I received the following message yesterday. She is in a place that most of us have been at one time or another. Celiac can be a frustrating, isolating, never-ending disease. And when it’s got you by the throat, it can seem like there is no escape.
Here’s her email…
I was diagnosed with Celiac disease 6 months ago…felt great initially, super positive and overall, ready to conquer the world. Today? Not so much. I’ve waited 4 months for a GI appt with a new doctor (after my first doctor turned out to be a complete tool) and just sat in a waiting room for over an hour just for the receptionist to tell me I need to reschedule.
My husband is in the Air Force and is leaving next week for a 15 months overseas tour, and I’m scared to death that I’m not reaaaally getting better. I’m exhausted. Constant brain fog. No true support group (our GIG is ridiculous). I’m strict GF…I’ve read and listened to every thing I can to include the crazy fringe doctors.
I’m overwhelmed…I just want to feel better. I’m doing everything right. PLEASE enlighten me and tell me I’m not the only one that feels this way and that I’ll find my way, because right now I feel like shit.
I’m 41, I have an awesome family, fun and supportive friends, but I’m feeling weary…that’s the best word I can think of to describe this.
Like I said, you are certainly NOT the only one who feels this way. You are not alone. You’ve got a phenomenal celiac community here that’s got your back. And kudos to you for having a supportive group of family and friends. Many aren’t so fortunate.
Stay the course. It can take longer than six months to heal. The expectation is that you will immediately feel better once you begin eating gluten free. The reality tells a different story. Try to stick to mostly whole foods until your body has a chance to heal. That made a world of difference for me.
Perhaps a trip to a good dietitian or allergist to see if anything else is going on?
I know it’s frustrating. I still get frustrated…a lot. It’s kinda part of the celiac package.
My best to you and wishing your husband a safe trip overseas.
And if you ever need a friend, as Bill Withers says, Lean On Me.
If anybody else wants to chime in and let us know how you got out of the celiac doldrums, please share.