A rare Sunday post I know. But did you know that today is Celiac Awareness Day? No…really…there’s such a thing. Pretty cool.
Anyway, I couldn’t let the day go by without acknowledging this thing called celiac disease. But rather than me blather on and on about what celiac disease means to me, I’d thought I’d give the platform to the community today.
I have a page on this site called Faces of Celiac Disease (if you are not on the page, get your mugshot up there). When a fellow celiac submits their picture, I ask them to complete this sentence:
They have 75 characters to say what celiac disease means to them. Today, I’d like to highlight a few of the 836 answers so far. And since it’s my blog, that’s what I’m going to do ;) Take note that celiac means so many different things to so many of us. We’re all affected by this autoimmune disease in our own personal way.
After reading these, tell me…what does celiac disease mean to you??
Celiac disease is a serious autoimmune disease.
Celiac disease is misunderstood.
Celiac disease is sometimes sad and aggravating but we are GF to stay healthy and happy!
Celiac disease is a challenge — one that I meet head-on every day (mostly successfully).
Celiac disease makes me feel very isolated sometimes.
Celiac disease can’t stop me from seeing the world and enjoying life!
Celiac disease is more than just a change in one’s lifestyle.
Celiac disease a disease that makes eating a very involved, complicated puzzle.
Celiac disease attacked my central nervous system and nearly destroyed me before diagnosis.
Celiac disease has not stopped me from smiling and just being a kid!
Celiac disease saved my life.
Celiac disease has given me ups and downs but this is who I am and I’ve come to accept it.
Celiac disease nearly killed me. Twenty years on, I’m still trying to live with it.
Celiac disease means my mommy makes me yummy healthy food. I still get cookies!
Celiac disease is a pain in the ass but could definitely be worse!
Celiac disease is NO JOKE! A 100% gf diet saved me from a life of pain and misery.
Celiac disease heightens my awareness of what I put into my body.
Celiac disease is annoying! People think that I’m a hypochondriac.
Celiac disease has forced me to learn how to cook and eat healthier. I now love to cook!
Celiac disease is a lot of work. But I’m glad to have answers.
Celiac disease has given me a new appreciation for life.
Celiac disease makes it difficult for me to feel comfortable going out with my friends.
Celiac disease is finally the answer to why I have felt like crap for years.
Celiac Disease is hard for a kid but does not define who I am!
Celiac disease gives me, uh, what was the question? Oh ya, brain fog!
Celiac disease was a diagnosis that helped me learn how I could save my own life.
Celiac disease is what I have, but not who I am.
Celiac disease has been a curse, but also a blessing, making me eat more healthy.
Celiac disease has caused distrust in the medical field.
Celiac disease has made me realize I’m stronger than I thought.
Celiac disease was an answer to my prayers. I was very ill and just wanted to know why.
Celiac disease is harder physically, mentally and spiritually then can be put into words.
Celiac disease does not make me a bad dinner guest.
Celiac disease is not a fad.
Celiac disease is a bumpy ride and an epic journey!
Celiac disease freaking sucks!
(I thought I’d finish strong.)
As for me, and I am granting myself more than 75 characters, celiac disease is a constant unwanted companion. It never leaves me. As Mrs. Dude just said this morning…every day is celiac awareness day! And yet, in a perverse kind of way, I am also thankful for it. I control my disease with food. I have made great friends within the community. I have become a “voice”; not one that everyone loves, but still ;) And this may sound odd, but it has given my life a kind of purpose that I did not have before I launched this blog.
I will ask one simple thing of you today. Try to find one person that you can spread celiac awareness to. That’s it. Just one person. Together, we can and will make a difference.
And get yourself on that wall. The more faces…the more stories…the more powerful.