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14 Comments

  1. 1

    John

    I’m the person who wrote about social activities (American Legion).

    I do what you suggest. I eat ahead of time, bring food or talk to the servers at the venue. It helps, but… When you are at a dinner, and not eating, it’s makes other people uncomfortable. I’m not ashamed of CD, but I cannot deny how others feel. I can explain, but that only sorta works, and I don’t want others to feel uncomfortable. The same applies if you bring your own food, except you can’t do that at a lot of places. I’m pretty old (Vietnam vet) and maybe this isn’t as much of a problem with younger people at events, and perhaps especially in places where GF is a fad so folks are used to it.

    I would be curious to hear how others respond to this.

    Thanks for all you do for the community.

    Reply
    1. 1.1

      Sol

      I generally bring my own food and don’t make a big deal out of it. When someone asks, I just say that I have Celiac disease and eating anything with wheat can make me extremely sick. Some people will still be uncomfortable… but just remember, would they feel uncomfortable if you were a diabetic choosing not to eat sugar? In the end, I’ve found that people eventually lose interest in what I’m eating and it’s not even an issue after a while.

      Reply
    2. 1.2

      krista

      You could always bring your meal with you if it’s uncomfortable. I think, sometimes, even though we don’t think we let it bother us, it does. You just have to be okay with telling people the reason and being okay with them being uncomfortable. It’s not your issue that other people are uncomfortable and you should be able to enjoy yourself!

      Reply
    3. 1.3

      wheatfreeeee

      I either bring my own food or eat ahead of time, too. If the former, I find people asking lots of questions and suddenly it becomes a topic of conversation. If the latter, people feel sorry and keep wanting to feed me, and then I have to turn them down. “Are you sure? I feel so bad you have nothing to eat” they say multiple times. Sometimes they surprise me with “gluten free” food that really isn’t, and then I feel rude.

      I also have a lot of gluten-free-but-not-really friends who are very vocal about it. They’ll take the bun off the burger and then others tend to expect the same from me and when I explain I feel neurotic.

      I’m trying so hard to not be awkward, and to use it as a learning experience, but I am sorta shy and I worry about seeming neurotic or offending people. Still trying to get the hang of it.

      It’s not the worst thing in the world though. People want to include me and that’s nice. It’s the thought that counts.

      Reply
  2. 2

    Cali Celiac

    Thanks GD, I gave Little Miss Muffet’s Almost Love Oats away to my daughter along with the Bob’s. I’ve been fighting your advice to go GF free for a couple months now, thinking if I give it enough time I’ll get better without having to retrain myself and completely change my diet. It’s only been 4 1/2 months and I thought I was doing so well. Ah, what kind of fool am I?

    I live alone in a GF house, have researched my meds, vitamins, supplements, even my toothpaste and shampoo. I was so thorough, yet 2 weeks ago I started to feel terrible. Migraines, muscle aches, rashes, gut pain and bloating, etc. I’m a technician at a fabrication plant where I work a compressed work week which means I work 12 hour days and I was struggling to have the energy to make it through a shift. On my forth consecutive day (my Friday) I was struggling with brain fog really bad, as well as depression and anxiety when a tool went down and in the course of trying to recover product I made a mental error and destroyed tens of thousands of dollars worth of product. I managed to finish recovering the tool and product before having to go to my car and have a small melt down. I had a brief meeting with my supervisor who was very understanding, but then I gave him little choice because I was kind of freaking out, fighting to keep my composure, choking back tears. I have made other less costly, but serious errors in the last year and a half due to brain fog. After 21 years, becoming the lead tech and a mentor in the area I fear for my job. I went to see my GP the next day and he immediately put me on a medical leave for 1 month (I think he feels guilty for treating me like a hypochondriac for years until the GI finally DX my CD). 2 days later I’m shopping and realize the brand of GF frozen waffles I bought the week before have 1 flavor that’s not GF. Yes, I had eaten gluten waffles 3 times during the last week. Although nice to know why, the knowledge that it was self induced didn’t help with the depression.

    I’m dreading going back to work. How do you explain? I’m embarrassed by my emotional behavior and feel foolish for my mistake.

    What kind of fool am I? OK, I get it now, the problem with GF foods…. Painful lesson.

    Reply
    1. 2.1

      krista

      You don’t have to explain and under ADA you cannot be fired from your job because of your disease. We are a protected class! I would just go about your day and just say you are feeling better!

      Reply
  3. 3

    Dick L.

    Re the question “Are oats safe for people with celiac disease??”: there is a fairly complete discussion of this issue in various articles in the Gluten Free Watchdog (GFW) web site in the News section (www.glutenfreewatchdog.org/news/). (GFW is a subscription service, but some articles are available to non-subscribers.) A recent article (January 25, 2017) “Gluten Free Watchdog Updated Position Statement on Oats”, has links to earlier items and is a good place to start. You’ll see the term “purity protocol oats”; the exact meaning of this depends on the supplier, but there’s a link to an earlier article on suppliers given in the Jan 25 article.

    I seem to be among the fortunate group of celiacs who can tolerate oats, and I’ve been eating products from Montana Gluten Free (their “purity protocol” seems to be about the most stringent) without problems for over two years, but this is definitely a case of “your mileage may vary”.

    Reply
  4. 4

    Michelle Chapman

    I too have missed breakfast. I found this recipe recently and am loving it. Kind of like eggs, kind of like oatmeal. Very filling. I’ve made it several times and I find that the microwave is the simplest way. One bowl, stir every 30 seconds until cooked. Very filling too.

    http://init4thelongrun.com/2015/01/31/grain-free-paleo-oatmeal/

    Ingredients
    2 eggs
    1 ripe banana
    3 tbsp of unsweetened almond milk
    1 tbsp of ground flax meal
    1 tsp of cinnamon
    1 tbsp of coconut oil
    Optional Toppings:
    Nut butter
    Sunflower Seeds
    Slivered Almonds
    Fresh Berries

    Instructions
    Peel banana, cut in chunks and heat in the microwave for 30 seconds
    Mash banana and add 2 eggs, whisk together until well combined
    Add almond milk, flax and cinnamon and mix together
    Put in microwave, stir every 30 seconds until cooked. Enjoy!

    Good luck!

    Reply
  5. 5

    G

    For the newly diagnosed rule #1 is the most important. Not long after my self-diagnosis and diet change I started eating glutino bread and ended up as sick as before. For homebrewing check out glutenfreehomebrewing.org. The cheapest and easiest good brew is partial mash with millet, buckwheat and sorghum syrup. You can follow their recipe kit the first time and then substitute different millet malts for variation. Drinking makes me alot more tired than it used to though.

    Reply
  6. 6

    John

    I want to speak up in favor of manufactured gluten free foods. Some is not as nutritious as the best GF food, but it is very handy, and some of us don’t want to focus our lives around preparing the best every time. It is our choice, just like it is anyone’s choice to do otherwise.

    Certainly it may cause problems for people, but be careful attributing problems to it – with our guts messed up with CD, all sorts of things cause problems. I have had to be very careful, keeping diaries, to find what bothers me other than gluten (and also, and why I started, to identify when I got gluten when not expecting it).

    I’m not saying that in your case, Glutino didn’t cause the problem – I just want to counter the idea that all of this stuff should always be avoided.

    Reply
  7. 7

    Jessie

    I work in health care, in a dept where patients bring us glutinous treats all the time, and pharmaceutical reps provide lunches next door. John has a definite point about being able to eat manufactured goodies, as does the dude with the moderation (if at all) message. Breakfast for me needs to be high protein, and possibly containing a treat type food that can be consumed mid-morning. Once your body has healed, if you can tolerate dairy, yogurt & a gf muffin can be a tasty way to start the day. Or a gf bagel with hummus or eggs & cheese, or even leftovers from last night’s dinner. While you heal, how about starting the day with a bowl of soup or stew?

    Reply
    1. 7.1

      Gluten Dude

      A “treat type food” is most likely loaded with sugar. Which will cause you to crash a few hours later.

      Reply
      1. 7.1.1

        John

        Yes and no. If you are diabetic, it can be a big issue. For other people, it may or may not. Everyone is different. I can eat a a lot of something that is loaded with sugar and not crash. In general, eating a lot of sugar isn’t something you want to do all the time, but for most people it doesn’t hurt at times when you need a convenient snack, which is a good thing since it is hard to find packaged food that is both gluten free and not full of sugar or sugar alcohol.

        I’m a storm chaser, which means I spend a bunch of time in the spring in the rural midwest. There is no way I can prepare food, because there is not time. There is a limit to how many bananas and apples I can eat. And, gluten free pretty much doesn’t exist there, at least as a “gluten free food.” So when all I can do is eat whatever is in a convenience store, the choices aren’t good. The good news: I tend to lose weight that I need to lose on those trips. The bad news: the food is really not very nutritious, but it works.

        Reply
        1. 7.1.1.1

          Jessie

          Treat type foods don’t have to be cupcakes. I’m partial to muffins myself & never crash, but everyone likes different things. Sounds like smoothies would be a treat for some of the others here.

          John, storm chasing? Wow! Can’t begin to imagine what that is like. Were you in New Orleans during their recent intense weather?

          Reply

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