3 quick Dude Notes before we kick things off today:
Dude Note 1: Jennifer’s Way bagels are ready for shipping as of last night. Get em while their hot!
Dude Note 2: The new Gluten Dude website will be launching in two days. It’s kinda, sorta, almost ready. Already pulled two all-nighters. Do I hear a third?
Dude Note 3: I swear I had three things to say, but now I totally forget the last one. Yep…I’m tired. (I also sound like Rick Perry in last year’s debate.)
Ok…onto today’s Dear Gluten Dude.
I love, and I mean absolutely love, the things people share with me. It’s one of the joys of being an advocate. The latest email comes from a fellow celiac who pretty much sucked at it…until she found this site and she has seen the light.
Here’s her email:
I basically wrote off that it was a false test (even though it was confirmed by blood work AND biopsy). I never had what I thought were serious symptoms. A few years later I went to another GI – had more blood work and ANOTHER biopsy which (obviously) both came back for celiac. My GI at the time didn’t even need to wait for the results of the biopsy, after my endoscopy, he said just looking at my intestines, he was 100% sure I had celiac.
I ate gluten-free for a year and a half, but I didn’t do a ton of research into the future complications of continuing to eat gluten. I don’t have horrible symptoms, but I haven’t been eating gluten free for over a month. I’m now suffering bloating, gas, fatigue and horrible joint pains. All of which now I know can be due to my stupidity. I am sorry for being a bad celiac. And after reading your website I realize just how terrible the ramifications are of my decisions.
So basically I am writing to apologize to the celiac community. I’m so glad to have found your blog and this community and I hope that now that I am taking this disease seriously, that I can be welcomed in.
I did also have a question. During my time of eating gluten free – I was still experiencing bloating, gas and stomach pains. I went to a new GI (I’ve moved a few times) and she check my bloodwork and said my antibodies were good, so no signs I was accidentally ingesting gluten. Is it possible I was eating a small enough amount to be affecting my body physically but not have it show up on bloodwork?
Thank you for making this blog and helping me see the light.
First, let me say this:
Ok…now that I got that out of my system and you’ve been formally admonished, STOP BEATING YOURSELF UP. Everybody handles their diagnosis differently and I’m sure you’re not the only one out there who used the “denial” defense mechanism.
Now stop cheating. Forever. You’re hurting yourself and you could be affecting the community as a whole by not taking the disease seriously.
If you’ve done the research, you may know that patients with celiac disease have an increased risk of death from gastrointestinal malignancies and lymphomas. You don’t want that. I don’t want that for you.
In answer to your blood work question…yeah it’s possible. Your blood work may be ok, but if your intestines aren’t healed, you’ll feel it for sure.
Welcome to the community. We’re happy to have you.
And by the way, I’m glad your ex is indeed your ex. He sounds like a real tool.