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    One of my favorites (not) – “Allergies sometimes disappear.” NOT AN ALLERGY! GRRRR! Then there is “but you look so healthy”. Yes, because I avoid gluten, and you don’t see me after an exposure because I’m usually feel to bad to socialize or even take care of everyday things. Then there’s “but you’re so fit” and “you have great willpower”. Well, it’s because I choose not to lose weeks (yes, weeks) of my life. And let’s just consider the looking “fit” part a fair? trade-off because I can’t eat most of the junk everyone else can. If I could, I would be eating chocolate cake for breakfast!

    On a more encouraging note, I have noticed that it has really helped that I changed my approach when explaining it to people. And I have told my friends and family that I will self cater, period. I do not ask their permission or blessing. It is self-preservation and if they get upset about it, that is their problem. So far, all good.

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      Alanna Cartier

      My sister once told me this too: “Sometimes allergies disappear when you are pregnant…” Great. I mean my seasonal allergies are a pain in the butt so that’d be nice to get rid of. Oh wait. You mean celiac disease? The autoimmune disease??? Not an allergy.

      I self cater as well. On almost all occasions. It’s just not worth the risk, especially when I’m becoming such a proficient cook :)

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      Gluten Dude

      Yep…bring you own food when necessary. If they can’t deal, that’s on them.

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      My aunt told me that I grew into Celiac Disease so I’ll probably grow out of it soon too. I couldn’t even respond. I just nod my head and smiled while clenching my teeth and screaming on the inside “ARE YOU CRAZY?!”

      I’m currently on my first day post glutening myself. Last night I became violently ill after consuming an entire box of mac and cheese which was not in fact gf. I have no one to blame but myself. I bought a bunch on sale and must have grabbed one that was mixed up with the GF boxes. The worst is over now but I’ll be paying the price for a week or two with DH, exhaustion, brain fog, etc. I will certainly be more careful in the future as well.

      I do wish others understood a little better that ingesting gluten is NOT just a stomach ache for us with Celiac/gluten intolerance, it can take weeks to feel normal again. Sometimes I feel like even those who are closest to me and completely support me don’t entirely understand how crappy it can be at times. I’m not doing this for attention, if anything, I’m sick of people asking about it/bringing it up alllllll the time.

      Great to know there’s a place to read and vent with others who are going through the same struggle.


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      Love this comment ! baam,got it in one. Although Im use to self-catering its still exhausting to explain it,when people arent genuine and dont want to understand.I feel ignored as if it isnt serious or a real problem.

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    Well thought out & truthful rant…

    Only my closest friends, business compadres and those I must tell for safety’s sake know how ill I’ve been, thus my social media pen name.

    My closest friends will most likely know the reasons when I kick the bucket and all others will remark “I know I never saw him as much anymore but I didn’t even know he was sick – he still looks so healthy!”

    Balance in all areas of life is a good thing!

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    This reminds me of when I was in my 20s and had a hidden heart ailment (Wolf-Parkinson-White, since cured by surgery). I “looked fine” to most people, so they couldn’t understand why I wouldn’t join them for that marathon/night out dancing/5 mile hike at the beach. People don’t understand what they cannot see.

    Fortunately, most of my family members can remember seeing me covered with rashes or remember my trips to the ER after holidays (Thanksgiving being particularly evil) before I stopped eating gluten and dairy — at least well enough not to be unpleasant about my diet. (I do wish they would stop “going out of their way” for me, though –inevitably, there is something forgotten, like the wheat-tainted chicken broth used to baste the shredded chicken for the tacos. Small sigh.)

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      Gluten Dude

      “People don’t understand what they cannot see.”

      So true…and sad.

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    el Hefe

    It’s sometimes seems as if delicious foods are so psychically and physically fundamental that people can’t think straight and empathetically for even a nanosecond before they try to force themselves upon their Celiac, fancy pants, unicorn wannabe friend or relative. Food and sharing must important for those people, the dopes.

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    Catered Wednesday night meals at our club meeting – this is the statement on the invitation: “For those of you with special food needs, feel free to bring your own.” In my ranting mind all I see is: “Sorry about your bad luck, bring something you can eat and sit with those of us who just have to show up and eat a premade meal that is served to us.”
    No, not so much. I have to make special plans and buy gluten free food to make a simple meal to transport over to the club and then answer a bazillion questions as to why I have my own food. Just bring your own doesn’t make me blend in, feel a part of the crowd, feel included because after all, you are there just to have fun not focus on the food! Then why are we gathering to enjoy each others company around FOOD!
    Gluten free eating is the strictest form of disease control, via food, that I know of. Diabetics (my mother was diabetic) need to be/should be very strict too, but do you hear about their travails when eating out or in a social setting. Seems only the Celiac gets slammed for being so strict. Yes, I am healthy looking BECAUSE I’m so strict.

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    My dear friend seems as if she is trying to understand how truly sick i am with Celiac. Upon inviting me to a picnic she states “well got some rest and do your best” in regards to me being able to stay late. I was like what? Do my best as if i can “bank” sleep and make my body just magically feel better by telling it to ” do its best!”

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    I am ropable tonight about something unacceptable that happened today. My husband, who has been completely work focused lately, took me out for lunch and it was just a really lovely casual eatery local to us which I had tried recently and wanted him to experience too. We ordered a side of vegetables as I had previously and yet this time they came with a red coloured sauce on them. I immediately asked the waitress if it was GF. She said it was (referring to the sauce specifically) and I told her I am coeliac and to please double check with the chef – she did and came back confirming it was safely GF. A reaction was experienced. As the day wore on I became more convinced it was indeed a gluten reaction. I have written an extremely strong worded email to this restaurant expressing my disappointment at this complete disregard of a serious illness – Annoyed beyond belief and I am going to make it my mission to educate the world about the effect of this on our community- my coeliac rant of the year !


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