Gluten Dude has gone Hollywood. Ok…maybe not. It’s New York City but I’ll take it.
I had the pleasure and the honor of being invited to Jennifer Esposito’s grand opening party of her Jennifer’s Way Bakery.
It was few months back and it was a great day in the city with the Dudette, followed by a special evening at the Bakery.
Unbeknownst to me at the time, Jennifer is part of a reality TV series called Playing With Fire on the E! network and they were there filming the evening.
Even with the cameras and the microphones, they had an amazing ability to blend into the background.
I wish they showed more of Jennifer’s speech at the end, and no…not because I’m in the entire shot. It was really a heartfelt, moving speech about her struggles with the disease and the opening of the bakery. She is trying to get her hands on more footage and I’ll post it if I can.
I know there was some hesitation from some within the celiac community about this show. There was concern that it would add to the “fad” aspect of our disease.
I assure you that you can put your worries to rest. Jennifer is all about the seriousness of the disease and while a lot of reality TV itself can indeed be pretty cheesy, she is doing a phenomenal job of raising awareness of our disease within the confines of the show.
Of course, nothing is ever perfect.
Jennifer tweeted the following to me yesterday:
Did you happen to see Playing with Fire last fri? You were in it at the opening. They also managed to edit when I said that “celiac is an autoimmune disease” and they changed it to “celiac is a gluten allergy”. I take it talking about an auto immune disease isn’t as “Fun” as an allergy. I truly don’t like people.
Then of course we joked back and forth about how inflammation, gas, hives, losing hair, under eye swelling, exhaustion, panic attacks and the ever popular threat of cancer is indeed a lot of fun.
Anyway, here’s a clip of where they spliced in the revised wording.
Totally lame on the part of E! and I would love some sort of explanation.
But that’s celiac in a nutshell. Two steps forward and one step back.
But we’re getting there.
Thanks to Jennifer for the invite.
Thanks to the Dudette for sharing the day with me.
And thanks to you all for hanging with me.