This topic contains 10 replies, has 4 voices, and was last updated by  MarniJ68 6 months, 3 weeks ago.

Sioux City area


  • MarniJ68
    Participant
    MarniJ68

    I’m looking for other Celiacs in the Sioux City area. I live 13 miles away from Sioux City and I work in the city. I was diagnosed with Celiac in January, 2014 and have been pretty much going it on my own since. I’ve been trying to meet up with other Celiacs in the area in hopes of mutual support, encouragement, etc.

    MarniJ68


  • Sharpshooter 4570
    Participant
    Sharpshooter 4570

    I’m in lower cental Nebraska. :)I was just diagnosed with Celiac disease in July of this year.


    • MarniJ68
      Participant
      MarniJ68

      Hi! I haven’t checked back here for awhile, so I didn’t realize anyone else had posted in this area. How have you been doing since your diagnosis last July?


  • marie4lisa
    Participant
    marie4lisa

    I was just diagnosed 5-6 weeks ago and I live north of Sioux City about 45-50 minutes. I would love to know any area tips and tricks you have ? I can offer all the newbie support I have! ;)
    Lisa

    • This reply was modified 3 years ago by  marie4lisa.

    • MarniJ68
      Participant
      MarniJ68

      Hi! I had about given up on connecting with anyone in the Sioux City area. Has your doctor put you in touch with a nutritionist who is knowledgeable about Celiac Disease? I know it can be really overwhelming in the beginning. My doctor was able to run the tests to diagnose me, but then left me on my own to research about Celiac Disease and about eating gluten free. One big piece of advice that I wish I’d have had when first diagnosed is to try to stick mostly to the naturally gluten free foods to begin with, but don’t overdue the fiber filled foods! There are a lot of tasty gluten free foods out there, but there is a lot of junk that is full of preservatives and not healthy ingredients. I highly recommend reading Jennifer Esposito’s book, which came out shortly after my diagnosis. Where do you live? I live in Moville, which is about 13 miles East of Sioux City. I work in Sioux City, though. There is a new restaurant getting ready to open in Sioux City that is 100% gluten free! The owners have 2 young daughters both with Celiac. I’d be very willing to help you out in any way I can!


      • marie4lisa
        Participant
        marie4lisa

        Thanks for your response ! I met with a dieticien once about a week after diagnosis. She was helpful, but most of what I have learned has been from research I have done on my own. Thanks for the tips ! Excited to hear about a gluten free restaurant close by ! I live by Rock Valley. How long after you went gluten free did it take for you to feel better. I am still struggling with alot of the same issues inspite of being gluten free. I am learning though that it can take some people a long time. So I am trying to be patient. Thanks again !


        • MarniJ68
          Participant
          MarniJ68

          I can identify. After my diagnosis I was pretty much on my own with doing research. I did see some of my health issues improve very quickly, others took several months and others I’m still waiting to see improvement on. I was diagnosed at the age of 45. Looking back on my life and the various symptoms I’ve had throughout the years, I’ve come to the conclusion that I probably developed Celiac around the age of 9 or 10, if not earlier. Because of that, my symptoms have been all over the place and plentiful. The longer a person lives with undiagnosed, untreated Celiac, the longer it can take for your damaged gut to heal because the more damage there is. Most of my most serious symptoms were not even gut related. In fact, I had to really think about my health history through my life before I could see a pattern of gut-related symptoms. It was anaphylactic symptoms that finally led to my diagnosis 2 1/2 years ago. Learning what all contains gluten was a long and frustrating lesson. Certain things can trigger my symptoms, as well, I have learned, even without consuming any gluten. Stress, lack of sleep, vitamin deficiencies can all trigger many of my symptoms. The Celiac Disease Foundation is a great resource, as is the Mayo Clinic or any of the many Celiac/Gluten Free blogs that are out there.

          I have relatives in Rock Valley and the company I work for, Bomgaars, has a store there. It’s a nice town. My Great-Aunt Jean Wynia used to live there and her son, Mark and his wife, Nancy, still do.


  • razzle
    Participant
    razzle

    Hi everyone took me 2 days to get signed up here … I am about 7 miles from sioux city . I dont have Celac but do have the rash and its awful ….. are there any places we might could meet and shoot the breeze.. hope someone answers me back thanks Roz


    • MarniJ68
      Participant
      MarniJ68

      Hi Roz. I live just a little out of Sioux City, too. I am the co-leader of a local Celiac and gluten free support group that meets once per month in Sioux City. I have Celiac. Was diagnosed 5 years ago next month. Have you seen a doctor for testing at all or have you gone gluten free on your own?

      Marni


  • razzle
    Participant
    razzle

    Marni is there any place online that gives a good list of gluten free items to buy at hyvee thanks Roz


    • MarniJ68
      Participant
      MarniJ68

      I don’t know of any place online to find that information. You might bee able to go to Hy Vee’s website to find that information. The problem is that each of the Hy Vee stores in Sioux City carry different products. The Hamilton Hy Vee carries a greater variety, but the Gordon Drive Hy Vee had a health market manager who likes to talk to her customers and you can request items for her to get in if they don’t already carry them. Her name is Doris and she’s very good with her customers. Every time I shop there and she’s working she takes the time to show me new gf products they’ve gotten in.

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