First things first. Happy Birthday Bruce. 65 years young and still playing 3 hour shows. I ain’t here on business, baby, I’m only here for fun.
Do you know there is a woman with celiac disease who has supposedly trained her dog to sniff out gluten?
She says that one time she bought gluten-free chips but the dog reacted to the package and then she realized that instead of the chips, she mistakenly purchased gluten-filled crackers.
And now she brings the dog to the grocery store, on vacation and even to restaurants. Yes…restaurants.
Give. Me. A. Break.
Look…being a celiac makes us a lot of things.
It makes us sick more frequently then we’d like to be.
It makes us plan almost every meal ahead.
It makes it more challenging to be spontaneous.
It makes us “defend” gluten-free as real and necessary.
It can make us tired, cranky, brain-foggy, blah, blah, blah.
But one thing it does not make us is a victim. And we need to stop portraying ourselves as such. We’re not helpless folks. We have a disease that can be managed with food.
Do we need to be extra careful? Absolutely.
Are we gonna get hit once in awhile? Yep.
Does it suck? You bet.
But does it mean our life is unfair? Hell no.
Someone left the following comment on a blog post the other day when things got a bit heated about whether celiacs should be treated as having a ‘disability’: “This website was created to make us understand that we are not alone, that we do have a disability and rights we have to fight for.”
Well…two out of three ain’t bad.
Yes…I created this site so no celiac has to feel alone.
Yes…we do need to advocate to get our disease taken seriously.
Yes…I don’t paint a pretty rainbow-wrapped picture of celiac disease.
Yes…we all need to rant once in awhile.
Yes…I am here to listen to those rants.
And yes…I feel your pain.
But this is not a “pity party” site where we all feel sorry for ourselves. It’s a site to be heard…to be understood…but most importantly, to be empowered!
I have never claimed that I have a disability (though I know in some situations like school, it can and should be treated as such). I have a pain-in-the-ass disease that I wish I didn’t have.
But you know what? I can live a pretty normal life.
I don’t need a dog to tell me I purchased gluten-filled crackers. I just need to make sure…wait for it…that I don’t buy the gluten-filled crackers in the first place.
If there is one thing this summer has taught me, after watching Mrs. Dude deal with her cancer, it’s that it’s so easy to get wrapped up in my disease. But once you put it in perspective, you come to realize that it’s a disease that can be managed.
And the recipe is pretty simple: a dash of common sense, a splash of diligence, a pinch of self-control and a dollop of acceptance.
Mix it all together and you’ve got one strong celiac.
Try to be that celiac.