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    great w/site.
    did you ever worry that you had refractory celiac as you didnt really feel better? i have been ‘totally’ gf for 3 years (33 yr old male) and still often feel really average in the gut. i have some neuropathy as well
    so annoying

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      The Gluten Dude

      You know…I still do worry about it. Most of the time, I just don’t feel “right” if you know what I mean. I haven’t gotten an endoscopy since the time I was diagnosed and maybe it’s time for another one. Have you been back to your GI at all since your diagnoses?

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        i went back after a short time and said the diet wasn’t working but he said it was too soon. i’ve not been back to see him – specifically because i fear him saying it’s time for another endoscopy and no healing. i know i would be very young to get this and more than likely IBS or lactose issues, but the worry is still there.
        i’m sure most people would say “just go back” (including my wife) but the thought of having RC is worrying.
        i don’t ever feel normal but generally i feel a little better than i did 2 yrs ago. some days are really average though


          The Gluten Dude

          Go back. At least you know for sure either way. Does he/she put you under for the endoscopy? I sure hope so.



            Well, I had the same problem till I watched a video by Dr. Osborne
            about other non-gluten grains – or prolamines – which can be very
            problematic to some of us because they might cause an immune
            reaction, like corn, sorghum, millet, buckwheat to name a few.
            It made a lot of sense.
            Rice is the lowest on the prolamin list but my IBS sufferer brother is
            highly allergic to it. Yeast antibodies are also a second high, after wheat
            to my brother, who is not a celiac. We did the Enterolab test which proved to be the best for our family, specially for the ones who are non celiac yet, but are developing slowly other diseases. My dad is DQ8 and my mome is DQ2, so we have a double celiac gene in our
            Gluten is just one piece of the puzzle.
            My brother felt better without the gluten but it was not enough to rid him of all the bowel troubles, but he finally responded well by eliminating all
            the proteins he reacted positively on the Enterolab test.
            I would try the paleo diet for a while and see how you feel. Yes, there
            are many foods you can eat. It gaves us hope that we might be on the right track. I will post some of the links if you want. I love your
            blog and your sense of humor.
            Best of health and less frustration!

            1. The Gluten Dude

              Thanks for the info VMR. I’ve been tempted to go Paleo for a bit to see if it helps. Will consider even more now.

              Appreciate your kind words about the blog…

              1. VMR

                Hi Dude,
                here is a link to a great video trying to explain gluten sensitivity and celiac disease. Yes, there are ,by far, more people who are gluten sensitive than celiac. That’s why we feel well by eliminating the gluten
                and loosing weight is just a bonus – because we can’t digest it.


                Dr. Osborne lists here the amount (about 1 min mark) of all the gluten
                proteins in grains considered safe for celiac – CORN has more gluten
                than even barley??? Who would think? I booted the corn, sorghum,
                millet and buckwheat as well. Lately I cut the rice and I achieved a different level of healing. I finally got it! Paleo is better for me and my
                brother is also responding well. (grass fed meats, not (gluten) grain fed chickens or beef)
                Just found a bakery in Los Angeles which uses almond meal for their
                bake goods, which is the based of paleo baking. I felt great afterwards and I am happy to pass this on. All this years of a gluten
                free eating was not optimal to me at all. Yes, I felt better, but not great
                like I do now. I am not a celiac but affected imensely by gluten. My
                list of symptoms is huge but slowly fading away. Be well!


                Dr. Fasano, considered the biggest name of celiac diseases talks here about celiac and gluten sensitivity, which he admits lately is a
                real thing. The fad diet is helping all of us gluten sensitivity sufferes, not just the celiacs. I think the celiac are the lucky ones because the
                symptoms are more clear and obvious, but the ones with gluten sensitivity have all those mysterious symptoms, hard to link to gluten.
                Our genetics have to do with it. I am a DQ2 and DQ8 carrier – the
                two celiac genes.
                Dr. Peter Osborne (Texas) and Dr. Viccki Petersen (Silicon Valley) are the only ones who
                established this connection. Neurological problems and gluten???


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    I am curious as to how your gluten free journey is going. I went grain free a month and a half ago after a couple of ER visits and a major health scare. Grain free has helped a great deal though I think it will take time to heal a lifetime of grain damage done to a body. I was never formally diagnosed with celiac but found out by elimination diet as well as what happens when I have grain re-entry into my system. I hope that you are feeling better. I will tell you that the pasta is not worth it.

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    Have you ever taken Cipro or Levaquin or Avelox? Look up fluoroquinolone toxicity.


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