Dude note: To help celebrate and promote Celiac Awareness Month, I will be writing 30 blog posts over 30 consecutive days (weekends excluded) with the theme “30 Days of Helping 30 Celiacs”. Each post will be aimed toward helping one specific person or group of people. If you or someone you know needs help, guidance, advice or a shoulder to cry on, please contact me and I will do what I can to help. On the 31st day, you’re on your own. Totally kidding.
Today’s 30 for 30 blog post is for: Celiac newbies who make mistakes.
Are you crying? Are you crying? There’s no crying. There is NO CRYING IN CELIAC DISEASE.
I just love that scene.
Anyway, we were all newly diagnosed at one time or another. And we all messed up. Every single one of us.
It’s a brand new world when you’re diagnosed and there is simply no way in hell you make the transition unscathed.
Heck…it’s six years later and I can still eff up sometimes.
My advice to newbies…give yourselves a break. We’re only human.
Here’s an email I received from a newbie who is beating herself up pretty good.
I can’t take off work to rest. I used up too many sick days getting the diagnosis and then finding a GI who had a clue about this damned disease. I need the rest of my days for the next round of appointments to deal with all the other weird symptoms cropping up. Not to mention I feel absolutely ridiculous saying that I need to stay home because I ate the wrong chili!
I know I am lucky. Lucky I didn’t die from the perforated intestine that led to this diagnosis. Lucky I have supportive friends and family. Lucky that (so far) my limited forays into local restaurants have been positive with no rolled eyes and no getting sick for me.
But today I am crying over chili and my own stupidity. Because as much as I have read about this disease and how careful to be, I know I have injured myself when I am trying to heal. And I hate that I did that. Just as I hate this disease.
I get worn out sometimes trying to keep myself safe and healthy. I don’t miss any particular food from before diagnosis and nothing could make me cheat, but oh how I miss convenience and ease! They are missing from my life these days and when even gluten free organic chili is out to get you….well, today I cried. Again.
As I said above, we’ve all been there so you’re in good company.
It’s an adjustment period, no doubt. Give yourself a break.
I know it’s crappy getting sick. The physical aspect of it is bad enough. Don’t emotionally pile on yourself. It will just make it that much worse.
And just remember…there’s no crying.
Chin up :)