We all get angry at celiac disease at times.
That’s why I allow people to send in their celiac rants.
I think it’s real important not to keep things bottled up inside.
The idea is to let them vent and then hopefully they can find some peace and move forward.
But what happens when it is not YOU that has celiac disease, but it’s your child?
And you simply cannot get over the anger and grief you feel?
Here’s an email I received this week. It’s from a mom who is struggling to move forward.
Dear Gluten Dude,
I just wanted to write you about how much I enjoy your blog. Many times it brings me to tears.
My 12 year old daughter is the celiac in our family. She was diagnosed at age 4, so she has never known anything different.
She handles everything better than I do. She really does not mind eating different things than her friends and rarely gets upset about things she cannot have.
But I still have this grief for her diagnosis that I cannot get over.
It pretty much has made me lose faith in God.
I’m just so angry and sad. Mostly about all the difficulties she will have in high school, college and in life.
She has no idea how hard things will be for her when she gets older.
I of course have all the usual anger etc. when servers mess up or clueless people make stupid comments. But I can get over that.
Any ideas how I can heal this incredible grief I still feel over her disease?
I know I need to accept it, but I just can’t seem too.
The tough love answer is that you’re going to have to accept it.
I know…easier said than done.
But your daughter will follow your lead.
And if she sees you angry, bitter and resentful toward the disease, that is most likely how she will feel as well.
Celiac sucks…yes. And it’s a lifetime disease…yes.
But it can be managed. And it can be managed without expensive medicine with god-awful side effects.
Help her to embrace the hand she has been dealt.
Here is one of my favorite quotes:
Find some peace with it and you’ll be amazed at how much better you’ll feel.
The best of luck to you and the best of health to your daughter.
What advice do you have for her?