dealing with the diagnosis I knew nothing about!)

    But we have come a long way and she is doing great. 2nd kiddo is still not celiac, and we all get tested every 2 years or so.

    This has been a life changer for our family – lots of good things – more eating at home together as a family, more aware of healthy eating, etc. But, I also started my own GF Bakery – licensed home bakery in Iowa. I can’t wait to quit my regular day job and do this full-time, but it will be awhile before that happens. Fingers crossed.

    But if anyone needs advice – been doing this since before she remembers what anything gluten tastes like (which is probably a good thing).


  • Ami Frank
    Participant
    Ami Frank

    Some people do respond with a rash with exposure to gluten, even if that is a different reaction then what other family members get. However – there are so many viruses that get spread in toddler rooms that result in a rash, there is no reason to jump to that conclusion.

    Family members are about 20% more likely to develop Celiac Disease than others, so it is usually recommended that all 1st degree relatives got at least the initial blood test to check for disease, even if asymptomatic.

Viewing 3 posts - 1 through 3 (of 3 total)

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