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9 Comments

  1. 1

    Kyla

    Very well said Gluten Dude. It is shocking to me about how many celiacs will blindly follow the wolf in sheep’s clothing. And how many companies out there push their “sort of” gluten free foods and do their best to convince celiacs of it’s safety. What’s worse is this mixed messaging for everyone without celiac disease. The impact on me personally is that I get ridiculed by co-workers for not going out to eat at a place I know is not safe, because their other “gluten free friend” eats their all the time and doesn’t worry about it. If you have Celiac Disease, you should always worry about it!

    Reply
    1. 1.1

      Gluten Dude

      Too many of these influencers tend to through caution to the wind…like it’s some kind of badge of honor to risk things.

      Reply
  2. 2

    Lisa

    Love this and thank you! So insane even friends w truly good intentions not BS friends will say I called ahead they have gfs options pls come…of course my answer is ALWAYS no ty (same w my in-laws of 27 years) they however are in their 90’s so I dont get upset when my amazing MIL says ohhhh the pizzeria sells gf pizza now let’s go for lunch ( poor thing, always wanting to feed me!) lol We are an extremely traditional Italian family fr NY, always made our own pasta, jarred 7/900 hundred bottles of sauce every August and made our our wine every September and we still have 26 of us for dinner every Sunday it use to be 27 w me, I’m not just gf I’m allergic to fish, I’m 98/99 % dairy free and completely nightshade free ( that is not by choice) then there are all my food allergies besides the fish
    You take me out to eat lol 😂 Omgosh 🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️
    I truly applaud you for all of your extremely hard work and I am very grateful for you Gluten Dude

    Reply
    1. 2.1

      Cyndi

      I think we are the same person! I’m also from an Italian family. Grew up on Long Island. Bagels every Sunday morning. Pasta with the whole family every Sunday night.
      I too have celiac, a severe seafood allergy and cannot consume lactose.
      My family thinks of me as “difficult and impossible” because I don’t enjoy going out to eat and won’t eat what other people cook.
      Too many cross-contamination incidents for me to take chances anymore 😞

      Reply
  3. 3

    Lizzy

    Does she actually have celiac? It seems like she has been diagnosed with celiac only when it’s convenient for the interview. I’ve seen “intolerant”, “sensitive”, etc. Same goes for her influencer twin who wants to be gluten-free and followed. 😉 She was told by a sports medicine doctor to avoid gluten (her own words found on her website). To me, both are sell outs who might not even be telling the truth about their conditions in order to earn money.

    Reply
    1. 3.1

      Gluten Dude

      “her influencer twin”

      Hee hee.

      Reply
  4. 4

    Maria Donohoe

    I Hate when other diagnosed Celiacs day they can just pick off the bread or croutons. It makes a BAD name for the rest of us that know the dangerous of cross contamination. It minimizes the severity of our disease and makes it look like it’s “no big deal”.

    Reply
    1. 4.1

      Gluten Dude

      [nodding my head in agreement]

      Reply
  5. 5

    Angelica

    I’m noticing that some of this is generational. Before 2014, there were standards but they weren’t finalized. People either had no life or they risked a lot of places. They used the barometer of “did I get sick?” instead of acknowledging that even if you feel well, you could have celiac and things like anemia don’t actually hurt in the “flu like” sense. (also, silent celiac is real) Until recently there were NO 100% GF restaurants at all. You might find a health restaurant like a raw food one in California that would be safe, but mostly you were out of luck.

    With more exposure, there are more excellent options and we demand more from restaurants, prepared food companies, food bars, etc.

    There are people in my area whose blogs I follow but I can’t follow their advice. I know they’re Celiac but I wouldn’t dare eat in a restaurant like that.

    I’ve had arguments with a local pizza place which culminated in the guy saying “there are no standards for gluten in restaurants” and his point was basically “tough luck.” This same guy is speaking at one of the celiac support groups in the area next week. The people who run that one are mostly in their retirement years. A few young people have shown up, but a few left real quick. The previous meeting was about an MLM juice / vitamin vendor. This support group takes place at a well known hospital. It’s authoritative.

    The other support group in this area gives properly safe advice, but the leader is a dedicated vegetarian RD who sounds more at home talking about weight loss than nutrition. Can’t win. But if someone asks my advice on where to go for a support group, I’ll send them to the vegetarian RD first, that’s for sure.

    SMH or banging head on wall, depending on whether I’m alone or not.

    Reply

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