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8 Comments

  1. 1

    JXG

    Note to who ever made this rant. I too live overseas and struggle with finding GF items and eating out. I started using a packing company in the US called PacMe and I get shipments from them from the U.S. of GF products a few times a year. They provide you with a US shipping address. I order most of my GF food from Amazon US but other places as well and send it to them. They then consolidate all my packages and send to me in Europe for the cheapest possible rate. If I do a large shipment (80 pounds) it costs about 300 USD to ship and it comes in about 5 days. Getting a shipment is like Christmas! Good luck to you.

    Reply
  2. 2

    Jacqueline

    To the Author,
    My story is similar to yours. After almost 9 years I’m still under 90 lbs and feeling lousy. I’ve been diagnosed with adrenal fatigue, chronic fatigue, fibromyalgia, osteoporosis, low thyroid, leaky gut…All of this I believe stems from the inability to absorb the nutrients from food properly because of the damage Celiac has done to my body.
    (I don’t eat any grains, dairy, eggs or many other foods because of sensitivities I’ve developed.)

    Unfortunately because this disease is believed to be controlled by “JUST eating GF” it will not be taken seriously enough for the mainstream medical community, let alone the general public who don’t differentiate Celiac from Gluten Sensitive or GF Choice. The money hungry food industry believes a liitle gluten isn’t harmful. Until someone in a position of power is stricken with this life altering disease and actually lives with the consequences and is driven to actually begin a realistic education plan for Celiacs and the general public, we have to be our own “food police” and advocates.
    Thanks GLUTEN DUDE for beginning the process.

    Reply
    1. 2.1

      Irene

      Wow- your story is so much like mine Jacqueline. I haven’t been diagnosed long but am getting worse instead of better. Doctor believes I have fibromyalgia too and I’ve just cut out grains, dairy and eggs because I’m having multiple food sensitivities. I’m also having reactions to foods high in salicylates- this really limits what I can eat. I also have Hashimoto’s.
      I’m currently doing the whole 30 diet because I’m desperate to feel well. It’s just hard to do that without eggs and most healthy fruits

      Reply
  3. 3

    Steve

    I am three months into my “diagnosis” because I had to literally research my symptoms until I concluded on my own what was really happening to me. I had “episodes” over the last decade (I am in my mid fifties) but in the last year, this disease jumped into overdrive. I lost forty pounds in three months because I literally became afraid to eat…. anything. In any given week, I may experience two normal days, because I’m still discovering how hard it is to avoid gluten. Anyway, I am glad I found this website and it’s good to know that others are out there like me.

    Reply
  4. 4

    Linda

    Glad to read about someone else who can’t do grains. I have DH & I think that is why I can’t tolerate grains. They give me painful rashes primarily on torso. Was dx 8 years ago at 57. Damage significant. I had to jump into caretaking for many years right after dx as my husband was dx with stage 4 cancer right after my dx. He survived 5 1/2 years & passed 2 years ago. The fact that he was on feeding tube actually helped me manage CD. I had been eating GF crap like cookies while caregiving and just was so ill. Took a while to realize all grains were problem though Drs. Have no real explanation. Took me way too long to realize the damage eggs were doing to me. I only eat vegetables, fruits, yogurt, and lean protein. Sardines are a staple. I have good & bad days but apparently I look great which is baffling, I tell everyone it’s my consolation prize, but it’s very challenging. No one ever thinks I’m sick, so I come across as a diva or whatever. I just managed to travel for 2 weeks for family reunion. Never thought I could do it. A dear friend scrubbed her apt down & kept it GF for me. Incredible.
    The limitations of such strict diet can be so challenging. Never feeling good, even with all this effort, kinda sucks! I would love to find some humor in this. I would love to find a celiac buddy as its hard to move on as a widow with this disease.
    I’m just relieved to read about others who can’t do grains. That’s what really makes it complicated.
    Thanks for listening
    Linda

    Reply
    1. 4.1

      Gluten Dude

      Sorry for your loss Linda. Perhaps you can connect with someone in your area on my forum: http://glutendude.com/gluten-free-celiac-forum/

      Wishing you the best.

      GD

      Reply
  5. 5

    GlutenfreeGourmet

    I was diagnosed 15 years ago after being tested ( and often treated unsuccessfully) for everything under the sun. Diagnosed with Asthma, and chronic fatigue. Suffered from migraines from Age 3….went from 3 a year to 3 a week. joint pain, tender stomach, anxiety, etc. Then I Gained 30 1lbs in 3 months! No reason. No diet change. No obvious stress or illness. Dr started looking at Lupus, Lyme, thyroid. Joined weight Watchers and got worse. Sent to ER for ultrasound ( Dr. thinking it was Gallbladder) Found bleeding ulcers. Sent for more tests and finally a wonderful Gastro dr. called me after the endoscopy to tell me I had Celiac Sprue. Didn’t know what it was…but it was something. Started doing research and cut out all Gluten immediately. Migraines went down to 3 a month. Been working on the weight for many years. got down to within 5 lbs of where I wanted to be and ate GF cheerios for breakfast for a week. Gained 9 lbs back!!! Did a colon cleanse a few weeks ago and am on day three of a 3 day Candida cleanse. If you have Celiac and still feel awful…check out Candida. I did the in-depth check list last week. Women scoring over 180 probably have Candida (I had 220). We are more likely to have co-morbid issues such as candida, Arthritis etc due to the immune issue. Not saying you shouldn’t cut out other foods if you know they make you ill….but you might have another reason for feeling tired, bloated, sore, joint pain etc. I am feeling better today than in many, many weeks. hoping this continues. The liquid and veggie cleanse wasn’t easy since I also have hypoglycemia and really NEED to eat every two hours. I drive for my job. Kept cucumber water, fresh fruit, fresh veggies and fresh fruit and Kale smoothies close by. Feeling good. Down a few lbs and not so bloated.

    Reply
  6. 6

    Rachel

    I eat gluten-free mostly by choice, not because I have celiac disease. However, I have heard how much of a struggle it is from several different people in my life, and while I do not suffer from it I do empathize with those who do. I can’t imagine what it’s like. Thank you for sharing this rant.

    Reply

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