Yup, my mother-in-law definitely and my son we think – largely self-diagnosed via forum searching when GP totally unhelpful. We’ve been GF for a year at home and he’s really responded to it, but obviously we’re still learning and making mistakes, so I’m still on forums!
I had to diagnose myself too ! Although I had the DH side of things, my mother has been celiac all her life but my quack never put the two together – it was while looking something up for my mother that I found the DH symptoms and the bell rang loud and clear…I try to steer clear but I do slip up every now and again…and oh boy, do I regret it !
Keep up the great work, sounds like you’ve cracked it..!
There’s a big Coeliac Disease community here in the UK with a very active charity Coeliac UK which gives lots of help and advice to sufferers as well as doing campaigning and conducting research. I suggest you give them a look (if you’re not already members). See their website https://www.coeliac.org.uk/home/.
I recommend you persevere and get tested by your GP so you can the support you need from the NHS. Once you have a positive diagnosis (blood test initially followed by a biopsy) you will get two or three consultations with NHS dieticians, regular blood tests to monitor your antibody status from your GP and possibly gluten free food on prescription (depending on where you live). It really does make life a lot easier.
As you have both got close relatives with Coeliac Disease I would have thought that you should be able to ask to get a blood test from your GP as it appears to me (only a layman) that you meet the NHS criteria for people who ought to be tested http://www.nhs.uk/Conditions/Coeliac-disease/Pages/Diagnosis.aspx. The only downside of getting tested is that you will have to restart eating gluten for the six weeks prior to your blood test and biopsy – otherwise you could give a false negative result.
For years I’ve had stomach and bowel problems and brain fog, migraines and anxiety. I was diagnosed with IBS i am currently off work with severe bloating, nausea intermittent vomiting and feeling terrible I also have severe brain fog at the moment could I be gluten intolerant never had the intermittent vomiting before.