Dude note: To help celebrate and promote Celiac Awareness Month, I will be writing 30 blog posts over 30 consecutive days (weekends excluded) with the theme “30 Days of Helping 30 Celiacs”. Each post will be aimed toward helping one specific person or group of people. If you or someone you know needs help, guidance, advice or a shoulder to cry on, please contact me and I will do what I can to help. On the 31st day, you’re on your own. Totally kidding.
Today’s 30 for 30 blog post is for: Jane, who doesn’t have an official diagnosis and is wondering if it’s okay to call herself a celiac.
Two quick notes:
1) Today is my 400th blog post. Not sure why I mention it but since it’s a nice round number, I figured maybe it was worth something. Perhaps I’m wrong. Okay…moving on.
2) My life is crazy busy right now and while I still write the posts and I read all of the comments, I don’t always have the time to respond as much as I’d like to. I just want to say a huge thanks to everyone who keeps the conversation going here. It does NOT go unnoticed and it does NOT go unappreciated. I heart you all :)
Now back to your regularly scheduled programming.
I hate lies and I hate people who lie. But I love today’s question. As much as it bites having celiac, I’m sure as heck glad to actually have a diagnosis.
But there are many who don’t have the benefit of an official diagnosis, whether it’s due to the cost of the endoscopy, not willing to eat gluten for accurate results or just plain old crappy doctors.
Let’s listen in on one woman’s dilemma. The floor is all yours Jane…
After years of curling up in the fetal position, feeling like someone was stabbing me in the stomach, suffering from severe bowel problems, being nauseous, malnourished, and feeling plain rotten, my doctors couldn’t figure out what was wrong. Some thought maybe I had gallbladder problems, then said it was severe IBS, yet the problems continued.
My mom recommended I go on a gluten free diet after hearing Jennifer Esposito’s story. Before I went gluten free, my mom finally convinced my doctor to do the blood test for gluten. It came back negative. The doctor said that we could do the endoscopic procedure to test for celiac, but that it was very expensive. She recommended I go on a strictly gluten free diet to see if it did anything.
Weeks after, my symptoms cleared. I was happier, feeling stronger than ever, no stomach issues, and improvement in my bowel movements. I finally felt ALIVE again!
My question for you is….when people ask why I have to eat gluten free I often respond by saying “I have celiac disease.” Is this an okay response? I feel like I am misleading them in some way because I never got the endoscopic procedure done. But if I say that I have a “gluten allergy” they think I am lying.
Help me Mr. Dude!
You have my absolute, complete, 100% blessing to say you have celiac disease.
You may have it. You may not. You may never know. Who cares? You’re completely gluten-free for life and you’re feeling better. To me…that’s all that matters regardless of what the heck you want to call it.
Yeah, I know I said I hate lies and liars, but if saying you have celiac makes you think people will take you more seriously (which in turn will keep you safer), then bending the truth isn’t going to hurt anyone.
Sometimes, a little white lie is the right call. Just ask Jim Carrey. You agree folks?