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20 Comments

  1. 1

    Kay

    Changing to a gluten free diet was a real challenge for me. When I finally figured it out, I let all my friends and family off the hook and told everyone I’d bring my own dinner. It’s worked out well for me and my gang.

    The celiac thing has really curtailed my travel. I’m planning my first real vacation soon, with friends who can eat and drink anything they want. I don’t want to put a damper on their fun. I want to be able to go out for drinks, even if I eat beforehand. There are very few restaurants and bars that offer gluten free beer in my hometown, Indianapolis. I can’t drink wine or ciders, so that’s my only option. I’m not very confident I’ll be able to find safe options in a new town.

    Here’s my question: Do you think it’s safe to drink Corona or any other widely available beers that are not labeled GF? Do you? Would you? I’ve seen anecdotal gluten tests that show Corona is safe. I have a gluten intolerant friend who regularly drinks Bud Light.

    Thanks, Dude!

    Reply
    1. 1.1

      Cali Celiac

      Kay, I’m not an expert, but I recommend you don’t do it. All non GF beer has gluten, even gluten removed beers. Malt is a main ingredient of beer and it has gluten. I love beer and live in the Sacramento area where we have a huge craft beer community with dozens of breweries and not one of them makes a GF beer. Sucks! Even beers like Omission which says on the label brewed to remove gluten (they add enzymes that are supposed to break the gluten down) are not considered Celiac safe. See link: https://glutendude.com/alcohol/is-omission-beer-really-risk-free-for-celiacs/

      On a positive note I have found a new GF beer brewed in Utah called Unita. They make an IPA and an ale and the ale is pretty damn good. I haven’t tried the IPA yet. In my area the best GF beers I’ve found are Greens, Glutenburg and the Unita. Old Grist makes a GF pilsner that’s OK if you like pilsners. And tequila is GF!

      Slainte

      Reply
      1. 1.1.1

        Kay

        Thanks, Cali Celiac. I’m avoiding Omission, which is becoming widely available in Indianapolis. I usually drink New Grist or Red Bridge. I’m a lightweight. Guess I’ll pack some along for my vacation. Glad my first gf vacation is a car trip.

        Reply
    2. 1.2

      Melissa

      As for travel…..try out Carnival cruises. I have cruised with them often. They have a GREAT GF policy and standards in place. Pretty much anything you want can be made GF on the ship. Simply let them know before you board and then you get to pre-view the next night’s menu for every day and put in your order. Then your food (the SAME food everyone else is eating but GF) comes to your table just like everyone else. Even their non-dining room burger joints, etc have GF buns and GF pizza, etc available. I can not say enough about how great Carnival is when it comes to their GF guests.

      Reply
    3. 1.3

      Gluten Dude

      Please do not risk it with any beer that’s not completely gluten-free. So not worth it.

      Reply
    4. 1.4

      Jennifer

      If you end up sick for half your vacation, you’ll wish you had skipped the beer. Why risk ruining your trip?

      Reply
  2. 2

    Patty

    At our Sedar last night, my MIL made matzo ball soup. When I said “No Thanks” she replied with “Will you REALLY get sick?” Oy vey!!! Going on 10 years GF and some people still don’t get it!

    Reply
    1. 2.1

      Gluten Dude

      Sigh.

      Reply
  3. 3

    David

    If it was a properly kosher seder, most of the stuff would have been gf ;P
    Here in Israel a lot of people keep kosher during the Pesach week, so it’s considered Celiac heaven since you can get (almost) every product in a special GF version, made just for this week. We stocked up.

    Reply
    1. 3.1

      Stefanie

      Yes but matza and matza meal are gluten! People use matza meal in everything and it cross contaminates like no other gluten substance…

      Reply
      1. 3.1.1

        Dick L.

        A couple of local stores (Chicago north suburbs) were offering Yehuda brand “Gluten-Free Matzo” a couple of weeks ago. Yehuda also has gluten free crackers. I seem to recall that someplace was offering some brand of gluten free noodles in their Passover specials. (I’m not Jewish, so I didn’t pay much attention, except to note that more and more stuff is coming out gluten free these days.) As usual, the GF stuff is expensive. The one store had the 10.5 oz. Yehuda Motzo for 5.99, the other for 7.99. (You could get 5 pounds(!) of motza for 3.99 or 5.99, depending on brand.)

        Reply
      2. 3.1.2

        Judy

        Went to a. Chabad sponsored Seder
        They don t use matzah meal etc. Fiod excellent
        Just skipped the smirah matzah

        Reply
  4. 4

    Cathy

    I do hear you, and I get it. But there are times where I feel excluded. Like when someone is insistent we do a holiday at their house instead of mine, so I can’t participate in a Thanksgiving meal. Something that was always a favorite of mine. Most of the time I’m good with bringing my food. I think with everyone there is an exception.

    Reply
  5. 5

    Sara

    Oh, Dude. I’m printing this for my 7-year-old son who has celiac. I love what you said here: Life is not about what happens to you, but how you respond to what happens to you.

    It’s such a positive message! Much better than just saying Celiac Sucks over and over (although sometimes the situation calls for that too).

    Reply
  6. 6

    Brian

    Dining out with friends is a complex business!

    On the one hand they want to do everything they can to cook you a GF meal but on the other they unknowingly make you feel very ill.

    A recent meal with friends who went out of their way to research and cook me a lovely meal ended up with the usual week long regime of physical and mental issues. Turns out a random, gluten loaded, chicken stock cube was thrown in to improve the taste.

    I hate the typical reaction when I say I’m bringing my own food – it’s true that they just don’t get it. Some people are visually insulted until I educate them about how their GF meal in no such thing.

    My reaction to gluten has been described as bi-polar – the mental reaction is the worst. I feel isolated and sometimes even unwelcome – this disease is life shortening and life inhibiting.

    Reply
    1. 6.1

      Cali Celiac

      Brian, I find the mental effects to be especially problematic, too. I get very depressed and anxious and find my cognitive abilities quite impaired. When I tell people it causes depression they think I’m talking about being depressed from having a disease, not realizing it’s a physical symptom. I try to avoid eating at social gatherings, but it’s difficult. I’m going to a BBQ and jam with some musician friends today and will have to navigate the Celiac food minefield and explain why I won’t eat that to someone I’ve told before, but they weren’t really listening then and maybe aren’t now. It’s human nature and it sucks, but the smoked baby backs are GF and sweet music will make me forget for a while. Music to sooth the savage beast within!

      Reply
  7. 7

    Stefanie

    I am very lucky because I have friends who learned everything about cooking gf when I was diagnosed 4 years ago and will send me pictures of condiments and foods they are using for my approval before they will cook with them if they have even the slightest doubt. Food is important but friends are priceless.

    Reply
  8. 8

    zz

    I’m glad it didn’t ruin your evening and you were able to roll with the punches. It’s something I’ve really had to learn over this last year of being diagnosed. Even so, there are times that I still get sucker punched by moments like this and inside I’m fighting the tears and frustration while trying to smile and shrug it off. Thankfully, there are fewer of those moments the longer I live with this disease.

    Reply
  9. 9

    John

    I once went to a Thanksgiving dinner where the hosts were very careful in providing gluten free food to two of us who are Celiacs.

    But while talking to someone, I was occasionally grabbing a GF snack. Next to it was a similar snack that was non-GF.

    Guess who got sick by grabbing the wrong snack and eating it while being distracted.

    I felt sorry for the hosts, since they tried so hard and I was careless!

    Reply
  10. 10

    Jenny

    Passover is stressful for me as someone with celiac but my mother in law tries so hard to make GF stuff for me. I have to bring my own matzah and take stuff before everyone gets bits of gluten everywhere and contaminates the spread. Glad you enjoyed the sedar minus your food snafu.

    Reply

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