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12 Comments

  1. 1

    Jennifer

    Being a “CB…Celiac Bitch” is great because you are showing your daughter that 1. sticking to the diet is very, very important; 2. you can find ways to still be apart of “normal” activities for the most part; and 3. (and my favorite) that she has to be her own advocate for her health. Many of us (no matter the disorder) don’t learn that until later in life. So I applaud your “CB” status! Way to go! You’re going to raise a strong, confident daughter.

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  2. 2

    Mandy C

    Good for you. My family must be used to my natural sassiness, none of them are remotely interested in challenging my GF status. Or maybe they’re not assholes. Either way, this post reminds me how lucky I am.
    The wider community though…. Eeh, I think I offended someone who made me special GF cookies for a craft group I go to today.
    When she wouldn’t tell me what flour she used, well, I figured the rest of the conversation wasn’t going to be worth while, so I didn’t eat her cookies. You know, the ones she made in her super gluten filled kitchen that she regularly bakes in. Rude, right? Nah. I don’t think so and I don’t care. I’m less than 6 months since diagnosis. I don’t need that crap.

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  3. 3

    Margo

    Awesome job standing up for your daughter!!! I feel the same way at times standing up for myself, but I’m an adult, not a kid facing the ignorance. It sounds like your daughter does a great job standing up for herself, too. You go, GF Mama!!!

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  4. 4

    Mary

    Gluten and products that are Gluten free are not going to go away! Its a multi billion dollar business with continual growth. Why is it that so many people act as if it “was a diet invented last hear” therefore its just a phase and the world will get over it real soon! Why is it that all food handlers and food industry workers are not schooled for, I don’t know – at the least 5 to 10 minutes on what it is they must do upon hearing the words “I’m a Celiac and must eat gluten free, for life, not as a fad diet.”. Why is it we must literally go into survival mode for ourselves or our loved ones when it comes to food being made for, cooked for, given to us with the notion from the giver that only a little gluten won’t hurt, right? Seriously? Only a small peanut won’t hurt, right? Only a bit of e-coli in the fresh spinach won’t hurt, right? You go CB! We’re all right there with you!

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  5. 5

    Else

    I love the daughter’s response to comments about the taste of gluten free food! I’ll have to use that one myself one day. At a restaurant last night I asked for a salad without Caesar dressing and croutons and the waitress’ response was “do you actually like eating like that?” Safely? Why yes, I do.

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  6. 6

    janine

    I like to tell people to substitute rat poison for gluten in their ,mind when they are thinking if something is suitable for my daughter to eat. eg’ there are only a few crumbs of rat poison in the butter is it ok to eat?’ or ‘it is gluten free but it is cooked in the fryer with the rat poison – is that OK?’ it gives them a different perspective

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    1. 6.1

      Rosies Mom

      I usually save the rat poison analogy to drive home the point to the really stubborn teachers and family. You put a little rat poison on your dinner and we’ll put a little gluten in our gluten free food…then let’s see how everyone is feeling in a few days. Usually gets their attention and understanding.

      Reply
  7. 7

    FieryLady

    Miss CB, you are amazing. I went gluten free when I was 11 and there have been too many times in my life when I couldn’t eat anything at a party and instead of asking for an alternative I just didn’t eat, because I thought the adults around me would think I was faking it. (I’m 16 now and I speak from experience) having a supportive parent and somebody to back you up is the best gift you can be given. Your daughter is lucky to have such a proactive parent!

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  8. 8

    CBTOO

    This felt like reading myself speak!!! Thank you from one CB mom to another :) if we don’t protect them no one else will !! Also I am one too so i know how bad my son feels when people disregard my telling them he can’t have things and give it to him any way aggrrhh and I am left to deal with the symptoms of a toddler who can’t express how bad he’s feeling.

    Reply
  9. 9

    ChrizzyT

    Good for you championing your child like that! People just “don’t get” this disease and you can never be too protective of your child.

    I always equate it to the flu-except in the end you die of cancer. Anything to drive home the seriousness of this disease.

    Reply
  10. 10

    Rosies mom

    Ohhh I like the flu analogy. That’s one people can relate to.

    Well this CB mom is back in nearly full force dealing with the school again. I’m trying to educate the teachers politely, but I do blunt much better. If the child has a 504 and they know the food reward is not safe for her, you’d think they would contact me for safe options. Per the 504. Nope they give her the reward anyway, which becomes effectively a slap in the face for trying so hard. And could someone please help me understand why science labs are all food, which of course isn’t gluten free.

    Reply
  11. 11

    RoJo

    I’m a teacher with Celiac. Teachers kept sending kids with bagels to my room until I had the wonderful school nurse remind admin that I need to go to the ER because one of my symptoms is severe asthma attacks, and they need to cover my room. Have your doctor write in that your daughter needs to be transported for fluids. Believe me, they care when it effects them.
    PS I was vocal about it, signs on my door, etc. You’d be surprised how many KIDS were happy to see an adult with food safety issues. Grown-ups, speak out, you are modelling advocacy when you least expect it

    Reply

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